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Husband just likes to lay around in the bed

Posted by jsaved74 @jsaved74, Sep 11 6:33pm

My husband‘s probably in stage five Alzheimer’s. He just likes to lay around in the bed all day he’ll come out when I tell him let’s come out and eat or go somewhere but other than he lays around in bed is that something that happens in the later stages.

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Becky, Volunteer Mentor | @becsbuddy | 5 days ago
In reply to @memoriestomoments "@dlynng So glad to hear that this is something that resonates and that you intend to..." + (show)
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@dlynng So glad to hear that this is something that resonates and that you intend to do. It certainly is a big part of what I think led my husband to be very happy throughout his life with Alzheimer's. If it helps, I thought in terms of Exercise, Social Engagement, Performing Arts/Museums, Hobbies/Pleasant Inputs. We did not do all of them every day, but three per day was common. The last one is important because it includes the many less demanding but engaging activities. Things like:
- The background music ("cooking music" for while "we" prepared food, 'Start the day music", "Shaving and tooth-brushing music" , etc...). The music service Pandora was my best friend. Over time I set up various playlists so I could bring up the right emotional energy for every situation.
- Audiobooks we listened to together while drinking a cocktail or cocktail.
- Interesting and non-violent documentaries or tv shows.
- watching a slide show picture frame that my brother gave us full of family photos.

This approach ensured that I my life was filled with enjoyable things too, making the many demands of being the caregiver much easier to bear.

All the best. May you experience the same joyfulness we expereinced living with Alzheimer's.

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@memoriestomoments This was an amazing post! I’m not a caregiver at this time but i can see it in my future. Thank you, thank you for this wonderful post!

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memoriestomoments | @memoriestomoments | 4 days ago
In reply to @kjc48 "@memoriestomoments I think this post is incredible. The information you gave here is so valuable to..." + (show)
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@memoriestomoments I think this post is incredible. The information you gave here is so valuable to any stage of this. As it's a reminder of keeping them active and stimulated as long as we can. It reinforces those "memories to moments" you described in an earlier post when I first joined this site. When I think of Stage 5, I think of almost the end, yet you put in a very different light of someone who still has a long time to live and doing it happily.
Thank you for this post.
Best, Karla

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Dear @kjc48
Thank you for your always-supportive comments on this post and so many others. You are so right that these concepts apply throughout the stages. We even had light and beautiful times throughout the two months of hospice, during which he declined so surprisingly quickly.

Having read a number of your posts, you embody a positive, inquisitive and activist approach. I am sure that it will make both your and your husband's experiences so much better. But also, like me, you will feel great peace at the end: Not because a burden has been lifted from our shoulders but because we did everything we could do and it made such a difference.

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kjc48 | @kjc48 | 4 days ago
In reply to @memoriestomoments "Dear @kjc48 Thank you for your always-supportive comments on this post and so many others. You..." + (show)
Profile picture for memoriestomoments @memoriestomoments

Dear @kjc48
Thank you for your always-supportive comments on this post and so many others. You are so right that these concepts apply throughout the stages. We even had light and beautiful times throughout the two months of hospice, during which he declined so surprisingly quickly.

Having read a number of your posts, you embody a positive, inquisitive and activist approach. I am sure that it will make both your and your husband's experiences so much better. But also, like me, you will feel great peace at the end: Not because a burden has been lifted from our shoulders but because we did everything we could do and it made such a difference.

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@memoriestomoments I appreciate your note, and remember your post about hospice, I'm sorry your husband declined so quickly. I try to stay positive, but this year dealing with so many external pressures outside of the medical and his MCI has been a real pressure cooker for me - both emotionally and financially. Because of the financial part, it just keeps me in a place of fear where the worst part for me, is losing a partner who could help guide in decision making and put my fears to rest. The positive in all of this, is this too shall pass, and my husband still physically here with me. Something, as you know, we should never take for granted. Time isn't always on our side with this disease. Thanks, again for your support and extremely valuable posts.
Best, Karla

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missdottie | @missdottie | 1 hour ago

If anything, I'm learning to be more caring and patient with my husband who has MCI. I used to feel he was doing things 'on purpose' just to upset me. Now I know this is not true. All your suggestions are so positive and helpful; for example, I looked at an old picture album with my husband last weekend. He had forgotten who many of the people were in the photos and the location, but with a few prompts he remembered. It was a happy, rewarding experience for both of us.

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