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Anyone feel invisible?

Fibromyalgia | Last Active: Sep 21 1:58pm | Replies (19)

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Profile picture for guineapiglover @guineapiglover

This site is great as I keep getting told "try not to go on about it" ," people don't want to hear about your problems, everyone has enough of their own" and this is my Mum who means well! An invisible chronic illness is hard for us fibromyalgia sufferers to navigate at the best of times so for people who haven't got it, well....I am stuck in a body that's unable to do what my spirit wants to and it's so frustrating and how I love to talk. On really bad days do people really want to hear me go on, probably not so I am grateful I can vent here. I am in terrible pain all over and like a zombie at the mo and I do feel isolated and invisible in my suffering. I am in the worst flare since my diagnosis and this is the first time I feel fibromyalgia is controlling me. People who are in the same situation understand and we can share and be part of an on line community where we perhaps for a short while don't feel invisible. I could swear as I am not living a life I thought I would, I also have a slipped disc and recently on antibiotics for a recurring UTI which has knocked me out. So thank the Lord for sites such as these. I live in the UK and it's also interesting how you deal with things fibromyalgia related over the pond....x

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Replies to "This site is great as I keep getting told "try not to go on about it"..."

@guineapiglover
You are right.
It is an invisible disease.
Most people think that we imagine it.
They think that we just need to get our act together and stop complaining.
But it is real.
And it hurts.