Livedoid vasculopathy

I found my trigger in 2024 = Nuts and seeds and their oils.
I ate crunchy granola full of nuts and seeds for breakfast 5 days in a row with yoghurt and WHAM.
Red spots appeared over night and they turned into ulcers that took a long time to heal, even with hospital clinic care and everything I had learnt from previous episodes.
Since that event I have not eaten any nuts, seeds, beans and their oils.
In the last two months I have stopped wearing compression stockings as my legs are no longer swelling.
I do lots of feet reflex, toe crunching and heel/toe exercises to keep the blood flowing in the lower legs. I think that helps a lot, along with he diet change.
It's worth a try
Ruth

@ruthnz Could you specifically mention which foods to avoid and your main care procedures?

@jiangxvhua Everyone is different so diff foods affect people differently. You have to find your own triggers but there are some that affect lots of people. When you cut a food out of your diet you need to do it strictly for at least a month before very slowly (once a week) introducing it back into what you eat. If you slip up, you have to start counting again, it's like petrol on a fire if you eat it by accident.
The most common are - Gluten affects lots of people. Deadly Nightshade family - potato, tomato, peppers, eggplant. Nuts, seeds and their oils including corn, peas, beans, chickpeas, soy etc - all seeds.

When I have ulcers my main care procedure is cleaning the ulcer/s every day and putting a new dressing. Then compression stocking or tubifast.
There's a facebook page https://www.facebook.com/profile.php where I show all the products I have used over the years for leg ulcers

I was diagosed with lv - my right ankle, both sides, about 5 years ago. I was healed several times but it came back. I have been to 1. vascular surgeon (2 of them) 2. wound care center 3. dermatologist. I've come full circle back to my dermatologist at the advice of the wound care center. I look forward to sharing thoughts and to learning more about this condition. My wound care doctor said it was "genetic." I don't get that as no one in my family has ever had it. The last time I visited my dermatologist he referred me to Mayo or the Cleveland Clinic. No criticisms of the latter, but the receptionist checked the conditions they treated and told me she had never heard of lv.!!!! My handle for this blog is: sallyankle

I just noted that these entries are from 2012. Are you folks still around?

Welcome to Mayo Clinic Connect @sallyankle. While the original discussion was posted back in 2012, there are more recent entries this past year from members, @victorarrow @ruthnz @jiangxvhua @bodznick @iamom and others.

So I’m glad you joined into the conversation to share your experiences with Livedoid vasculopathy. It seems to come and go for you. Are you in remission now?