Any non fracture members?

@sadtonight123

Hello! I have been on the brand name Atelvia 35 mg, weekly, for 10+ years with a one-year drug holiday after 5 years. It doesn't roll back my osteoporosis. It does make me "stable" according to my specialist, who has retired.

Note that with it, and especially the generic version, you need to drink a lot of water with it -- 1-2 full glasses,. or it can be harsh on your gut I warm the water to make it go down easier.

@gently so true. Why we wait so long when we know bone loss starts at 30ish and ramps up at menopause is beyond my comprehension. As I've posted before we have screening colonoscopies, mammograms starting at 40, regular cholesterol screenings, 6-month dental checkups but we ignore osteoporosis when we KNOW medically bone loss begins around 30 AND a Dexa is a cheap and easy way to identify bone loss. Wow. Since roughly 75% of women over 65 have some form of poor bone health wouldn't you think??

@jozer interesting. my doctors usually ask me where I want to go, just like what pharmacy you want to have prescriptions sent to. Can't you just ask him for referral to another center?

In response to the question of rudysmom, I am 73, and was diagnosed with osteoporosis when I was 51 years old. Thankfully, I have not fractured. I started on alendronate from 2004-2010, went drug holiday from 2010-2019, then back to alendronate from 2019 to early 2025. None of my doctors were tracking, and I did not know any better about limits on the use of alendronate until last year. My doctor put me on Tymlos in June 2025 with the most horrible side effects which I have previously written about. Stopped Tymlos in October 2025, then doctor put me back on half-a-dose of alendronate in November 2025. I decided to stop six weeks later and have no plans for returning to any osteoporosis medications (or that doctor). I have "used up" the allowed time for antiresorptives (alendronate); I will never try Tymlos again or Forteo for that matter; I can't take Evenity or any medication that increases my risk for vascular disease because of a strong family history on having this disease; and my oncologist would not allow me to go on HRT because I had breast cancer in 2000. Because there are currently no viable options for me in the long-term, I have chosen not to go on Prolia. I am managing my osteoporosis through improved nutrition, supplements, and Onero. In May 2026, my CTX score was 241 and my P1NP was 35.4---both very positive outcomes. Although my most recent DEXA scan shows severe osteoporosis for my hips (-4 T score) and osteopenia for my spine, a REMS scan last January showed a low five-year risk of fracture on my hips and femoral neck (3-5%) despite the -4 T-score on DEXA, and a slightly higher risk for my spine (5-9%). Although I have been doing DEXA scans since 2004, I don't trust it completely, especially given my very small frame. This is why I did REMS, which is far more reliable (it is not covered by insurance). In fact, the T-score results and fracture risk information provided by REMS are not aligned with the results of my DEXA scan's T-scores. If you are concerned about fracture, you might consider getting a REMS scan. The REMS scan results (along with the results of relevant blood tests) will provide you with information which you and your doctor could consider as you think about a way forward.

willowmena,
personally, I trust the bone markers. My suspicion is that you'll see improvement on the next Rems. I read that it is important to complete the two years of Tymlos. My thinking is that because Tymlos works carefully, removing older fissured bone, and replacing lost collagenous structure before adding bone mineral, the density or mineral content is added more slowly.
You might consider the biomechanical CT for your next scan https://ondiagnostics.com/
Medicare will begin paying for this scan in lieu of the dexa this October.

I have never had an osteoporosis fracture. I’ve been on Tymlos for 1 year and just had my Dexa yesterday. My lumbar increased 13.6%, from -2.9 to -2.2 and my hips also increased. Don’t have the # in front of me need to print out. My TBS increased..050. My #’s adjusted for degraded TBS is -3.0 for lumber, so still osteoporosis. I also weight train and take supplements.
I was ecstatic because I take PPI’s for hiatal hernia and GERD and I have Hashimoto’s thyroid.
I had a rocky start with the Tymlos, feeling fatigued for several months and only took 4 clicks( 1/2 the dose on the pen) for about 6 months. After a non responding pn1p I attempted to increase dose but was only able to get up to 7 clicks and now no more side effects. Hope this helps. I have also been sad about it and struggling with thoughts of mortality. I will be 70 in December. That will be a milestone as my mom passed at 69. Started the Tymlos at 68. Hope this helps! 🤗