How many of you decided to move permanently to be near Mayo?

Posted by barbmc8 @caligali, Aug 29, 2017

Hi. I am wondering how many people decided to move to be near Mayo permanently for all follow up care after transplant? Thanks!

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Do you mind telling me where you stayed? Thanks!!

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@windwalker

@caligali Barb, we liked the Pontre Vedra area. Lots of newer homes and apts, and only 7 minutes from the Mayo.

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Yes definitely will tell them!

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@caligali Barb, we stayed at some seasonal rentals I think they were called The Colonias or something to that effect. We were fortunate in that my husband's sister rented a condo there for the winter and put us up for two weeks. And then another week as well for further tests. There is a Rental Company there that can help you with that. There is also AirB&B. Those are properties owned by individuals who will rent the entire abode; whether it be a condo, townhouse or home at reasonable prices. When are you looking to be there? I am going out of town tomorrow, and returning either Monday or Tuesday next week. I can help you when I get back if you'd like.

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@windwalker

@caligali Barb, we stayed at some seasonal rentals I think they were called The Colonias or something to that effect. We were fortunate in that my husband's sister rented a condo there for the winter and put us up for two weeks. And then another week as well for further tests. There is a Rental Company there that can help you with that. There is also AirB&B. Those are properties owned by individuals who will rent the entire abode; whether it be a condo, townhouse or home at reasonable prices. When are you looking to be there? I am going out of town tomorrow, and returning either Monday or Tuesday next week. I can help you when I get back if you'd like.

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Again great info!!
Until my procedures in a couple of weeks, we haven't firmed our timetable. So sweet of you to offer, later Sept should know more!

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@windwalker

@caligali Hello Barb, and welcome to our Connect forums. I went through the evaluation process for a double lung transplant back in Dec. of 2016. I am eligible for a transplant, but was put on the 'deferred' list, which means I don't need a transplant right this minute, but will likely need one in the future. It is possible that I may need one suddenly, so they wanted me already approved for it. They DO recommend that you live within 20 minutes of the hospital when you are actually on the waiting list. I personally know people who moved from N.Y. who are not on the waiting list yet, but wanted to get established in the community already. They sold everything and left family. Many others wait to make the move as their health worsens, they usually rent an apt while they wait. Then, you must live within 20 mins of the hospital after the transplant for 3 to 6 months. That is so you can be nearby if rejection starts. I have met many transplantees at a support group there at Mayo; and they all decided to stay put near the Mayo indefinitely. This group shares tight bonds and I think they like living close to others who are going through the same thing. I considered the move, but not ready to do so as of yet. I am slowly getting rid of lots of extra stuff now that is in the garage and our closets. I am doing this in the event we do make the move. We will most likely rent our home out here and rent apt down there. That way, in the event I don't survive, my hubby will have a home to come back to or use as rental income if he wants to stay down there. I may revisit the possibility of moving again. Right now, I am 2 1/2 hrs from the Mayo (S.C.). I live 7 hrs from my daughter right now, and I like that it is do-able for me to drive up there alone once a month to see her. That is one of the reasons I have stayed put so far. If you grow close to needing a transplant, it will be mandatory that you move. Do you know how close you are to needing that procedure?

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Windwalker...did I give you phone # for Lynn Carey a wonderful person who had lung transplant several years ago?? Terri aka tdrell

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@windwalker

@caligali Hello Barb, and welcome to our Connect forums. I went through the evaluation process for a double lung transplant back in Dec. of 2016. I am eligible for a transplant, but was put on the 'deferred' list, which means I don't need a transplant right this minute, but will likely need one in the future. It is possible that I may need one suddenly, so they wanted me already approved for it. They DO recommend that you live within 20 minutes of the hospital when you are actually on the waiting list. I personally know people who moved from N.Y. who are not on the waiting list yet, but wanted to get established in the community already. They sold everything and left family. Many others wait to make the move as their health worsens, they usually rent an apt while they wait. Then, you must live within 20 mins of the hospital after the transplant for 3 to 6 months. That is so you can be nearby if rejection starts. I have met many transplantees at a support group there at Mayo; and they all decided to stay put near the Mayo indefinitely. This group shares tight bonds and I think they like living close to others who are going through the same thing. I considered the move, but not ready to do so as of yet. I am slowly getting rid of lots of extra stuff now that is in the garage and our closets. I am doing this in the event we do make the move. We will most likely rent our home out here and rent apt down there. That way, in the event I don't survive, my hubby will have a home to come back to or use as rental income if he wants to stay down there. I may revisit the possibility of moving again. Right now, I am 2 1/2 hrs from the Mayo (S.C.). I live 7 hrs from my daughter right now, and I like that it is do-able for me to drive up there alone once a month to see her. That is one of the reasons I have stayed put so far. If you grow close to needing a transplant, it will be mandatory that you move. Do you know how close you are to needing that procedure?

