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How many of you decided to move permanently to be near Mayo?

Posted by barbmc8 @caligali, Aug 29, 2017

Hi. I am wondering how many people decided to move to be near Mayo permanently for all follow up care after transplant? Thanks!

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Mentor
Rosemary, Volunteer Mentor | @rosemarya | Sep 20, 2017
In reply to @windwalker "@caligali Hi Barb! I just got back home two nights ago from my evacuation. I stayed..." + (show)
@windwalker

@caligali Hi Barb! I just got back home two nights ago from my evacuation. I stayed away longer than necessary since I fled to my home state of Virginia. I had a nice visit with my daughter and worked on my rental property up there. Thank you for thinking of me. I was wondering when your new appt is for your visit to Mayo in JAX? How are you doing right now? Hugs, Terri

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@caligali, I will be thinking of you as you move forward with your treatment.
Prayers and hugs,
Rosemary

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barbmc8 | @caligali | Sep 20, 2017

Thank you so much Rosemary!!
Peace light love. b.

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Mentor
Rosemary, Volunteer Mentor | @rosemarya | Oct 2, 2017

@caligali, @tdrell, @windwalker, I would like to introduce you to a new member, Meet @becky53. She has posted a question relating to lung transplant in Mac and Bronchiectasis. Can any of you address this question: What are the BMI restrictions at Mayo Clinic for Lung Transplant.?
Thank you all for sharing.
Rosemary

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6 replies
barbmc8 | @caligali | Oct 2, 2017
In reply to @rosemarya "@caligali, @tdrell, @windwalker, I would like to introduce you to a new member, Meet @becky53. She..." + (show)
@rosemarya

@caligali, @tdrell, @windwalker, I would like to introduce you to a new member, Meet @becky53. She has posted a question relating to lung transplant in Mac and Bronchiectasis. Can any of you address this question: What are the BMI restrictions at Mayo Clinic for Lung Transplant.?
Thank you all for sharing.
Rosemary

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It is very individualized at Mayo would be my answer, as it is best to be as fit as possible to be ready for the challenges following transplant.

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Mentor
Terri Martin, Volunteer Mentor | @windwalker | Oct 2, 2017
In reply to @rosemarya "@caligali, @tdrell, @windwalker, I would like to introduce you to a new member, Meet @becky53. She..." + (show)
@rosemarya

@caligali, @tdrell, @windwalker, I would like to introduce you to a new member, Meet @becky53. She has posted a question relating to lung transplant in Mac and Bronchiectasis. Can any of you address this question: What are the BMI restrictions at Mayo Clinic for Lung Transplant.?
Thank you all for sharing.
Rosemary

Jump to this post

@becky53, Hi Becky and welcome to our group. I went through the pre-qualifying tests last Nov for a double lung transplant. To answer your question about the preferred BMI for that kind of transplant.....the Mayo did show me a chart that they'd like for patients to follow. They don't like to transplant people whose BMI falls below 18. I am at 20 and that is ideal. I don't remember what the maximum number is, but I know that if it is too high; they will put you on a weight loss program. Being fit as possible is beneficial of course, but they do have guidelines for BMI. I tried to Google the higher BMI figure for you, but could not pin point the answer. I can look through my files tomorrow if you are feeling worried about the other figure. I was put on the 'deferred' list for now as I have not declined enough yet to warrant transplantation yet. Are you in need of a transplant?

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Mentor
Terri Martin, Volunteer Mentor | @windwalker | Oct 3, 2017
In reply to @rosemarya "@caligali, @tdrell, @windwalker, I would like to introduce you to a new member, Meet @becky53. She..." + (show)
@rosemarya

@caligali, @tdrell, @windwalker, I would like to introduce you to a new member, Meet @becky53. She has posted a question relating to lung transplant in Mac and Bronchiectasis. Can any of you address this question: What are the BMI restrictions at Mayo Clinic for Lung Transplant.?
Thank you all for sharing.
Rosemary

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@caligali, Hi there. I have a question for you. Do you know of a good medical institution in or near the L.A. area that would have good specialists for autoimmune diseases, specifically - ulcerative colitis? Thank you!

REPLY
barbmc8 | @caligali | Oct 3, 2017
In reply to @rosemarya "@caligali, @tdrell, @windwalker, I would like to introduce you to a new member, Meet @becky53. She..." + (show)
@rosemarya

@caligali, @tdrell, @windwalker, I would like to introduce you to a new member, Meet @becky53. She has posted a question relating to lung transplant in Mac and Bronchiectasis. Can any of you address this question: What are the BMI restrictions at Mayo Clinic for Lung Transplant.?
Thank you all for sharing.
Rosemary

Jump to this post

The only one I know of is at UCLA Center for Inflamatory Bowel Diseases. Not sure of specific specialists there. 🙂

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Mentor
Terri Martin, Volunteer Mentor | @windwalker | Oct 3, 2017
In reply to @rosemarya "@caligali, @tdrell, @windwalker, I would like to introduce you to a new member, Meet @becky53. She..." + (show)
@rosemarya

@caligali, @tdrell, @windwalker, I would like to introduce you to a new member, Meet @becky53. She has posted a question relating to lung transplant in Mac and Bronchiectasis. Can any of you address this question: What are the BMI restrictions at Mayo Clinic for Lung Transplant.?
Thank you all for sharing.
Rosemary

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@caligali, Barb,thank you so much! I will pass that info along.

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barbmc8 | @caligali | Oct 3, 2017
In reply to @rosemarya "@caligali, @tdrell, @windwalker, I would like to introduce you to a new member, Meet @becky53. She..." + (show)
@rosemarya

@caligali, @tdrell, @windwalker, I would like to introduce you to a new member, Meet @becky53. She has posted a question relating to lung transplant in Mac and Bronchiectasis. Can any of you address this question: What are the BMI restrictions at Mayo Clinic for Lung Transplant.?
Thank you all for sharing.
Rosemary

Jump to this post

You are very welcome!

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