Anyone explored BTK inhibitors for anti-MAG, CIPD, neuropathy?

Posted by laporta @laporta, 10 hours ago

Has anyone with anti-Mag, CIPD, or peripheral neuropathy explored the use of BTK inhibitors -- as either an alternative to or as a compliment to Rituximab, especially with regard to numbness and weakness in the feet and ankles? Thanks.

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Colleen Young, Connect Director | @colleenyoung | 9 hours ago

@laporta, I expanded your title and added the discussion to the neuropathy group as well. @wcooke @fsr and @dervish may have some experiences to share.

laporta | @laporta | 8 hours ago

In reply to @colleenyoung "@laporta, I expanded your title and added the discussion to the neuropathy group as well. @wcooke..." + (show)

@colleenyoung Very much appreciated. I tried to send the question to both groups, but realized that I could only choose one or the other. So, thank you!

GG | @dervish | 8 hours ago

Will send you a message. Have been on a BTK for several years for Anti-MAG.

Colleen Young, Connect Director | @colleenyoung | 7 hours ago

In reply to @dervish "Will send you a message. Have been on a BTK for several years for Anti-MAG." + (show)

@dervish, please post here in the discussion so many can learn from your experience.

sonjakay | @sonjakay | 7 hours ago

Finally diagnosed with celiac disease. Mayo Clinic discovered the Gene causing the condition. Gluten-free for 6 years. Addressed stomach issues and intolerances. Watching and recording daily blood pressure and pulse. Afib has reduced.