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Experience with National Jewish Health?

Posted by britchic @britchic, Aug 14 5:16am

Has anyone been to national jewish health that can share there experiences? My dr is recommending a visit to them but I live in wa state so would be quite a journey. I’ve been dealing with mac for 4 plus years. Taking azithromyacin and ethambutol. Couldn’t tolerate the big 3. Also on clophazamine and nebulizer and airway clearance 2 times day. I’m not really sure what else can be done but would love any input.

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tconz | @tconz | 4 days ago
In reply to @Cathln "@tconz I'm afraid to fly too. I am on oxygen now since COVID and flu, I..." + (show)
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@tconz I'm afraid to fly too. I am on oxygen now since COVID and flu, I always used it to fly there, with oxygen, but I am not sure it'll be enough. I didn't get my dates yet, but I imagine it'll be the dead of winter!
My Dr. really wants me to go. I am not young, not in great shape, and my lungs aren't good. Driving in winter just won't work either.
Had my initial call today, as I haven't been there in 4 yrs. Still a patient, but went through an hour phone call. That's ok. Just wonder what they can help me with at my age, when no one here can help me.
Best of luck to you!

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@Cathln I have never used oxygen but between the elevation and cold weather I endured last time when my lung collapsed makes me nervous to fly. However, I will fly if NJH and my local Pulmonologist think it is alright. I go back to NJH in early November so I will monitor the weather for sure. I live in Florida so to drive there would be tough.
I really hope you can make the trip because as you already know NJH is the best.

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sarahlynn1960 | @sarahlynn1960 | 4 days ago

I’m going back to Njh in Sept for my second appt. I was impressed by everyone there last time!! I had 2 different doctors who had been the subject of single negative comments on this forum, and I found both of them to be excellent! People react to doctors differently depending on their own personal needs and opinions.
My primary doctor there was “my type of doctor”: friendly and nice, but more importantly thorough and answered ALL of my questions. He was not in a hurry.
I also loved the gastro doctor I saw. Also friendly and very inquisitive when I answered his questions, and would follow up with more questions. He too was not in a hurry either, and spent time until we had covered everything. Plus he had a great sense of humor, which I appreciated!
So my point is that doctors and patients have all sorts of different personalities, so I would just go with an open mind.

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hicopd | @hicopd | 2 days ago

I’ve also had very positive experiences at NJH—I was a patient there 2000-2016. Good luck!

There are a number of excellent Bronch/NTM care centers. Maybe you may wish to consider one closer to where you live, particularly one not at altitude?
https://ntminfo.org/care-center/

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