Tonight, I'm afraid to go to sleep. I've been waking up with a panic attack, feeling smothered, like death is imminent. Peripheral neuropathy pain in my feet keeps waking me up. I have a BIPAP, using nasal pillows, which I am liking after more than 15 years with a full face mask, but I wake up with my mouth so dry I can't swallow. I usually get back to sleep after an hour or so, out of sheer exhaustion. I think I might be getting the flu or something, with aching, diarrhea and no energy. Or it could be depression. I have a therapy appointment today. Well, back to the bathroom, and maybe then another stretch of sleep.
My sinuses close up on me when I lay down, then I have to sit up until they drain. I snore when I mouth breathe. I find rinsing with Saline that my sinuses open faster. Then I can lay down and get some rest.
I find that deep breathing exercises will allow me to slow my heart rate and relax me for sleep. Heart Chakra meditation is wonderful. Also, I found out I am a slow metabolizer of caffeine. So. I drink a lot of filtered water, herbal teas, decaffeinated coffee sparingly, and black or green tea only before three p.m..
Your case sounds identical to mine including the urinary urgency block and full strgnth IBS pills for constipation. My urologist told me nothing stops the needing to get up at night to go if that's what I thought. He said it only stops me from having leaks before I get to the toilet. Also the last time I got the IBS pills with constipation, it cost me $252 and then they want $119 this last time and neither one of these kinds of pills helped so I'm going a few days on my own to see. I just can't afford that kind of money for something that doesn't help much or at all. The last prescription of pills for urinary urgency were going to cost me $81 for one month.
Your case sounds identical to mine including the urinary urgency block and full strgnth IBS pills for constipation. My urologist told me nothing stops the needing to get up at night to go if that's what I thought. He said it only stops me from having leaks before I get to the toilet. Also the last time I got the IBS pills with constipation, it cost me $252 and then they want $119 this last time and neither one of these kinds of pills helped so I'm going a few days on my own to see. I just can't afford that kind of money for something that doesn't help much or at all. The last prescription of pills for urinary urgency were going to cost me $81 for one month.
@maureercria I am up all night with bathroom runs, really impacting my sleep. The act of getting up then brings on an immunosuppressant caused "night sweat" so that then keeps me awake for quite a while sometimes. I also do leak sometimes. What are the medications that were prescribed for you? Are you on Medicare? I ask because I am, and I am trying to determine if for me they would also be quite costly. I wonder too if these are something that you can take on and off, for instance take them if you really need to not have that urgency due to traveling or something. This has become such a problem for me I am thinking about seeing a urogynecologist for help.
I know my incontinence is not the type that can be helped by that "sling" type of surgery, I wish it was because I have known people who have had that and found it amazingly successful.
When I was prescribed Myrbetric a few years back I also felt that for the price I would just deal with having to go frequently but it has gotten much worse. If my insurance will pick up a decent amount of it, and if it's OK per my transplant team, I may try it. Jimhas mentioned in a prior post a "sister" drug to Myrbetric that has been helpful. I will look into that too.
I have put off going to a urogynecologist for months now, but I am at the point where I really need to get some help with this.
Thanks for any info you can give me.
JK
Your case sounds identical to mine including the urinary urgency block and full strgnth IBS pills for constipation. My urologist told me nothing stops the needing to get up at night to go if that's what I thought. He said it only stops me from having leaks before I get to the toilet. Also the last time I got the IBS pills with constipation, it cost me $252 and then they want $119 this last time and neither one of these kinds of pills helped so I'm going a few days on my own to see. I just can't afford that kind of money for something that doesn't help much or at all. The last prescription of pills for urinary urgency were going to cost me $81 for one month.
