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Anyone feel invisible?
I'm tired of hurting, tired of telling people that I'm having a bad day for them to just move on with their lives (family included). They don't understand fibromyalgia and what we go through and don't care because it doesn't affect them. It's a mental drain feeling alone and invisible every day of your life.
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I don’t really complain to anyone about my health issues because most have their own problems they are dealing with and it gets old hearing that someone isn’t feeling well all the time. That’s one reason I belong to sites where input is welcomed and others understand. Attending virtual conferences and counseling has proved helpful to me. (I don’t have fibromyalgia.). I don’t think it’s that people don’t care, but they have only so much bandwidth to accommodate other people’s pain.
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3 ReactionsThanks for solidifying my belief to keep things to myself instead of reaching out for help.
Understood.
@hechtml , I think reaching out is a good thing. I just try to vent with those who welcome it like support groups, message boards, therapists, etc. My friends care but I usually am sensitive about complaining since they have their own issues too. One of my good friend’s husband has cancer and she’s not in the best if health either. So, I volunteer to help her.
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1 ReactionThe boards are a god sent.
I don't mention anything unless I'm directly asked. Most of my family feels I'm a hypochondriac at this point anyway, with all the random pains and issues and dr visits. But I don't let them bully myself into "your fine, just work thru it" anymore. If I can't, I don't go.
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1 ReactionIt is really tough. Pain is isolating on its own. I think most people care; they just really don't know what to do.
Think of how you'd like them to respond and, maybe, ask them to respond that way. Sometimes we send clues that we want to be left alone, especially when that other presence is full of expectations.
While people can be deeply sympathetic, they don't really understand until, unless they experience pain themselves.
Wishing you better days
https://batemanhornecenter.org/new-hope-in-fibromyalgia-treatment-understanding-tonmya/