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Not yet 🙂 That would be great!

REPLY
@windwalker

@caligali Hello Barb, and welcome to our Connect forums. I went through the evaluation process for a double lung transplant back in Dec. of 2016. I am eligible for a transplant, but was put on the 'deferred' list, which means I don't need a transplant right this minute, but will likely need one in the future. It is possible that I may need one suddenly, so they wanted me already approved for it. They DO recommend that you live within 20 minutes of the hospital when you are actually on the waiting list. I personally know people who moved from N.Y. who are not on the waiting list yet, but wanted to get established in the community already. They sold everything and left family. Many others wait to make the move as their health worsens, they usually rent an apt while they wait. Then, you must live within 20 mins of the hospital after the transplant for 3 to 6 months. That is so you can be nearby if rejection starts. I have met many transplantees at a support group there at Mayo; and they all decided to stay put near the Mayo indefinitely. This group shares tight bonds and I think they like living close to others who are going through the same thing. I considered the move, but not ready to do so as of yet. I am slowly getting rid of lots of extra stuff now that is in the garage and our closets. I am doing this in the event we do make the move. We will most likely rent our home out here and rent apt down there. That way, in the event I don't survive, my hubby will have a home to come back to or use as rental income if he wants to stay down there. I may revisit the possibility of moving again. Right now, I am 2 1/2 hrs from the Mayo (S.C.). I live 7 hrs from my daughter right now, and I like that it is do-able for me to drive up there alone once a month to see her. That is one of the reasons I have stayed put so far. If you grow close to needing a transplant, it will be mandatory that you move. Do you know how close you are to needing that procedure?

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@tdrell Hey Terri. Yes, you did give me her number and I still have her in my phone. I called her and we had a nice chat. She is a very sweet lady. I should call her and see how she is doing. I could ask if I can share her number with @caligali.

REPLY
@windwalker

@caligali Hello Barb, and welcome to our Connect forums. I went through the evaluation process for a double lung transplant back in Dec. of 2016. I am eligible for a transplant, but was put on the 'deferred' list, which means I don't need a transplant right this minute, but will likely need one in the future. It is possible that I may need one suddenly, so they wanted me already approved for it. They DO recommend that you live within 20 minutes of the hospital when you are actually on the waiting list. I personally know people who moved from N.Y. who are not on the waiting list yet, but wanted to get established in the community already. They sold everything and left family. Many others wait to make the move as their health worsens, they usually rent an apt while they wait. Then, you must live within 20 mins of the hospital after the transplant for 3 to 6 months. That is so you can be nearby if rejection starts. I have met many transplantees at a support group there at Mayo; and they all decided to stay put near the Mayo indefinitely. This group shares tight bonds and I think they like living close to others who are going through the same thing. I considered the move, but not ready to do so as of yet. I am slowly getting rid of lots of extra stuff now that is in the garage and our closets. I am doing this in the event we do make the move. We will most likely rent our home out here and rent apt down there. That way, in the event I don't survive, my hubby will have a home to come back to or use as rental income if he wants to stay down there. I may revisit the possibility of moving again. Right now, I am 2 1/2 hrs from the Mayo (S.C.). I live 7 hrs from my daughter right now, and I like that it is do-able for me to drive up there alone once a month to see her. That is one of the reasons I have stayed put so far. If you grow close to needing a transplant, it will be mandatory that you move. Do you know how close you are to needing that procedure?

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Windwalker...sure call her and check...am sure it will be fine! Terri

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@windwalker

@caligali Barb, we liked the Pontre Vedra area. Lots of newer homes and apts, and only 7 minutes from the Mayo.

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@colleenyoung and @caligali, I usually do not go to the support meetings unless I am in Florida for an appointment. Am packing right now to escape hurricane. Will probably go MiA for awhile, will be out-running the hurricane.

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@windwalker

@caligali Barb, we liked the Pontre Vedra area. Lots of newer homes and apts, and only 7 minutes from the Mayo.

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Stay Safe!!! My Mayo trip is cancelled for now due to the hurricane!

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