This is the $64,000 question. . .WHY NO MED FOR NEUROPATHY?

Posted by highdesertdweller @highdesertdweller, 3 days ago

YES, Capitalized as others have asked this, trumpeted this question before. With: all the money out there, the blockbuster drug potential, Big Pharma money, et al. how can a drug not have been produced that blocks the pain, electrical charge and current, pins/needles effect of neuropathic pain and discomfort?? Something that targets this type of pain and nerve pathway. It's just INCONCEIVABLE. . . . No aspirin, no Advil, no prescription med except off- label Lyrica, Gabapentin, anti-depressants, etc.

SO, DOES ANYONE KNOW OF ANY MEDICATION IN THE OFFING, NEAR FUTURE??? Is anyone or anyplace working on this??? If for the massive amount of money to be made if nothing else? Do I ask too much?!

Interested in more discussions like this? Go to the Neuropathy Support Group.

@proteusx probably had some feedeback as well.

Well there is Winsantors drug that is for nerve regeneration not just getting rid of pain but getting rid of neuropathy itself. For some reason neuropathy patients (not all) seem to have no interest. Ive looked on facebook groups, reddit and here and Winsantor posts get barely any traction or numbers compared to repeated posts of have you tried this that cream, this supplement, elixer etc, while a company with real scientists, researchers behind it are saying “hey we have something hete that may regenerate nerves”. Their clinical studies have been published in The Lancet and can be found online so I do not understand. It was the one thing that gave me hope when first diagnosed but then I started to notice there doesnt seem to be interest but a post of vicks vaporub or essential oils will get multiple responses.

Western Neuropathy association had a meeting with their CEO last year for what its worth

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Profile picture for megidigo @megidigo

@proteusx probably had some feedeback as well.

Well there is Winsantors drug that is for nerve regeneration not just getting rid of pain but getting rid of neuropathy itself. For some reason neuropathy patients (not all) seem to have no interest. Ive looked on facebook groups, reddit and here and Winsantor posts get barely any traction or numbers compared to repeated posts of have you tried this that cream, this supplement, elixer etc, while a company with real scientists, researchers behind it are saying “hey we have something hete that may regenerate nerves”. Their clinical studies have been published in The Lancet and can be found online so I do not understand. It was the one thing that gave me hope when first diagnosed but then I started to notice there doesnt seem to be interest but a post of vicks vaporub or essential oils will get multiple responses.

Western Neuropathy association had a meeting with their CEO last year for what its worth

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@megidigo

Have you contacted the company abot getting in touch with a physician near you looking for research subjects?

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@highdesertdweller Perhaps it is because saying "neuropathy" is a little like saying "headache" - that is, there are many types and many root causes, most of the as yet not fully understood, so there is no single treatment.
There is a lot of research ongoing, but here are not enough people participating in human research on many diseases and conditions, this limits the ability of researchers to continue their work. Perhaps you can find and participate in a study or clinical trial to help advance the science and lead to a breakthrough.

Here is a place you can start:
https://neuropathyresource.com/neuropathy-clinical-trials/

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No med has been identified because the CAUSE of idiopathic peripheral neuropathy has not been determined. A cause cannot be treated when that cause is unknown. Yes, research needs to be done to identify the cause, but at this point it seems very illusive. It may have many causes, rather than just one. Very hard to identify something so nebulous. This would be a good research task for one of the nations billionaires.

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OK, thanks so much for the comments/answers so far. I will pursue those you have listed. YES, I have heard of Wintours. So, as you say, who not (more) followup. Crickets. Any of the site mentors, "elders" have any ideas why we don't hear more about it? I will check the sites and perhaps become a human subject as you mention. I may even call the CEO of Wintours. The Spinal Cord Stim is just not for me in my opinion. I haven't reacted well to things placed in my body in the past. Thanks. Caleb

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I wish that there was something that I could try to help with all of this, not just for me, but for everyone out there. I would sing up in a heartbeat to be a test subject. To be rid of the pain and to possibly regrow nerves would be a dream come true.

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Yes, listening to Mr. Kim.. .. He is right on! What he says is the truth.

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Profile picture for insanepain @insanepain

I wish that there was something that I could try to help with all of this, not just for me, but for everyone out there. I would sing up in a heartbeat to be a test subject. To be rid of the pain and to possibly regrow nerves would be a dream come true.

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@insanepain Someone put the link for joining up with a study if interested. . . .

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Profile picture for highdesertdweller @highdesertdweller

@insanepain Someone put the link for joining up with a study if interested. . . .

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@highdesertdweller

See what I mean. I put up Winsantor and it was mainly ignored even with two posts talking about how there is nothing. Thats allright but they could have explained why or why not Winsantor is crap?

Hete is the Lancet article
https://www.thelancet.com/journals/ebiom/article/PIIS2352-3964(25)00499-2/fulltext
You can copy and paste this text into google for a pdf from St Boniface Research article:
News Release
Jan 17, 2017 — The drugs drive nerve fibre regeneration and repair in disease states such as diabetes and chemotherapy where there is otherwise irreversible

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