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Anyone had immunotherapy for HPV positive tongue cancer?
Has any one tried Immunotherapy? My husband had 13 sessions of radiation and developed a severe breathing issue, he can no longer lie down. so treatments have stopped. Scans showed his diaphragm became elevated. Immunotherapy is his last hope. If anyone one has tried this protocol please let me know how you are doing. Thanks!
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If you search Google Scholar, you may find some answers. The research appears to suggest that it effective at prolonging life with less toxicity. If this is your husband's first round with cancer, it may prove to be effective as the survival rate is high. Unfortunately, science hasn't caught up with our needs, so our options are limited. Good luck.
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1 ReactionI've been on Libtayo immunotherapy every 3 weeks for 2 years and now seems that all my cancer cells are gone! I tolerated it very well with almost no side effects.
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4 Reactions@louisejewell Thank you so much for that information! That will be our next mountain on our journey.
@louisejewell Thank you for sharing your experience. My husband is meeting with a dr this week to discuss immunotherapy. I’ll ask about that treatment. Best of luck in your treatment!
@madlydancing, how did the meeting with the oncologist go? Is immunotherapy an option for your husband?
@colleenyoung sorry so late on my reply, I need to get the information from the surgeon and the oncologist.
The surgeon felt that surgery was his best curable action to take. When my husband heard that he would have to cut the left side of the back of his tongue, remove tonsils and take out all the lymph nodes on the left side than use tissue from his arm to reconstruct his neck, he came a quit the shock. The surgeon could not guarantee he would be able to swallow again and his speech would most likely occur, my husband said no. When we talked with the oncologist he agreed with the surgeon, but will do anything my husband wants to do. But he said he wanted to make it clear that he has only a 50% of curing the cancer. The will monitor as he goes with scans and bloodwork to see if the immunotherapy and chemo is shrinking the cancer.
Question to you, I don’t know if this is the forum for how the love ones of head and neck cancer patient are coping. I’m pretty much losing my mind. If this is not the forum for this type of discussion, can you direct me to a place I can share my experience. I’m hoping to get some support. Thanks Randi