BESREMi anyone?

@cariadk sounds like a great idea, I’ll surely try it next week, thanks.

@cariadk great idea, I’ll definitely try that next week. Thanks.

I Have Been On Besremi Since march No Side Affects So Far Started at 50mcg than too 100mcg than too 150 than too 200Been On 200mcg around two months platelets Are in the normal Range For Few Wks Now 338a Wk ago

I Have a CALR gene mutation Hemoglobin is around 12. White Blood Cell Count Good Red Blood Cell Count Little Low all Getting Better though.

It took me three months to get approval from UHC. They are terrible! They need to know you definitely have been diagnosed with PV and require all the tests to prove it. I receive my first drug by Fed Ex tomorrow. I had been approved for use with the injecting pen by UHC but when my doctor ordered it they said there is a problem with UHC and something with the FDA so I’m going to use syringe version instead for now. I hope someone is advocating for you. We have a pharmacy navigator in my cancer center who has handled it all. I wish you the best. Don’t give up the fight. I have Medicare part D so my max they can charge for copay is $2100. It turned out to be $1871. There are at least three places to go for help in paying, possibly to $0. I worked with Onco Drug but my earnings didn’t qualify me. And , yes, the side effects sound ominous. But if you read thru some of the entries in this sight, most are doing well, and the outcome can be life affirming! Best to you. Let me know about UHC!!