Severe left ventricular hypertrophy

Posted by lstrhit @lstrhit, 2 days ago

History of sarcoidosis in lungs. Having shortness of breath and chest pain/pressure with mild exercise. Had Echocardiogram which shows moderate to severe left ventricular hypertrophy. Any treatment options for this condition?

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do a copy and paste of you condition then google it.. It will come up with the mayo site that explains it

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@lstrhit
You should asked your cardiologist and EP about how to treat your condition based on your specific condition.

You can use A.I. to get research sites that can give you research on this but you really need to be given treatment plans by your doctors. Only they know your full medical and mental health history, all the medications and supplements you are taking.

I do take medications for my heart failure. I take entresto and coreg. The stopped the reduction in my EF and has been steady for 10 years now at 22%. I also have a ICD/Pacemaker which helps my heart beat better electrically so you can see a person full medical and mental health history is crucial for finding the right treatments for you.

Get your doctors to give you treatment recommendations and then research them, then do your own, then asked every question you can think off

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Profile picture for charlotteeb @charlotteeb

do a copy and paste of you condition then google it.. It will come up with the mayo site that explains it

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Hello @charlotteeb,

I see you tried to share a link. While there is a temporary restriction on sharing links for newer members, please allow me to share the link for you: https://www.mayoclinic.org/diseases-conditions/left-ventricular-hypertrophy/diagnosis-treatment/drc-20374319.

@lstrhit, I'd also like to invite @charliemac and @cltotten1 who both discussed being diagnosed with left ventricular hypertrophy on Connect in the past and may be able to share how they are currently doing and what their experiences have been like living with this diagnosis.

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thanks I figured there were restrictions so just suggested googling to get to the link.

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Profile picture for jc76 @jc76

@lstrhit
You should asked your cardiologist and EP about how to treat your condition based on your specific condition.

You can use A.I. to get research sites that can give you research on this but you really need to be given treatment plans by your doctors. Only they know your full medical and mental health history, all the medications and supplements you are taking.

I do take medications for my heart failure. I take entresto and coreg. The stopped the reduction in my EF and has been steady for 10 years now at 22%. I also have a ICD/Pacemaker which helps my heart beat better electrically so you can see a person full medical and mental health history is crucial for finding the right treatments for you.

Get your doctors to give you treatment recommendations and then research them, then do your own, then asked every question you can think off

Jump to this post

@jc76 ..Thanks JC76 for your thoughtful comments and advice. The LVH is really kind of a shock to me since I have been dealing with the sarcoidosis so long with my lungs--didn't really think it had affected my heart, too. Read online that a person could reverse LVH with diet and exercise, but am leary in what I read online.. really hard to believe that but wished it was true. I'm glad that your providers have found a way for you to handle your heart failure with meds and surgery.
Were you ever afraid that exercising could cause more damage to your health and heart condition since it puts more stress on your heart? Thanks in advance for your thoughfulness.

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Profile picture for Justin McClanahan, Moderator @JustinMcClanahan

Hello @charlotteeb,

I see you tried to share a link. While there is a temporary restriction on sharing links for newer members, please allow me to share the link for you: https://www.mayoclinic.org/diseases-conditions/left-ventricular-hypertrophy/diagnosis-treatment/drc-20374319.

@lstrhit, I'd also like to invite @charliemac and @cltotten1 who both discussed being diagnosed with left ventricular hypertrophy on Connect in the past and may be able to share how they are currently doing and what their experiences have been like living with this diagnosis.

Jump to this post

@JustinMcClanahan...I had seen this article earlier, Justin, but thanks for sending it to me and the members who have this condition, also. Have a great day!

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Profile picture for lstrhit @lstrhit

@jc76 ..Thanks JC76 for your thoughtful comments and advice. The LVH is really kind of a shock to me since I have been dealing with the sarcoidosis so long with my lungs--didn't really think it had affected my heart, too. Read online that a person could reverse LVH with diet and exercise, but am leary in what I read online.. really hard to believe that but wished it was true. I'm glad that your providers have found a way for you to handle your heart failure with meds and surgery.
Were you ever afraid that exercising could cause more damage to your health and heart condition since it puts more stress on your heart? Thanks in advance for your thoughfulness.

Jump to this post

@lstrhit
Yes one of my first question was on exercising. My heart failure doctor said: "25 years ago we would have told you to go home and rest." "Now we want you to exercise for you body fitness and maintaining heart strength."

I asked about level and I was told you be the judge of what feels okay and what you can do without issues. So really other than no longer jogging was doing all that I wanted to do. I found jogging to much for me. It would require I breath through mouth to get sufficient air. But I also have an old herniated disk that really bothers me with any feet pounding.

I wound up doing fast walking when doing Sprint Triathlons. I found I could breathe in through my nose and out through mouths which tells me I am not overdoing it. When I finished the race I was not out of breath or breathing hard just wiped out.

My exercise regiment if I cannot breath in through my nose and take deep breath and do an long exhale through mouth I know too much for me and slow down.

I told my heart failure doctor about this and he was happy with my explanation of how I judge my exertion level.

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Sounds like you have your exercise routine figured out--good for you! Currently I can only walk around the block once and have to usually stop 2-3 times due to shortness of breath and chest pressure. Hopefully, one day, I can walk more.

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