Oxybutynin, then Myrbetric, and then Vesicare are three prescriptions I tried for urinary urgency that did not help me terribly. Oxybutynin has been around forever. The other two are newer drugs. When off med's between Myrbetric and Vesecare, I had one urgency issue when pulling into my garage after having been away from home. I still do get up at night with the feeling I need to urinate whether on pills or not. I was told by my urologist that I needed to use each med for three months before deciding if it worked or not for me. I did try the first two for that long, but the cost of the Vesicare made me decide not to purchase a second month of it. I was told by a pharmacist that I should look up various exercises besides the Kegel exercises to improve urinary urgency problems. I'm not sure if I understood the pharmacist correctly. It sounded like he was saying Kessel exercises. I think he meant Kegel. I guess it is supposed to help to do thigh and other area exercises for it. Diet-wise, I am going to look into a gastroparesis diet for delayed emptying of stomach. I also wonder if the pressure in my intestines from my IBS with constipation could be putting pressure on my bladder. I have no idea. I just try whatever I think could possibly help me. All these symptoms can wake me up during the night
I have had two tests for sleep apnea and was diagnosed with mild sleep apnea, about six incident a night. The masks seemed to make me wake up more frequently so I passed on them as the mask would slide over and block my breathing. I also have hiatal hernia, acid reflux, IBS with constipation, urinary urgency, and hemerrhoid. I never know which thing is waking me up. I sleep with elevated pillows which bothers my IBS. I recently had surgery on my nose - 90% blocked left septum, my enlarged turinate, and plastic surgery on my collapsing nostril walls. I hoped this would help my sleep apnea but the nose is still healing and I mostly breathe through my mouth. It is hard to sleep on my sides for the sleep apnea and to sleep raised up for my acid reflux when laying down flatter would help my IBS or else the IBS pressure keeps me awake. Since I retired at the end of 2016, I thought the relief from job stress would help, but the IBS and sleep apnea have gotten worse. Any thoughts?
I found that what works best to elevate me is to put to pillows down side by side, and then put a pillow on top of each of them, and then I can roll from side to side and can rest an arm on the other side without having my arm hang down.
I am on Medicare and the first Vesicare cost me $252 because of my deductible needing to be met. My next bottle was going to cost about $118 and I thought that was still too much.
Your case sounds identical to mine including the urinary urgency block and full strgnth IBS pills for constipation. My urologist told me nothing stops the needing to get up at night to go if that's what I thought. He said it only stops me from having leaks before I get to the toilet. Also the last time I got the IBS pills with constipation, it cost me $252 and then they want $119 this last time and neither one of these kinds of pills helped so I'm going a few days on my own to see. I just can't afford that kind of money for something that doesn't help much or at all. The last prescription of pills for urinary urgency were going to cost me $81 for one month.
I'm taking Oxybutynin now. I'm on Medicare, with medication supplement with Humana, who has a mail order pharmacy, where I pay an $8.00 copay for 3 month scrips. No more sudden urgency. I usually get up once a night.
Your case sounds identical to mine including the urinary urgency block and full strgnth IBS pills for constipation. My urologist told me nothing stops the needing to get up at night to go if that's what I thought. He said it only stops me from having leaks before I get to the toilet. Also the last time I got the IBS pills with constipation, it cost me $252 and then they want $119 this last time and neither one of these kinds of pills helped so I'm going a few days on my own to see. I just can't afford that kind of money for something that doesn't help much or at all. The last prescription of pills for urinary urgency were going to cost me $81 for one month.
@maureercria thanks for the info. A long time ago I was on oxybutnin and then vesicare but got off of them because I started having confusion episodes which apparently can occur with vesicare, particularly in combination with some other meds. I got off that and a couple of other prescriptions with no bad effects. I got off them and had no episodes of confusion for three months so we thought that had done it but it turned out to be HE episodes from cirrhosis. The vesicare did help a bit and I guess my insurance must have paid for it because I do not recall it being particularly expensive.
I often have problems when I get the car into the garage and am heading into the house. I can't help but think that part of my problem is psychological since it seems that it becomes extremely urgent when I get near a bathroom, to the point where I often saturate a pad.
I have an appointment with a urologist who was recommended by my gynecologist but I wonder if he is the right person to go to. I am thinking if part of my problem is psychological that I might be better off with a urogynecologist.
JK
I am on Medicare and the first Vesicare cost me $252 because of my deductible needing to be met. My next bottle was going to cost about $118 and I thought that was still too much.
@maureercria that what I thought when I prescribed myrbetriq. At that point I just figured I would live with frequent bathroom trips but it has gotten worse. As I said in the prior post, I do not recall the vesicare costing anything that seemed that unreasonable.
JK
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My sinuses close up on me when I lay down, then I have to sit up until they drain. I snore when I mouth breathe. I find rinsing with Saline that my sinuses open faster. Then I can lay down and get some rest.
I find that deep breathing exercises will allow me to slow my heart rate and relax me for sleep. Heart Chakra meditation is wonderful. Also, I found out I am a slow metabolizer of caffeine. So. I drink a lot of filtered water, herbal teas, decaffeinated coffee sparingly, and black or green tea only before three p.m..
