Hood stoma stent

Posted by trach @trach, Apr 4 6:58am

Would like to connect with users of Hood stoma stent

Interested in more discussions like this? Go to the Ear, Nose & Throat (ENT) Support Group.

Profile picture for trach @trach

@lizzieqmention. I have fpund that drinking a lot if water helps. Guafenisin is a good product that will help with the mucus. I do have a lot of congestion. This in itself can be overbearing at times. Looks like you wear aa CS1122. It shouldn't be very difficult at all to insert or remove. Check with another Ottorhinolaryngologist and confirm it is the correct size.

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@trach I agree, drinking plenty of water definitely helps. I drink almost a gallon a day and still deal with a lot of mucus and congestion. It can be overwhelming at times! I actually wear an 11/24. It’s not usually difficult for me to insert or remove, but I do use a little jelly to help it slide in easier.

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Profile picture for thomason @thomason

@lizzieqmention, I forgot to say where I live, in Northeast Indiana. I can see the Ohio state line from the front yard. It is terribly hot and humid. The cats and our Chihuahua are laying around as if in a trance. They like fans, so that helps. You have me wanting to try the stent again. When I used it the first time, it was hard to get it placed in the opening. It was becoming something dreaded to remove and clean, knowing I would have to put it back in again. It actually brought tears... stinging tears. Maybe it is the wrong size? One thing is sure, a person learns something new every day! Thank you for getting me to rethink this device. Please let me know if it is painful when you have to remove, etc.

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Make sure your ENT has a substantial amount of experience with the Hood
stoma stent system. The laryngologist that put mine in originally, retired
apprx.10 years ago. An ENT (with 34 yrs experience in his field) told me at
my last visit this past January that he had never seen a Hood Stoma Stent.
So there are not that many people that share our handicap. I am told there
are less than one person in a million that shares my particular condition.

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Profile picture for trach @trach

Make sure your ENT has a substantial amount of experience with the Hood
stoma stent system. The laryngologist that put mine in originally, retired
apprx.10 years ago. An ENT (with 34 yrs experience in his field) told me at
my last visit this past January that he had never seen a Hood Stoma Stent.
So there are not that many people that share our handicap. I am told there
are less than one person in a million that shares my particular condition.

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@trach I’ve been in the tracheostomy world for 48 years and have had the same doctor since I was 12 years old. She retired about a year ago, but I stayed within the same practice. The new doctor was trained by her, so thankfully, I feel very comfortable with my care in that area.

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Profile picture for thomason @thomason

@lizzieqmention, I forgot to say where I live, in Northeast Indiana. I can see the Ohio state line from the front yard. It is terribly hot and humid. The cats and our Chihuahua are laying around as if in a trance. They like fans, so that helps. You have me wanting to try the stent again. When I used it the first time, it was hard to get it placed in the opening. It was becoming something dreaded to remove and clean, knowing I would have to put it back in again. It actually brought tears... stinging tears. Maybe it is the wrong size? One thing is sure, a person learns something new every day! Thank you for getting me to rethink this device. Please let me know if it is painful when you have to remove, etc.

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Do you live near Ft. Wayne?

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Profile picture for lizzieqmention @lizzieqmention

@thomason I completely understand! For me, it’s never sore when I take it out or put it back in, unless I have a cold and the area is already tender. I would describe it more as uncomfortable than painful. When I put mine in, I use a little jelly to help it slide in easier, and I lay down first so my neck muscles are relaxed. It makes a big difference for me. I definitely think the size could make a difference too. And yes, you really do learn something new every day!

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I generally run mine under water and place one flange in at a time. If it
causes much pain there is something wrong. Incorrect size? Infection? I
would really contact another ENT who us expetienced with Hood stoma stents.

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Profile picture for lizzieqmention @lizzieqmention

@trach Wow, 1993—that’s a long time! How were you able to speak directly with the CFO of Hood Labs? I’d love to know how you reached them

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LikI said, they have been excellant to work with. I called them about a
year ago and spoke with him.

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Profile picture for lizzieqmention @lizzieqmention

@trach I agree, drinking plenty of water definitely helps. I drink almost a gallon a day and still deal with a lot of mucus and congestion. It can be overwhelming at times! I actually wear an 11/24. It’s not usually difficult for me to insert or remove, but I do use a little jelly to help it slide in easier.

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In the 33 years I have had it I only experienced one episode where it came
out. I had a terrible cough with excessive drainage. It popped out just
like a cork.

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Profile picture for lizzieqmention @lizzieqmention

@trach I’ve been in the tracheostomy world for 48 years and have had the same doctor since I was 12 years old. She retired about a year ago, but I stayed within the same practice. The new doctor was trained by her, so thankfully, I feel very comfortable with my care in that area.

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Great. I made an appt. last April with the #1 rated laryngologist jn
Indiana ( a four month wait time). The day of the appt. last month we
recieved 5 inches of rain couldn't make it so had to cancel. In the interim
( last July) I went to Arizona for a week. Didn't have to take any meds. It
got to112 but was much more bearable than Indiana. Hope to relocate soon.

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Profile picture for lizzieqmention @lizzieqmention

@trach I’ve been in the tracheostomy world for 48 years and have had the same doctor since I was 12 years old. She retired about a year ago, but I stayed within the same practice. The new doctor was trained by her, so thankfully, I feel very comfortable with my care in that area.

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Had my first tracheostomy at birth. Still have the original tube.

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Profile picture for trach @trach

In the 33 years I have had it I only experienced one episode where it came
out. I had a terrible cough with excessive drainage. It popped out just
like a cork.

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@trach I can relate! That’s has happened a few times. Lol

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