This is the $64,000 question. . .WHY NO MED FOR NEUROPATHY?

Posted by highdesertdweller @highdesertdweller, Sep 6 1:07pm

YES, Capitalized as others have asked this, trumpeted this question before. With: all the money out there, the blockbuster drug potential, Big Pharma money, et al. how can a drug not have been produced that blocks the pain, electrical charge and current, pins/needles effect of neuropathic pain and discomfort?? Something that targets this type of pain and nerve pathway. It's just INCONCEIVABLE. . . . No aspirin, no Advil, no prescription med except off- label Lyrica, Gabapentin, anti-depressants, etc.

SO, DOES ANYONE KNOW OF ANY MEDICATION IN THE OFFING, NEAR FUTURE??? Is anyone or anyplace working on this??? If for the massive amount of money to be made if nothing else? Do I ask too much?!

Interested in more discussions like this? Go to the Neuropathy Support Group.

Profile picture for jamessaxo @jamessaxo

Nerves are coated with insulating myelin. That's made from cobalamin or vitamin B12. Many people poorly absorb B12 from food especially elderly because we have less acid.
Try taking B12 supplement daily. Alcohol stops it's absorbtion.

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@jamessaxo yes!

I was prescribed high B12 from my neurologist, but she said to *not* take B6.
https://en.wikipedia.org/wiki/Megavitamin-B6_syndrome

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I want a vitB complex to help restore my neuropathy damaged nerves. I have looked at a lot being advertised but I would like the opinion of someone who has actually used them. I have neuropathy of my feet.

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Profile picture for bigjohnscho @bigjohnscho

I want a vitB complex to help restore my neuropathy damaged nerves. I have looked at a lot being advertised but I would like the opinion of someone who has actually used them. I have neuropathy of my feet.

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@bigjohnscho B12 ( cobalamin) coates nerves with insulating myelin. It's extracted from B12 rich food by our stomach acid. Trouble is, elders have less stomach acid and seldom eat B12 rich food. No wonder we get feet trouble. Buy a b12 supplement and eat horrible things like mussels and liver. Try chicken liver pattie. Sorry. but alcohol stops absorbtion.

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Profile picture for jamessaxo @jamessaxo

@bigjohnscho B12 ( cobalamin) coates nerves with insulating myelin. It's extracted from B12 rich food by our stomach acid. Trouble is, elders have less stomach acid and seldom eat B12 rich food. No wonder we get feet trouble. Buy a b12 supplement and eat horrible things like mussels and liver. Try chicken liver pattie. Sorry. but alcohol stops absorbtion.

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@jamessaxo
Be careful with B Complex supplements as B6 is a neurotoxin and can cause neuropathy. I read labels, (even the multivitamins) as it isn't recommended to take more than 3 mg of B6. Some foods, like nutritional yeast are high in B6.
I've read that B12 is better absorbed if you get the sublingual tablets.

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Profile picture for jamessaxo @jamessaxo

Nerves are coated with insulating myelin. That's made from cobalamin or vitamin B12. Many people poorly absorb B12 from food especially elderly because we have less acid.
Try taking B12 supplement daily. Alcohol stops it's absorbtion.

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@jamessaxo
It would be advisable to have the Vitamin B12 level checked before adding a B12 supplement.

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B12 is water soluble. Excessive intake harmlessly goes out in urine.

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Profile picture for highdesertdweller @highdesertdweller

So, Megidio, why do you think there is the lack of response? If people are opposed to Winsantor for some reason, why are they not saying so? I DID speak to Mr. Kim today and he is just asking for support and spreading the word. He did not ask me for any money or active involvement, just said to make sure I am receiving the newsletter, et al. AND AM GETTING THE WORD OUT ABOUT THE DISEASE. They are hoping for a response from Montana, either way, in the next couple of months.

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@highdesertdweller I read that winsantor and one other biotech company submitted the 1st 2 applications to Montana’s Experimental Treatment Review Board. The Board just this week approved the other application and it was approved for treatment of hearing loss. I am hopeful that the Board will soon approve the Winsantor application.

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Profile picture for bb0753 @bb0753

@highdesertdweller I read that winsantor and one other biotech company submitted the 1st 2 applications to Montana’s Experimental Treatment Review Board. The Board just this week approved the other application and it was approved for treatment of hearing loss. I am hopeful that the Board will soon approve the Winsantor application.

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@bb0753 Thanks! That is great to hear! Let us hope. I believe any start-up like this is a long shot, who knows, maybe 1%. As well, people differ tremendously, HOWEVER, if putting myself out there in Montana can push progress to solving/ameliorating this horrible disease, I shall donate myself for the science. Neurological conditions and numbers affected are just EXPLODING. Mr Kim does speak the truth in the video that is posted in this thread. He speaks to the issues that all of us are dealing with like no one else out there, so I would like to trust him going forward. That is my opinion. At least we are not discussing here the worth of the latest lotion, pill, or potion that will make some malefactor a millionaire. THIS thread is the nitty gritty, the crux and core of the matter. . . . .What are peoples' thoughts? Thanks! Caleb

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As some have said, " the cure can be worse than the disease". Side effects of some medications preclude people from use. Mental health meds perfect example.

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I’m always surprised that LDN-Low Dose Naltrexone Isn’t mentioned first on a thread like this. It definitely works for pain but not for numbness or stiffness.
I was on 400mg of Lyrica & now only 100 mg after 4 years.
Many doctors are still not familiar with it. It has to be compounded to proper dosage & it’s covered by insurance.
Learn more here:
https://ldnresearchtrust.org/ldn-

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