Zoledronic acid

Posted by bonebuddiesforlife @bonebuddiesforlife, Sep 17 5:41pm

Has anyone here had the infusion and how well or not did you take to this injection?
I know that each persons results are individual to their own issues and health issues .
Just wondering what the overall consensus is for this.
I am about to have my first one this coming October.
Thank you all for your time .
All the best to everyone here.
Cheers

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

njx58 | @njx58 | Sep 17 6:11pm

Do a search for Reclast in this forum's search bar. You'll get a ton of user experiences.

bonebuddiesforlife | @bonebuddiesforlife | Sep 17 7:53pm

Thank you for that information.
I’ll search it out

dannyandebbie | @dannyandebbie | Sep 18 6:32am

In reply to @bonebuddiesforlife "Thank you for that information. I’ll search it out" + (show)

@bonebuddiesforlife Honestly, please do your research before you decide to receive any form of medication! You are right, everyone is different and also evaluating your current condition vs what your endocrinologist expresses what you might have. The potential side effects from my experience are Long term; 28 months for me and still experiencing them! Best of luck!

bonebuddiesforlife | @bonebuddiesforlife | Sep 18 7:44am

In reply to @dannyandebbie "@bonebuddiesforlife Honestly, please do your research before you decide to receive any form of medication! You..." + (show)

@dannyandebbie thank you for your response.
I have been doing a lot of research and I’m still in the fence about getting the infusion.
I’m 59 , male and I was diagnosed at the age of 53.

shocknot26 | @shocknot26 | Sep 18 9:02am

In reply to @bonebuddiesforlife "@dannyandebbie thank you for your response. I have been doing a lot of research and I’m..." + (show)

@bonebuddiesforlife May I respectfully ask what you have taken prior? I believe I may be on the same path after I finish my course of Tymlos.

dannyandebbie | @dannyandebbie | Sep 18 9:14am

In reply to @shocknot26 "@bonebuddiesforlife May I respectfully ask what you have taken prior? I believe I may be on..." + (show)

@shocknot26 I too am a 69 years old male that was diagnosed with the onset of osteoporosis at age 66. I have had Ankolosing spondylitis since the age of 18. At the age of 58 I was diagnosed with bladder cancer and again in 2011, 2015, 2018 and 2023 and the received my infusion in June of 2024. My legs have always been an issue as well as burning sensation since I had a Urolift placed in 2024. Never have I had an issue with my shoulders, left foot, nausea, exhaustion, fatigue and this continued constant shocking sensation in my groin area as well as my butt area; especially if I cough, it’s instant! There are days I’m just totally exhausted and frustrated. I wish I never had received this infusion because once it is inside you there is no cure for the symptoms that I know of to date; especially when your endocrinologist says that my symptoms are not caused by the infusion, sends me to rheumatologist who finds nothing and sends me to neurologist who finds nothing and suggested I go back to my endocrinologist!

bonebuddiesforlife | @bonebuddiesforlife | Sep 18 12:14pm

In reply to @shocknot26 "@bonebuddiesforlife May I respectfully ask what you have taken prior? I believe I may be on..." + (show)

@shocknot26 1 year of Evenity . A one year break and now possibly Zolendronic acid .
I know after 3 years you can take a break from it but I’m wondering if you can ever stop completely?

bonebuddiesforlife | @bonebuddiesforlife | Sep 18 12:16pm

In reply to @dannyandebbie "@shocknot26 I too am a 69 years old male that was diagnosed with the onset of..." + (show)

@dannyandebbie my goodness , that sounds horrific.
I’m sorry you are going through this.
I will continue to do research and make a decision very soon.

WilWeten | @wilweten | Sep 19 7:00am

In reply to @bonebuddiesforlife "@shocknot26 1 year of Evenity . A one year break and now possibly Zolendronic acid ...." + (show)

@bonebuddiesforlife So you took a one year break after your 1 year course of Evenity. Why was that? Did you use a P1NP/Ctx every 3 months to monitor the raising osteoclast action and the declining osteoblast action?

I'm so very sorry. If one stops Evenity without a follow up, according to research one tends to lose all the Evenity gains within 12 to 30 months...

I do hope, you're one of the lucky ones.

bonebuddiesforlife | @bonebuddiesforlife | Sep 19 7:36am

In reply to @wilweten "@bonebuddiesforlife So you took a one year break after your 1 year course of Evenity. Why..." + (show)

@wilweten there was no follow up support from my specialist.
I have basically gone it alone since the Evenity program.
I have been on n an intense resistance training program and all the supplements recommended, ALGEA cal plus , magnesium, high calcium intake , vitamin d & k2 , high protein.
My DEXA scan this past May still showed an increase in bone density and my back feels fine.
My bone density scan in January also showed improvement.
I feel like I am able to do this without the medication and I am very concerned about starting another round of medication.