1. < Hypertrophic Cardiomyopathy (HCM)
Profile picture for jules21

Weight gain

Posted by jules21 @jules21, 1 day ago

Prior to starting CAMZYOS my regular cardiologist had me on a fairly high dose of metoprolol going from 25 mg to 50 mg finally to 100 mg a day and I gained 25 pounds… I was told it was because of less strain on my heart and slowing down also slowed down my metabolism. After camzyos 3 years ago they decreased my Metropol to 25 mg at night, but I have never lost any of the weight I gained. My HCM Center does not allow me to do any exercise that increases my heart rate so only cheer exercises and slow walking are allowed as well as diet or portion control none of which seem to work… I was fairly asymptomatic with the HOCM except for shortness of breath going upstairs. I also have asthma which exacerbates the shortness of breath at times not sure there is anything I can do about that weight gain but it is rather frustrating.

Interested in more discussions like this? Go to the Hypertrophic Cardiomyopathy (HCM) Support Group.

Profile picture for jules21
jules21 | @jules21 | 1 day ago

Of course I meant chair exercises

REPLY
Profile picture for Puppeteer
Puppeteer | @puppeteer | 20 hours ago

The elephant in the room, that no one wants to talk about, is: how can a person know whether they have a long t ime to live, or maybe just a year? I was diagnosed 4 yrs ago and had a septal oblation done at the same time. Up till then I had no idea I had a heart problem. Over the past two weeks I have experienced angina most of the time. This is especially bad at night when I am supposed to sleep. I am the type of person that likes to face problems head on, and not bury them and hope that they will go away.

REPLY
1 reply
Profile picture for Debra, Volunteer Mentor
Mentor
Debra, Volunteer Mentor | @karukgirl | 13 hours ago
In reply to @puppeteer "The elephant in the room, that no one wants to talk about, is: how can a..." + (show)
Profile picture for Puppeteer @puppeteer

The elephant in the room, that no one wants to talk about, is: how can a person know whether they have a long t ime to live, or maybe just a year? I was diagnosed 4 yrs ago and had a septal oblation done at the same time. Up till then I had no idea I had a heart problem. Over the past two weeks I have experienced angina most of the time. This is especially bad at night when I am supposed to sleep. I am the type of person that likes to face problems head on, and not bury them and hope that they will go away.

Jump to this post

Hello there @puppeteer, and welcome to Mayo Clinic Connect.

You ask an age-old eternal question that no person can know...how long do I have to live.
I believe only God may know that. We can only guess, wonder, ponder, angst about.

You have had what I think is a septal ablation? The alcohol induced, controlled destruction of the heart septum for hypertrophic cardiomyopathy, correct?

If over the past two weeks you are experiencing what you believe is angina, I would strongly advise you to make an appointment as soon as possible with your cardiologist.

If you are the "type of person that likes to face problems head on and not bury them and hope that they will go away" as you say you are, then most likely you will want to bring this new symptom to your doctor right away! It's best to let a medical expert who is trained in the treatment of HCM in a patient who has had a alcohol ablation.
Make that appointment today! That's facing a problem head on and doing something about it.

Have you noticed any other symptoms besides the self-described angina? Such as shortness of breath, fatigue, dizziness? Keep a note book with this information and make that appointment right away.

REPLY
Please sign in or register to post a reply.