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sero negative sjogrens?

Posted by theodora21 @theodora21, Jul 28 9:36am

i have had dry eyes, mouth, vaginal dryness my whole life. was tested in my 40s for sjogren's, all labs came back negative. I am sure I have it. Cn my dentist do tests or should i go to ENT? i have a continuous swollen salivary gland under my tongue. I am now 70 and worried about complications.

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lynda12345 | @lynda12345 | 1 hour ago
In reply to @lynda12345 "@saffronsass yes it is not uncommon for the Drs to say you do not have Sjogrens...." + (show)
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@saffronsass yes it is not uncommon for the Drs to say you do not have Sjogrens. Some tests come back negative.
I know I have it.
It is disappointing to know the amount of patients told they do not have it.
We are our best tool!!! Sometimes it gets hard to deal with but I always say someone out there is worse than me. Chin up if anyone has some new info share it in all ears!!!! 😀😀😀

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@lynda12345
Just doing more research my favourite pastime ha!
Now this gets interesting
50 years ago at work I lost my sight for about 6 mins I had all kinds of tests with the exception of CT Scan of the head.
Saw a neurologist he said I had soft signs of MS
A year later I had Bells Palsy on the left side of my face.
Apparently there is a correlation with Sjogrens disease. (Affecting the nerves) Sjogrens disease may have been caused by bacteria or a DNA defect that allows the T cells to attack our healthy cells
Another symptom is dry salty scalp and loss of hair.
Don’t tie your hair back use a comb wash hair maybe once a week use a light oil
I found this out because my hair would not suds the salt was preventing it.
I know I go on but the more we know the better 😀

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lynda12345 | @lynda12345 | 1 hour ago
In reply to @lynda12345 "@jw9 I am diabetic but according to some studies both Metformen and Ozempic help Sjogrens disease..." + (show)
Profile picture for lynda12345 @lynda12345

@jw9
I am diabetic but according to some studies both Metformen and Ozempic help Sjogrens disease
. Ozempic is also used for weight loss
Which obviously drops weight so I will not have high blood sugars
I have just started Ozempic
I need to lose a bit of weight
So we shall see how it helps my Sjogrens (I am hoping)
I’m 72 yrs young haha
My wt is is 264lbs only 5ft 2
I should be lighter 🙂

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@lynda12345
Oops my weight is 164 lbs not 264lb holy cow
😳

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