1. < Neuropathy
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This is the $64,000 question. . .WHY NO MED FOR NEUROPATHY?

Posted by highdesertdweller @highdesertdweller, 5 days ago

YES, Capitalized as others have asked this, trumpeted this question before. With: all the money out there, the blockbuster drug potential, Big Pharma money, et al. how can a drug not have been produced that blocks the pain, electrical charge and current, pins/needles effect of neuropathic pain and discomfort?? Something that targets this type of pain and nerve pathway. It's just INCONCEIVABLE. . . . No aspirin, no Advil, no prescription med except off- label Lyrica, Gabapentin, anti-depressants, etc.

SO, DOES ANYONE KNOW OF ANY MEDICATION IN THE OFFING, NEAR FUTURE??? Is anyone or anyplace working on this??? If for the massive amount of money to be made if nothing else? Do I ask too much?!

Interested in more discussions like this? Go to the Neuropathy Support Group.

Profile picture for highdesertdweller
highdesertdweller | @highdesertdweller | 4 days ago

I had a side effect to Naltrexone. I was hoping for some help from it but couldn't tolerate this side effect.

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serenafix | @serenafix | 3 days ago

The last I heard from them, about two years ago, they were having trouble funding their phase 3 trial, they should be reaching out to the many billionaires in the world, surely there’s at least a couple who suffer from neuropathy too

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bb0753 | @bb0753 | 3 days ago
In reply to @megidigo "@proteusx probably had some feedeback as well. Well there is Winsantors drug that is for nerve..." + (show)
Profile picture for megidigo @megidigo

@proteusx probably had some feedeback as well.

Well there is Winsantors drug that is for nerve regeneration not just getting rid of pain but getting rid of neuropathy itself. For some reason neuropathy patients (not all) seem to have no interest. Ive looked on facebook groups, reddit and here and Winsantor posts get barely any traction or numbers compared to repeated posts of have you tried this that cream, this supplement, elixer etc, while a company with real scientists, researchers behind it are saying “hey we have something hete that may regenerate nerves”. Their clinical studies have been published in The Lancet and can be found online so I do not understand. It was the one thing that gave me hope when first diagnosed but then I started to notice there doesnt seem to be interest but a post of vicks vaporub or essential oils will get multiple responses.

Western Neuropathy association had a meeting with their CEO last year for what its worth

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@megidigo winsantor plans to make this available in coming months thru Montanas Expanded Right to Try.

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jpj1952 | @jpj1952 | 3 days ago

The Chronic Pain Team at Kaiser prescribed memantine for me, and it reduced the severe neuropathy in my legs by a whopping 80%—and that has continued for well over a year.
It’s an old drug used to treat Alzheimer’s disease, so it’s well known and inexpensive. I’ve had no side effects. You have to ramp up your dose over one month, and it took that long to be sure it was starting to help, and a total of 6 weeks to be sure.
It fills the same receptors as ketamine—I had to stop taking the little 25-mg ketamine “pills” that you melt under your tongue which I had been using PRN (as needed) for breakthrough pain. (No problem—-memantine worked 24/7 and didn’t make me “spacy” like ketamine did. )
In my Chronic Pain support group two other people tried it. One woman also got good pain relief; another didn’t, but I’m not sure how long she was on it.

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cleveland26 | @cleveland26 | 3 days ago
In reply to @jpj1952 "The Chronic Pain Team at Kaiser prescribed memantine for me, and it reduced the severe neuropathy..." + (show)
Profile picture for jpj1952 @jpj1952

The Chronic Pain Team at Kaiser prescribed memantine for me, and it reduced the severe neuropathy in my legs by a whopping 80%—and that has continued for well over a year.
It’s an old drug used to treat Alzheimer’s disease, so it’s well known and inexpensive. I’ve had no side effects. You have to ramp up your dose over one month, and it took that long to be sure it was starting to help, and a total of 6 weeks to be sure.
It fills the same receptors as ketamine—I had to stop taking the little 25-mg ketamine “pills” that you melt under your tongue which I had been using PRN (as needed) for breakthrough pain. (No problem—-memantine worked 24/7 and didn’t make me “spacy” like ketamine did. )
In my Chronic Pain support group two other people tried it. One woman also got good pain relief; another didn’t, but I’m not sure how long she was on it.

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@jpj1952, Thanks for that. Until you mentioned it, I had not heard or read of memantine.

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jojo2013 | @jojo2013 | 2 days ago

What about a solution for rebuilding the nervous system?

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jhumm | @jhumm | 2 days ago
In reply to @jojo2013 "What about a solution for rebuilding the nervous system?" + (show)
Profile picture for jojo2013 @jojo2013

What about a solution for rebuilding the nervous system?

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@jojo2013 Seems to me that would truly be the magic pill!

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bb0753 | @bb0753 | 2 days ago
In reply to @jojo2013 "What about a solution for rebuilding the nervous system?" + (show)
Profile picture for jojo2013 @jojo2013

What about a solution for rebuilding the nervous system?

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@jojo2013 google Winsantor drug for neuropathy.

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jamessaxo | @jamessaxo | 2 days ago

Nerves are coated with insulating myelin. That's made from cobalamin or vitamin B12. Many people poorly absorb B12 from food especially elderly because we have less acid.
Try taking B12 supplement daily. Alcohol stops it's absorbtion.

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