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This is the $64,000 question. . .WHY NO MED FOR NEUROPATHY?
YES, Capitalized as others have asked this, trumpeted this question before. With: all the money out there, the blockbuster drug potential, Big Pharma money, et al. how can a drug not have been produced that blocks the pain, electrical charge and current, pins/needles effect of neuropathic pain and discomfort?? Something that targets this type of pain and nerve pathway. It's just INCONCEIVABLE. . . . No aspirin, no Advil, no prescription med except off- label Lyrica, Gabapentin, anti-depressants, etc.
SO, DOES ANYONE KNOW OF ANY MEDICATION IN THE OFFING, NEAR FUTURE??? Is anyone or anyplace working on this??? If for the massive amount of money to be made if nothing else? Do I ask too much?!
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@seathink how high b12 were you prescribed? My doctor cautioned me when my b12 was high on my blood test
@steveinarizona I'm looking into this. It's expensive. I don't know if you can take it as needed like a regular pain med.
I think, depending on your insurance, you may need to get a pre-authorization.
Some of the side effects don't sound very great but I'd be willing to try it.
@cecilyl there are coupons that can help finance Journavax, but they only help for a short time. Again this would be covering up the symptoms and not address root cause.
I wish I had an option to try some medication to cover up my symptoms to possibly have a chance of a normal life.
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1 Reaction@blowerk1216 Thank you!
My foot surgeon told me about these as well.
When it was first prescribed it was post op and an "unknown" with itchiness as a possible side effect.
The doctor didn't mention coupons or anything and with Good Rx it came to over $600.
Not sure if Medicare covers it; more investigating.
It won't address the cause which is SI joint pain. I don't want to take Vicodin bc of afraid of building up a tolerance. NO feeling of euphoria at all from it, opposite if anything.
I DON'T take it every day but it is very effective.
I do PT exercises for it as well; these help most of the time.
Now I'm using Lidocaine 5% pain patches and Tylenol Extra Strength.
Maybe Advil but have pancreatitis so I'm not sure if I should take that.
@megidigo I'm so sorry. I know my pain could be waaaay worse than it is but it's limiting at times,
It certainly isn't a mood booster.
There's some stigma I've found to having chronic pain as if people don't believe you or you're a wuss.
The John Wayne Syndrome.
Have you consulted a pain management doctor?
Depending what's the cause of your pain there are meds out there but they can come with side effects.
LDN-kind of experimental and more for autoimmune, long term covid.
A friend takes it for her tendinopathy. You have to build up the dose.
I'm looking into Journavax to see if I can use it as needed.
I looked into pain patches stronger than 5% Lidocaine (Rx needed) but the ones out there are for extreme pain/cancer.
Wishing you luck.
@cecilyl sorry I shouldnt have said that but was just lamenting out loud that there is no treatment for my symptoms. I am the opposite - Numbness but feels like my joints are tearing and collapsing at the same time but no pain but my feet feel wet and cold 24 hours (weird to describe) and they very well could be and Im not feeling the pain due to dead, dying nerves. I could stick a knife into my foot and not feel it. I hope Journavx helps you and gets you relief from pain. I was reading about it when I first heard of it (was hopeful it may have been an option) and supposedly it works quite well. I guess you and I are like fire and ice if we were super heros or villains?? I wish you good luck as no one should have to suffer from this condition whatever side of the symptom condition one is at. Funnily enough I was referred to a pain clinic…..
@megidigo That sounds very upsetting for you!!
NOTHING wrong with lamenting out loud; that's what this forum is for.
I wish I could offer some good advice.
Have you been to a neurologist?
The first thing that comes to mind is acupuncture.
A good one is really just that.
Even if we have pain we don't want, it's an important signal to have.
Did you have Covid back in the early days?
If so, could this be a "souvenir" from that?
I have been on Lyrica/pregabalin for several years. The pain was getting worse and the neurologist kept increasing the dosage until I reached 450 mg daily (he said that increasing to 600 mg daily is not going to help the pain). I still have quite a bit of pain: burning and muscle weakness. I also take 600 mg alpha lipoic acid daily. Has anyone experienced this? Either I developed tolerance to the Lyrica or my nerves just keep getting worse and the Lyrica is not effective anymore. I am 79 yo male.