Pain in the butt - Can't sit down

Posted by ecalderman @ecalderman, Nov 21, 2012

I have had very intense pain at my sitz bones for over 7 months and am unable to sit down. when I sit, it feels like I am sitting on two hot pokers or rocks and it is really unbearable. So, I have been standing for seven months. I've been to a couple of spine and pain management doctors, an orthopedist, a chiropractor, a neurologist, an acupuncturist, and a massage therapist. The original diagnosis was ischial bursitis but that ha not appeared on any images. I don't have any issues with any of my lumbar disks. I'm in constant pain even when standing or lying down though those activities do not hurt as much as sitting. Has anyone heard of anything like this before?

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Does anyone know if I can have chiropractic adjustments 9 years after L5-S1 fusion. Not sure if it will help with my peripheral neuropathy, but it might help with some of the symptoms.

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I have just read thru all the comments on this thread and did not see any mention of dystonia or Parkinson’s, or atypical Parkinson’s. Dystonia doesn’t respond to narcotics. It does respond to Botox. It might respond to muscle relaxers especially higher doses of baclofen. If you possibly have Parkinson’s, deep brain stimulation surgery can be helpful. If you see a neurologist, you might want to check if they are movement disorder specialists. I have had hamstring dystonia for 4 plus years, saw multiple orthopedic doctors, had spinal surgery for my neck and injections in my lumbar spine.
I was hospitalized in icu for 3 days and injected with dilaudid every two hours. Nada! (Except for developing moderate Gastroparesis). And it is excruciating painful to sit for more than 30 minutes. Muscle relaxers especially higher doses help me sleep but I cannot take them if awake. Most people with Parkinson’s have had it for 10 years before diagnosis. And atypical Parkinson’s patients don’t always have the typical tremors or pill rolling behaviors…. I would recommend that you see a neurologist if you haven’t got anywhere with current treatment.

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I have a similar problem in a different area and I have found Radio frequency ablation to be very helpful at least it makes the pain go away for about nine months. However the next thing I’m going to try is scrambler therapy as I’m hearing people go years without the pain after a few sessions of scramble therapy

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