End stage autonomic polyneuropathy

Hi,
I need some serious help being weeks from death. I need to find documented proof of how this disease disables the digestive system in end stage. I know what it does but my specialists don't understand what I'm dealing with hourly. It appears my case is rare and there are no documents dealing with this end stage. They all deal with everything up until this stage, so far it appears to be undocumented. Until I can proove from medical literature what I'm saying Doc's are just ticking boxes and with holding a J tube opperation from me. The J tube will not fix the problem but it will work around giving me some more time above ground. Currently having to manage my health alone as by default I have ended up being the specialist in this field within thousands of miles from me. It is likely I have a few weeks to survive with no help. I'm doing everything I can to slow the pace but it is a loosing battle I can not win without the J tube. My digestion has failed muscularly as the nerves are all destroyed with the meylin coating gone. So digestion can take days by virtue of the stomachs gastric juices slowly desolving the contents. The body can not move the contents down any more or grind the contents to the paste required to enter the small intestine. AI has not been able to find documentation yet but we keep looking. One of three thing will end it, huge uncontrolled glucose spikes every day, starvation now below sufficient to power the body more than an hour per day, or the body will just shut down so far 4 attempts only stopped by the cortex forcing recovery. I'm constantly dealing with attempted shut downs every day and have discovered I can stop them by distracting the brain and sucking on nutritional yeast, not nice but life saving. Sleeping is a nightmare not knowing if I will survive each night or not. I have had to realise I could be stopped in my tracks at any second with this disease. I never thought I would fight so hard for life but can't let myself just sit and wait.
Cheers