Connect
Bicuspid Aorta with 45% regurgitation and a non coronary prolapse
Just surprisingly diagnosed via heart MRI with a bicuspid aorta and a non coronary prolapse. My regurgitation rate is at 45%. I feel perfectly fine and am very active at 63. Please describe and give actual examples of what is meant by avoiding all strenuous activities. Must I avoid 4.0 pickleball competitions and/or bike rides that climb significant elevations? I truly welcome any feedback and advice. Told I have a problem and soonest any surgeon can speak to me is a month out.
Like
Helpful
HugInterested in more discussions like this? Go to the Heart & Blood Health Support Group.
Connect
Just on the face of it, and if you were indeed told/advised to desist from 'strenuous activities', I would say yes....stop them, or dial back both frequency and the level of intensity. Seems sensible, wouldn't you say? Yes, you're not symptomatic....that's great. Would you feel better continuing your exertions at the same level until you DO become symptomatic and your care becomes quite urgent as a result? And can you count on that happening at a most convenient time for you? I mean...................it WILL happen.........right? Just time and one pickle ball game too many, and you'll be in a world of hurt, hopefully at the best time otherwise. Or, you could listen to the caution, find something else that isn't quite so strenuous, and get the treatment that's needed so you don't end up in the ER.
In time, you may find that they've done a good-enough job, and you're sufficiently rehabilitated, that you can resume your pre-treatment life. Bonus!!
Me, I'd regretfully listen to my doctors, and hope that in time I will be back up 'n running.
-
Like -
Helpful -
Hug
1 ReactionIf the doctor did not get more specific, I would ask him to better explain what he means. And, what treatment options are there so you can get your life back to where it was. Education is our greatest weapon when it comes to fighting back, knowing what to do and don't do.
Joining the group was a good start, but don't stop here. Keep searching. dissect every phrase, sentence or word in your report - if you are the type. The internet is full of information - some not so good, some good and some really helpful. And write down questions to ask your doctor. If he/she doesn't want to answer them, then find another doctor if possible.
I was watching youtube videos, then decided I would search Facebook for my specialist and found one video of him talking about the dangers of my bad mitral valve if not treated.
Charlotte, thank you for your reply. Our frustration is the 3 week wait in between every finding. I plug all findings into Chat GPT and specify they may only use Mayo and Cleveland clinic databases. Our cardiologist can tell us nothing more except it is severe but you have no exercise restrictions and referred us to a valve surgeons practice and the soonest “consultation” with the 6+ surgeon practice is Oct 7. We have a LOT to learn in patience and medical …. that we are eager and up to.
@indyseppel I agree the wait is the worst. I started back in March to find out what is going on. I finally found out Aug 17th. Now waiting another month (month will be Sept 14) to see what the doctor proposes to do.
I am female, about ten years older than you. I also had a bicuspid aortic valve and severe stenosis. Apparently, these valve malformations are genetic. My surgeon told me that because it was bicuspid it could not be repaired; also, that this type of valve advances the development of stenosis ( narrowing) faster than a tricuspid valve. I had open heart surgery in April this year to replace my aortic valve with a bio valve. It took me 3.5 months to be 100%. Good luck on your journey ( and stay off the courts ).
https://www.heartvalvevoice.ca/en/patient-stories-collection/learning-the-hard-way-pam