My Parkinson's life is so confusing - this is not easy.

Posted by johnnyvsn @johnnyvsn, Oct 27, 2024

I was officially diagnosed with Parkinson's May of 2019. I have been taking Rytary since diagnosis and can say it really does help me feel "normal", but just for windows of time. Sometimes the windows lasts a very short time, sometimes longer. I am not as sharp minded as I used to be. I just don't understand how my body can feel so bad a lot of the time, then feel normal at other times. Does anyone else struggle with accepting this as just the normal life of a Parkinson's sufferer?

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Profile picture for sdcz @sdcz

@kar907 Interested to read that you feel nauseated constantly. For me, it comes in waves and I have not been able to recognize any pattern. Anyone else re nausea?

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@sdcz I get occasional nausea - no pattern to it, just out of the blue - I have been on carbio/levodopa for several years. so it isn't a response to a new or even increased dosage of the meds.

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I was diagnosed with Parkinson’s Disease around. 11 years ago. It had started where I had short periods, where, for some reason, I just felt bad! I couldn’t pinpoint what exactly, or why, that was happening to me! Over the years, times when I just feel bad, are now much longer! Fatigue, and feeling listless at times, is more frequently bothering me! I do have other ailments that could cause fatigue, so I don’t think that I can blame all of my no energy, listless, symptoms, on Parkinson’s Disease!

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