Any non fracture members?

Posted by rudysmom @rudysmom, May 18 7:24am

I guess I’m just looking for some encouraging words. I was diagnosed in February and still working through the different stages of grief/loss. I seem to have more days stuck in depression/sadness.

So, was just wondering if anyone on here has dealt with OP for quite a while and hasn’t fractured? I know you can fracture even if your scores are osteopenia range. I feel like everyday I’m just waiting for a fracture to happen. Im exercising 6 days a week and watching my food intake. I’m just hoping as time goes on this feeling lessens. Sometimes I’m not sure if it’s the diagnosis that’s making me sad or just the fact that I’m getting older, I’m 60, and reality has finally set in.

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

Profile picture for researchmaven @researchmaven

@sadtonight123

Hello! I have been on the brand name Atelvia 35 mg, weekly, for 10+ years with a one-year drug holiday after 5 years. It doesn't roll back my osteoporosis. It does make me "stable" according to my specialist, who has retired.

Note that with it, and especially the generic version, you need to drink a lot of water with it -- 1-2 full glasses,. or it can be harsh on your gut I warm the water to make it go down easier.

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@researchmaven Thanks so much for that information…I certainly appreciate your sharing that with me. I will do some research on it, as all the other drugs they’re pushing sound terrible. I know not everyone gets the side effects, but those that do are really suffering. Take care

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Profile picture for jozer @jozer

@gently so true. Why we wait so long when we know bone loss starts at 30ish and ramps up at menopause is beyond my comprehension. As I've posted before we have screening colonoscopies, mammograms starting at 40, regular cholesterol screenings, 6-month dental checkups but we ignore osteoporosis when we KNOW medically bone loss begins around 30 AND a Dexa is a cheap and easy way to identify bone loss. Wow. Since roughly 75% of women over 65 have some form of poor bone health wouldn't you think??

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@jozer, it's crazy.

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Profile picture for samclembeau @samclembeau

@jozer interesting. my doctors usually ask me where I want to go, just like what pharmacy you want to have prescriptions sent to. Can't you just ask him for referral to another center?

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@samclembeau appointment on Thursday…will certainly ask but he feels a yearly dexa is unnecessary as he said my CTX number shows my med is working. Would sure like to see my t scores after a year of reclast.

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