Treatments for Osteoporosis

Posted by loadedwithlead1 @loadedwithlead1, Aug 9 11:19am

I recently saw an endocrinologist. He said
There are 2 treatments for osteoporosis, Fosamax and
Reclast. Which do you want? He pointed to a door and said That is the way to the infusion room. It is convenient.
He also inquired into the status of recent dental work. That concluded the meetimg. I have since wondered whether this was normal. I am aware that there are many more treaatments for osteoporosis. Should I go ahead? Or pause?

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Find a new endocrinologist. Your current one is incompetent. Do not go back to him. Do NOT do anything until you see a doctor who actually knows something about osteoporosis.

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I would find a new doctor and research treatments. Check with your insurance and see what is needed for them to pay.

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If it were me I would do a search for someone new and well educated about and experienced in treating osteoporosis. He did not give you good information.
What are your dexa scores?
In addition, we must do our own research in order to advocate for best treatment.
Also, the current thinking on sequencing osteoporosis meds is start with an anabolic/bone builder. Of course I don't know your medical history and am not a doctor. My hackles went up when you told us how you were treated. Not acceptable!

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No …at least it shouldn’t be…what are your tscore numbers that has a bearing on what drug you should be using

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My experience also with endo; very little information was given. At first appointment after poor DEXA numbers talked about Fosamax and Reclast (scared me at the time; once a year and no going back if you don't tolerate it). He did say he did not like Prolia because "you are on it for life". Never heard the term anabolic, or Tymlos or Forteo or anything else. Anabolics are becoming first line treatment; but I guess bisphosphonates for me. Probably with good reason for me specifically (I am not a doctor!). He wanted Reclast as first med; too scared so Fosamax was prescribed. Ended up with Reclast about a year ago since Fosamax wasn't giving me much improvement (Reclast basically well tolerated; only a few side effects). Entire appointment was about 15 minutes. I personally don't think there is an endo who is "expert" at osteoporosis; endos cover a lot of conditions not just osteo.

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Profile picture for jozer @jozer

My experience also with endo; very little information was given. At first appointment after poor DEXA numbers talked about Fosamax and Reclast (scared me at the time; once a year and no going back if you don't tolerate it). He did say he did not like Prolia because "you are on it for life". Never heard the term anabolic, or Tymlos or Forteo or anything else. Anabolics are becoming first line treatment; but I guess bisphosphonates for me. Probably with good reason for me specifically (I am not a doctor!). He wanted Reclast as first med; too scared so Fosamax was prescribed. Ended up with Reclast about a year ago since Fosamax wasn't giving me much improvement (Reclast basically well tolerated; only a few side effects). Entire appointment was about 15 minutes. I personally don't think there is an endo who is "expert" at osteoporosis; endos cover a lot of conditions not just osteo.

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@jozer No, there are definitely endocrinologists who are expert at osteoporosis. It's just not easy to find them! If the doctor never heard of Tymlos or Forteo, he/she is ignorant and should not be your doctor.

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My endocrinologist ran an EXTENSIVE array of blood and urine tests on me after my DEXA scan even though my osteoporosis was almost certainly caused by androgen deprivation therapy (chemical castration) for prostate cancer. She looked at: 24 hour urine calcium, creatinine 24 hour, magnesium, celiac disease panel, bone alkaline phosphatase, CBC, PTH, Phosphorous, N-telopeptide, CMP, C-Telopeptide and vitamin D levels.

I would not trust an endocrinologist who did not fully explore the CAUSE before going straight to treatment. I agreed to weekly Fosamax because my experience with androgen deprivation has permanently made me adverse to any medication that is designed to last for months at a time. I was terrified of this med based on what I read online but so far have had no noticeable side effects at all.

Every Sunday I take one pill with a giant glass of water, then sit upright for an hour. I was taking Calcium and Vitamin D supplements but she stopped the calcium because I was getting more than enough from diet.

However, I also do weight bearing exercise several times a week (and have done this for years).

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Profile picture for jozer @jozer

My experience also with endo; very little information was given. At first appointment after poor DEXA numbers talked about Fosamax and Reclast (scared me at the time; once a year and no going back if you don't tolerate it). He did say he did not like Prolia because "you are on it for life". Never heard the term anabolic, or Tymlos or Forteo or anything else. Anabolics are becoming first line treatment; but I guess bisphosphonates for me. Probably with good reason for me specifically (I am not a doctor!). He wanted Reclast as first med; too scared so Fosamax was prescribed. Ended up with Reclast about a year ago since Fosamax wasn't giving me much improvement (Reclast basically well tolerated; only a few side effects). Entire appointment was about 15 minutes. I personally don't think there is an endo who is "expert" at osteoporosis; endos cover a lot of conditions not just osteo.

