Anyone living with Essential Thrombocythemia with JAK2?

Posted by lindamarie63 @lindamarie63, Dec 3, 2024

Has anyone been living with,ET, jac2 mutation

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I have a question: can GLP-1’s help with platelet reduction, or help with ET symptoms in any other way? Anyone have experience with this?

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I am happy to say my platelets are 400, with highest 565 a few years ago. ETJAK2 since 2023, currently HU 500mg Mon-Fri. My spine is badly "stenonis-afide" and I am sure that is the reason for my numb feet. My hemo says that people on my "low" dose of HU usually do not have any side effects (propaganda perhaps). Since I am 79, I think it is impossible to say what is causing what. I am sure ageing, and banging my body around, in sports and adventures as a young person have not helped.

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