Your case sounds identical to mine including the urinary urgency block and full strgnth IBS pills for constipation. My urologist told me nothing stops the needing to get up at night to go if that's what I thought. He said it only stops me from having leaks before I get to the toilet. Also the last time I got the IBS pills with constipation, it cost me $252 and then they want $119 this last time and neither one of these kinds of pills helped so I'm going a few days on my own to see. I just can't afford that kind of money for something that doesn't help much or at all. The last prescription of pills for urinary urgency were going to cost me $81 for one month.
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1 Reaction@maureercria I am up all night with bathroom runs, really impacting my sleep. The act of getting up then brings on an immunosuppressant caused "night sweat" so that then keeps me awake for quite a while sometimes. I also do leak sometimes. What are the medications that were prescribed for you? Are you on Medicare? I ask because I am, and I am trying to determine if for me they would also be quite costly. I wonder too if these are something that you can take on and off, for instance take them if you really need to not have that urgency due to traveling or something. This has become such a problem for me I am thinking about seeing a urogynecologist for help.
I know my incontinence is not the type that can be helped by that "sling" type of surgery, I wish it was because I have known people who have had that and found it amazingly successful.
When I was prescribed Myrbetric a few years back I also felt that for the price I would just deal with having to go frequently but it has gotten much worse. If my insurance will pick up a decent amount of it, and if it's OK per my transplant team, I may try it. Jimhas mentioned in a prior post a "sister" drug to Myrbetric that has been helpful. I will look into that too.
I have put off going to a urogynecologist for months now, but I am at the point where I really need to get some help with this.
Thanks for any info you can give me.
JK
Oxybutynin, then Myrbetric, and then Vesicare are three prescriptions I tried for urinary urgency that did not help me terribly. Oxybutynin has been around forever. The other two are newer drugs. When off med's between Myrbetric and Vesecare, I had one urgency issue when pulling into my garage after having been away from home. I still do get up at night with the feeling I need to urinate whether on pills or not. I was told by my urologist that I needed to use each med for three months before deciding if it worked or not for me. I did try the first two for that long, but the cost of the Vesicare made me decide not to purchase a second month of it. I was told by a pharmacist that I should look up various exercises besides the Kegel exercises to improve urinary urgency problems. I'm not sure if I understood the pharmacist correctly. It sounded like he was saying Kessel exercises. I think he meant Kegel. I guess it is supposed to help to do thigh and other area exercises for it. Diet-wise, I am going to look into a gastroparesis diet for delayed emptying of stomach. I also wonder if the pressure in my intestines from my IBS with constipation could be putting pressure on my bladder. I have no idea. I just try whatever I think could possibly help me. All these symptoms can wake me up during the night
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1 ReactionI found that what works best to elevate me is to put to pillows down side by side, and then put a pillow on top of each of them, and then I can roll from side to side and can rest an arm on the other side without having my arm hang down.
I am on Medicare and the first Vesicare cost me $252 because of my deductible needing to be met. My next bottle was going to cost about $118 and I thought that was still too much.
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1 Reaction@contentandwell
I'm taking Oxybutynin now. I'm on Medicare, with medication supplement with Humana, who has a mail order pharmacy, where I pay an $8.00 copay for 3 month scrips. No more sudden urgency. I usually get up once a night.
Jim
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1 ReactionI wish it had worked for me. I took it for a long time. It's good it does work for some people. It's worth it for them to try it.
@maureercria thanks for the info. A long time ago I was on oxybutnin and then vesicare but got off of them because I started having confusion episodes which apparently can occur with vesicare, particularly in combination with some other meds. I got off that and a couple of other prescriptions with no bad effects. I got off them and had no episodes of confusion for three months so we thought that had done it but it turned out to be HE episodes from cirrhosis. The vesicare did help a bit and I guess my insurance must have paid for it because I do not recall it being particularly expensive.
I often have problems when I get the car into the garage and am heading into the house. I can't help but think that part of my problem is psychological since it seems that it becomes extremely urgent when I get near a bathroom, to the point where I often saturate a pad.
I have an appointment with a urologist who was recommended by my gynecologist but I wonder if he is the right person to go to. I am thinking if part of my problem is psychological that I might be better off with a urogynecologist.
JK
@maureercria that what I thought when I prescribed myrbetriq. At that point I just figured I would live with frequent bathroom trips but it has gotten worse. As I said in the prior post, I do not recall the vesicare costing anything that seemed that unreasonable.
JK