Treatments for Osteoporosis

Posted by loadedwithlead1 @loadedwithlead1, Aug 9 11:19am

I recently saw an endocrinologist. He said
There are 2 treatments for osteoporosis, Fosamax and
Reclast. Which do you want? He pointed to a door and said That is the way to the infusion room. It is convenient.
He also inquired into the status of recent dental work. That concluded the meetimg. I have since wondered whether this was normal. I am aware that there are many more treaatments for osteoporosis. Should I go ahead? Or pause?

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Profile picture for boneoptimist @boneoptimist

@gravity3 , thanks Gravity! 11 months on Tymlos (plus the nutrition, exercise, supplements changes) got me from -2.2 total spine to -1.5. I know femoral neck is the slowest/hardest area to change and it wasn't moving much, so i started new leg stomping exercises about 5 months ago. Femoral neck went from -2.6 and -2.7 to -2.4 a few days ago. On Tymlos, my worst part of the spine, L-4 went from -3.3 to -1.8.
I feel like i have a part time job doing the exercise, nutrition and becoming educated about the condition, but I am blessed to be able to do so. My bones at 62 were at the level of an 80 year old, and I was very scared. If only I was educated about this in my 40's when i was diagnosed with osteopenia, and the Dr just shrugged and said, "Yeah, that will happen as you age...." I plan to stay on Tymlos for the full 2 years, and try like heck to get back to normal bone density in that time. That's why I'll keep trying to get the level up to 6 clicks or higher. We'll see! Are you on Tymlos too?

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@boneoptimist

No tymlos but I did take alendronate, forteo, evenity and Prolia in my long and confusing/frustrating "career" of osteoporosis.....it is like another job.
So glad you are doing so well.

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Profile picture for gravity3 @gravity3

@boneoptimist

No tymlos but I did take alendronate, forteo, evenity and Prolia in my long and confusing/frustrating "career" of osteoporosis.....it is like another job.
So glad you are doing so well.

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@gravity3 Wow, that's a lot of drugs! which one gave you the best results? Worst side effects?

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Profile picture for boneoptimist @boneoptimist

@gravity3 Wow, that's a lot of drugs! which one gave you the best results? Worst side effects?

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@boneoptimist

I've been on this path quite awhile. No noticeable side effects from from any. Best results for me Evenity.

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71% bone loss noted and expected post kidney transplant taking immunosuppressant anti rejection meds.
Just finished 3rd annual Reclast calcium infusion this week. This paused. Reclast no problems. Does show it held no more bone loss from 1st annual to 2nd annual w bone scans yearly before next scheduled.
Drink lots water night before and adter but have to w a kidney transplant 3L a day. no problems w Reclast. Accepted with kidney transplant meds etc.

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My doctor feels I may need Prolia but I am waiting for next dexa scan in 2028

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Profile picture for kendick @kendick

My doctor feels I may need Prolia but I am waiting for next dexa scan in 2028

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@kendick

Why Prolia? Have you taken other drugs? Mind me asking what your dexa scores are.
You have lots of time to do your own research on various drugs and sequencing... which is quite important.

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Profile picture for gravity3 @gravity3

@kendick

Why Prolia? Have you taken other drugs? Mind me asking what your dexa scores are.
You have lots of time to do your own research on various drugs and sequencing... which is quite important.

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@gravity3
I was on Fozamax for 4 years

My scores were: spine T-score 0.5
Hips: t-score -1.5[bmd of right femoral neck measures 0.825g/cm2
I really don’t understand these #s

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Profile picture for kendick @kendick

@gravity3
I was on Fozamax for 4 years

My scores were: spine T-score 0.5
Hips: t-score -1.5[bmd of right femoral neck measures 0.825g/cm2
I really don’t understand these #s

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@kendick it means you don't have osteoporosis.

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I had a DEX scan with the results being -1.3 and -1.7. However, my spine doctor at the Mayo Clinic said I have osteoporosis. He uses a.HOUN score that you get from a CT scan. That showed what I was at 77 and I should be over 100. I’m now on Evenity and have two more treatments to finish my year. Next month, I will have another CT scan to see if it’s improved enough to have my fusion surgery.

I was surprised that how many doctors had never heard of the HOUN score. I was certain I had osteopenia and was so surprised to find out I had osteoporosis.

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Profile picture for jackiec2 @jackiec2

I had a DEX scan with the results being -1.3 and -1.7. However, my spine doctor at the Mayo Clinic said I have osteoporosis. He uses a.HOUN score that you get from a CT scan. That showed what I was at 77 and I should be over 100. I’m now on Evenity and have two more treatments to finish my year. Next month, I will have another CT scan to see if it’s improved enough to have my fusion surgery.

I was surprised that how many doctors had never heard of the HOUN score. I was certain I had osteopenia and was so surprised to find out I had osteoporosis.

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@jackiec2

Thank you for this information about the HOUN testing. I found a piece of clinical research and I am posting it below. Makes me wonder why dexa is still considered the "gold standard"

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