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@jozer Endocrinologists who specialize in bone health are hard to find, but they do exist. I know of 3 of them and all 3 are associated with universities. My guess is that there are more. I am currently on a path with one where the university clinic takes 10 to 12 weeks to evaluate a referral before they decide IF they will allow you to make an appointment 6+ months out from then.

There are other types of doctors who specialize in OP. If I have to start looking further, I would ask the expert who declined my case to suggest someone else, I would try to see if I could see who attended OP conventions such as the Interdisciplinary Symposium on Osteoporosis. There is a limited search tool for OP oriented medical people here, but I know that it does not include many, although Lisa Moore of Brick House Bones did come up:
https://www.bonehealthandosteoporosis.org/find-a-professional/
My doctor agrees with jozer that a random endo, not selected in advance for osteoporosis, is a long shot for significant OP expertise, far likely to know lots more about diabetes than OP.

For a specific example, here is an interview by OsteoBoston with Dr. Benjamin Leder who is an endocrinologist, researcher, and clinical practitioner in the Boston area. He mentions near the end that his office accepts appointments, but they are booked many months out.

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Profile picture for kfhoz @kfhoz

@jozer Endocrinologists who specialize in bone health are hard to find, but they do exist. I know of 3 of them and all 3 are associated with universities. My guess is that there are more. I am currently on a path with one where the university clinic takes 10 to 12 weeks to evaluate a referral before they decide IF they will allow you to make an appointment 6+ months out from then.

There are other types of doctors who specialize in OP. If I have to start looking further, I would ask the expert who declined my case to suggest someone else, I would try to see if I could see who attended OP conventions such as the Interdisciplinary Symposium on Osteoporosis. There is a limited search tool for OP oriented medical people here, but I know that it does not include many, although Lisa Moore of Brick House Bones did come up:
https://www.bonehealthandosteoporosis.org/find-a-professional/
My doctor agrees with jozer that a random endo, not selected in advance for osteoporosis, is a long shot for significant OP expertise, far likely to know lots more about diabetes than OP.

For a specific example, here is an interview by OsteoBoston with Dr. Benjamin Leder who is an endocrinologist, researcher, and clinical practitioner in the Boston area. He mentions near the end that his office accepts appointments, but they are booked many months out.

Jump to this post

@kfhoz

Got to love Shelley and OsteoBoston!

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Profile picture for kfhoz @kfhoz

@jozer Endocrinologists who specialize in bone health are hard to find, but they do exist. I know of 3 of them and all 3 are associated with universities. My guess is that there are more. I am currently on a path with one where the university clinic takes 10 to 12 weeks to evaluate a referral before they decide IF they will allow you to make an appointment 6+ months out from then.

There are other types of doctors who specialize in OP. If I have to start looking further, I would ask the expert who declined my case to suggest someone else, I would try to see if I could see who attended OP conventions such as the Interdisciplinary Symposium on Osteoporosis. There is a limited search tool for OP oriented medical people here, but I know that it does not include many, although Lisa Moore of Brick House Bones did come up:
https://www.bonehealthandosteoporosis.org/find-a-professional/
My doctor agrees with jozer that a random endo, not selected in advance for osteoporosis, is a long shot for significant OP expertise, far likely to know lots more about diabetes than OP.

For a specific example, here is an interview by OsteoBoston with Dr. Benjamin Leder who is an endocrinologist, researcher, and clinical practitioner in the Boston area. He mentions near the end that his office accepts appointments, but they are booked many months out.

Jump to this post

@kfhoz good information, will check into that. Have not yet found anyone who specifially does or is more concentrated on osteoporosis patients; my endo is who my PC sent me to, my gyne sent me to a rheumatologist my orthopedic doc's (who fixed broken wrist and said bone looked great) practice doesn't treat osteo. I am finding if one asks recommendations from their primary care doctors you will get someone in that doctor's "group" which is perhaps not the best for osteoporosis specifically. A few University hospitals are close to me but haven't researched that enough; one endo recommended for osteo (through doc google) is part of my current doctors group! I am not far from Cleveland Clinic or University of Chicago's bone health center, maybe next step. As posted many times I am just frustrated by the lack of info I get, what little I know about osteoporosis and treatment I have gotten from sites like this, not a doctor. Chronic lifelong problem I would like information - anything, books, websites, ideas for nutrition, supplements, exercise and exactly what, etc. I can't get information in a once a year 20 minute appointment.

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