anyone dealing with Brachioradial Pruritus

Posted by justmiserable @justmiserable, Sep 13, 2023

I have been dealing with this most of my adult life and it's finally got aggressive effecting my sleep and health in general. My neurologist has been treating me for the past 3 or 4 years. I have just terrible itchy skin on my arms, back, and head that drives me nuts. The neurologist says it's the nerves in my neck that cause this and I have been getting nerve block in the neck for 2 years now. Finally they quit working (shots) so they have stopped giving me to them. I can find no relief accept ice and I just have terrible nights no sleep. Has anyone dealing with this. Find any type of Dr that has new ideas.

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I see your post is from 2023 are u still experiencing this? Im at my witts end with itching burning in my arms from this and need help 😢

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Have you considered traction? The root cause for many of us is neck compression, usually from poor posture. The vertebrae (bones) compress pinching the gel discs between the vertebrae. The disc bulges out making contact with the brachial nerves. This touch sends an abnormal message back to the brain that it interprets as itching or in some people pain.
Traction decompresses the vertebrae allowing the disc to pull back from the brachial nerve. That ends the itching.

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Profile picture for tracycorrado @tracycorrado

I see your post is from 2023 are u still experiencing this? Im at my witts end with itching burning in my arms from this and need help 😢

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@tracycorrado if you’d like some help with traction, I can teach you some exercises I’ve learned. Nowadays, I just do them daily to stay in front of the itch or use them when I feel itch coming on.

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Profile picture for tracycorrado @tracycorrado

I see your post is from 2023 are u still experiencing this? Im at my witts end with itching burning in my arms from this and need help 😢

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@tracycorrado It sounds like you could have an over reactive mast cell system. Have you done any research on Mast Cell Activation Syndrome MCAS. I will tell you many doctors do not know a lot about MCAS but it is finally being recognized as a disease. There is no one simple diagnostic test for discovery but there are multimodal treatments that do help with mast cell stabilization and the symptoms an overactive mast cell system can cause. I have been referred to a GI doctor who is also on the side of research and discovery for the complex disease. I have attached a very resent article on the subject of which is a co-author and a link to a website I find very useful.
https://www.geneticlifehacks.com/mast-cells/

Shared files

Progress-In-MCAS-Weinstock-et-al (Progress-In-MCAS-Weinstock-et-al.pdf)

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Profile picture for mimiz @mimiz

@tracycorrado It sounds like you could have an over reactive mast cell system. Have you done any research on Mast Cell Activation Syndrome MCAS. I will tell you many doctors do not know a lot about MCAS but it is finally being recognized as a disease. There is no one simple diagnostic test for discovery but there are multimodal treatments that do help with mast cell stabilization and the symptoms an overactive mast cell system can cause. I have been referred to a GI doctor who is also on the side of research and discovery for the complex disease. I have attached a very resent article on the subject of which is a co-author and a link to a website I find very useful.
https://www.geneticlifehacks.com/mast-cells/

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@mimiz wow thats very detailed. But I dont really have any other problems besides the itching burninv in my forearms only.

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Profile picture for restisaweapon @restisaweapon

@tracycorrado if you’d like some help with traction, I can teach you some exercises I’ve learned. Nowadays, I just do them daily to stay in front of the itch or use them when I feel itch coming on.

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@restisaweapon I just googled it. Sounds like something I need to try. Thanks

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My wife has been dealing with BRP for a good 20 plus years. She has tried everything. Acupuncture, light waves all types of medication. Nothing worked. She went to a neurologist and he did not believe her problem. Said he never heard of it and wrote q nasty letter to the Dermatologist. The Dermatologist is well known, lectures etc.
We did a little research and she came up with a cream called Capsaicin HP. The HP is is important cause that is a stronger version. She uses that and then uses EBANEL NUMB520. That is a numbing cream she puts on top of the Capsaicin. The C causes a burning sensation when applied. The EBANEL is only available on Amazon. The C is available in some places not all. WALMART has it. She used it, mentioned to her Dermatologist and he said if it works for you use it. It gives temporary relief. No longer go to the Dermatologist. Save a lot of money as he no longer took Insurance. Plus he was in NY and we were in NJ. Anyway it works for her, but like I said relief is temporary. At least she can sleep at night.

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I suggest getting a PATCH TEST for a nickel allergy to rule out Systemic Nickel Allergy Syndrome (SNAS) now becoming quite prevalent in the US but well ahead of us in European countries. The allergy can be somewhat controlled with a low nickel diet as the nickel comes from the food and even the water we drink. It often manifests itself as itching, skin rash or other issues. I've noticed continued issues related to it since 1994 and am only recently seeing it mentioned in research. Sadly, doctors in the US haven't had much experience with it although it is on the rise due to our over processed food.

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