Hi, jenchavez. I would like to welcome you to Mayo Connect. My own PSC history is what brought me to Connect. After my transplant in 2009, I was looking others who shared my own transplant experience. That is when I discovered Mayo Connect. I enjoy being able to learn from others and to share transplant experiences that we have in common. I am in awe over the amount of caring and support transplant patients offer to each other. I appreciate what you have shared about the PSC Partners. We PSC'ers know what a lonely disease we share.
I am also excited to share the new PSC Pages that the Mayo Experts have recently opened. Have you seen it yet? https://connect.mayoclinic.org/page/psc/

jenchavez, In addition to your group affiliation with the PSC Partners, would you share a little about your own personal connection with PSC? Are you a patient? Cargiver? Family member?...

I look forward to hearing more from you.