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BESREMi anyone?

Posted by @N.C.94 @upnorth94, Jul 10, 2023

Diagnosed with PV with JAK2 mutation In November. Did not do well on Hydroxyurea. I just started BESREMi at 100mg every 2 weeks. I have had only 1 injection so far but concerned about side effects. I am curious about how others are doing?

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nancyra | @nancyra | 8 hours ago
In reply to @cariadk "@nancyra I have ET with Calr No hair loss and no mood swings for me. Besremi..." + (show)
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@nancyra
I have ET with Calr
No hair loss and no mood swings for me. Besremi has been very successful for me. I’ve been on it for just over a year and have been in the normal range or close since December. (Started at 1400) HU only ever got me to 600s. The highest besremi dose was 400 for me and now I’m down to 200. The main side effect is being tired and that is probably the ET not the drug. I do get dry eyes.

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@cariadk
Thank you for your reply!
Ok good to know. As with starting anything new the list of potential side effects is always a scare. My hem says we will start low and move higher as needed rather than the other way round.
Hopefully proves will come soon..

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