1. < Autoimmune Diseases
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Has anyone with RA hands had success with any remedy? If any?

Posted by cynl @cynl, Aug 8 4:17am

I'm 54 and I have RA hands. I can type with one finger, can't work can't do much of anything. I'm praying for a miracle.

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donna2008 | @donna2008 | 4 days ago
In reply to @becsbuddy "@donna2008 Question about Golden Paste. Do you put in ON your skin or take it like..." + (show)
Profile picture for Becky, Volunteer Mentor @becsbuddy

@donna2008 Question about Golden Paste. Do you put in ON your skin or take it like a pill?have you had any bad side effects from it? Does it need a doctor’s approval?

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@becsbuddy
It's a recipe...you would take with food or in a drink of your choice like coffee, milk, etc.
I recommend joining the "Original Turmeric User Group" (OTUG) on Facebook for recipe and information. The reason I use it is for my inflammation associated with rhemetoid arthritis 😉

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Mentor
Sue, Volunteer Mentor | @sueinmn | 4 days ago

@becsbuddy and others CAUTION! Turmeric and its active ingredient curcumin is helpful for inflammation for some people, BUT it can interact with many medications and must be used with great caution bt anyone with diabetes, liver disease and a number of other health issues.
Please research carefully before using as a supplement regularly.

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tova | @tova | 3 days ago
In reply to @kmg218 "@cynl I was diagnosed with RA and osteoarthritis and it affects my hands and lower back..." + (show)
Profile picture for kmg218 @kmg218

@cynl I was diagnosed with RA and osteoarthritis and it affects my hands and lower back the most. I started Plaquenil 5 mths ago and feel nothing from it. Had a bit of a struggle first taking it as it caused severe nausea and diarrhea but my body adapted mostly, still have a bit of that but I deal with it. When I tell my rheumatologist it still bothers me she says well then you can never take methotrexate, you wouldn't be able to deal with those side effects...so negative right? I thought the idea of these drugs was to keep the disease from progressing and hopefully give some relief. To tell your patient you can never take something puts such a spin on even trying it in my mind. Not sure what my next move can be....its so disheartening. wondering your experience with Methotrexate. thanks...

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@kmg218 i have RA and it affexts my hands too. Im
On zeljanz. It works pretty good. Im 62. Tried everything. This so far is the best. No sode effects yet

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kmg218 | @kmg218 | 3 days ago
In reply to @tova "@kmg218 i have RA and it affexts my hands too. Im On zeljanz. It works pretty..." + (show)
Profile picture for tova @tova

@kmg218 i have RA and it affexts my hands too. Im
On zeljanz. It works pretty good. Im 62. Tried everything. This so far is the best. No sode effects yet

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@tova Thanks for that info....I'll talk to my rheumatologist next visit. so appreciate your response!

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betsyhase | @betsyhase | 2 days ago
In reply to @kmg218 "@cynl I was diagnosed with RA and osteoarthritis and it affects my hands and lower back..." + (show)
Profile picture for kmg218 @kmg218

@cynl I was diagnosed with RA and osteoarthritis and it affects my hands and lower back the most. I started Plaquenil 5 mths ago and feel nothing from it. Had a bit of a struggle first taking it as it caused severe nausea and diarrhea but my body adapted mostly, still have a bit of that but I deal with it. When I tell my rheumatologist it still bothers me she says well then you can never take methotrexate, you wouldn't be able to deal with those side effects...so negative right? I thought the idea of these drugs was to keep the disease from progressing and hopefully give some relief. To tell your patient you can never take something puts such a spin on even trying it in my mind. Not sure what my next move can be....its so disheartening. wondering your experience with Methotrexate. thanks...

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@kmg218
I was recently diagnosed with RA and after I finally got into a Rheumatologist the first medication he put me on was Methotrexate. Horrible diarrhea!!! I am now on Orencia infusions, so far so good. Although I am not sure what the long term goal is. I am still taking Prednisone and starting a 1mg taper per month. This is such a balancing act of finding something for relief and live with it.

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codaat | @codaat | 1 day ago

I have had RA since 1992 and I am on plaquenil been on it for 20 years now just started me on rituximab 2 years ago. And that been helping too. Good luck. Everybody system is different though

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ruralgal76 | @ruralgal76 | 1 day ago

Trust is so important with your dr. and be sure as you can that they care...I ask lots of questions .........you are your own best advocate...good luck...i have been on orencia for 2 yrs..and 5 mg pred...i want to get off pred. my other dr had me on 15 mg.... i feel better. now except for humid days here in minnesota... diet is so important too... best wishes everyone~!!!!

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rutgersmom123 | @rutgersmom123 | 23 hours ago

Does anyone have issues with chronic achilles tendinitis?

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donna2008 | @donna2008 | 23 hours ago

I've been taking hydroxychloroquine 200mg daily for 6 years now since being diagnosed with RA....never had any stomach issues. I have recently started Leflunomide...it has helped with the inflammation and swelling. Just very concerned about side effects that could occur. Recently added Prednisone 5mg.. My rheumatologist said I could take it when needed if I'm experiencing severe pain. I do have multiple autoimmune issues. Hope you find what works best for you! Take care...God Bless 🤗

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sarastewart | @sarastewart | 7 hours ago

For me, I utilize some physical techniques that help. I find relief by wearing soft, splints to bed at night that keep my hands in a neutral position. I also wear compression gloves with the fingertips cut out during the day. I do a lot of driving, so I have been wearing biking gloves with extra pad and the fingers cut out while driving. I’ve also had those soft cushy rings put on my steering wheel. Occasionally, I use soft ice packs by icing 10 minutes on than 10 minutes off. My hands continue to fan out and look a bit deformed, but I sort of expected that. I have my suggestions are helpful.🌸

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