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Post-treatment follow up for clear cell endometrial cancer
Just wondering how your oncologists are monitoring you for recurrence of an aggressive cancer . I am two+ years post treatment with surgery, chemo, radiation & brachytherapy. I had metastasis to local & distant lymph nodes during chemo so I’m deemed chemo resistant.
-How often do you see your oncologist?
-Do you get CT scans & if so how often?
Is there concern for radiation overload?
-Is anybody using liquid biopsies? A blood test seems like a great way to monitor for cancer cells but my oncologist is not a fan.
I’m always worried about recurrence, so your experiences might be helpful.
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I had a full hysterectomy (they took it ALL), carbo-pax chemo, external beam radiation, and brachytherapy. I was also in a Keytruda trial and still don’t know if I had the drug or placebo, but I was kicked out before my final chemo/trial infusion because I had metastasis to lymph nodes. So I am considered chemo resistant.
Side effects: bladder & bowel issues and lymphedema.
I have had pelvic therapy, lymphedema therapy, and PT.
Also, I still have check-ins with a social worker and therapist due to the emotional effects of the aggressive cancer diagnosis and fear of recurrence.
None of these side effects are unique and I know many women have it worse. But they are constant reminders of my story and my fears.
@vara Like @ffr I’ve never had an MRI for surveillance. I did have a PET/MRI when there was physical evidence for recurrence of endometrial cancer that was found during a clinical exam. I understand your concern about recurrence, mets, or another cancer. This has often been on my mind although less so in recent years. Have you discussed this with your oncologist?