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Lupus affects the lungs
Can anyone tell me how their lupus has affected their lungs? I have unexplained nodules on my lungs with cough and my lymph nodes are inflamed. Still going through diagnosis of lupus with a skin biopsy showing lupus and rash on face. Because ANA was negative they said it was normal. I am seeing more Dr's and also did my research ( mayo) and told them a negative doesn't mean I do not have lupus. Also have many symptoms hair loss, sores in nose, joint pain, kidney inflammation and stones, nausea, low grade fevers, cold feet and hands, dry mouth and eyes ect. I have several autommune diseases all ready so hopefully I will get some answers.
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I have many of the same symptoms
and problems you have.
I have RA and Sjogren’s Disease which are responsible for my lung involvement, but rheumatologist is also considering lupus.
Don’t think it matters much which diagnosis they use, the treatment seems much the same.
Sjogren’s is apparently responsible for most of my many problems.
There’s a great online site called Smart Patients where I’ve learned most of my information.
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2 ReactionsI'm so sorry to hear about your symptoms. Did you find the reason behind the nodules on your lungs? Does anyone else have insight into how lupus (especially when having a prolonged flare), Hypothyroidism, and Sjögren's may affect lung nodules / masses?
@caregiver94 No the Doctors have dismissed it. The skin biopsy I had showed another autommune disease but the Dermatologist now is blaming it on a med reaction the only thing is I don't take any of the meds that can cause it. My PA doctor has left he moved his family to New Zealand but at my last visit he agreed I need to come back to Mayo. He told me I need quality care and unfortunately I would not get there. Have been in touch with Mayo and working on going back.
@dmmeyers62 I hope that you're able to get back to Mayo. Did your lung nodules simply go away? My family member has several lung nodules that are being investigated to see if they are malignant.
@caregiver94 No I still have them. The doctor's just are ignoring it. It seems that the main stream doctors can't figure it out so they just ignore it. Thank God for Mayo I went to them before because main stream doctors missed diagnosis so many things and they were able to figure it out. I am so disappointed in our health care system. Good luck to your family member.