Anyone else feel Isolated and not go out due to chronic pain?

@denniesue if you had friends leave you because you are always in pain then they are not true friends. You sure it’s from chronic pain that is chasing them away? Do you sit and whine about your pain? Is that your only topic of conversation? I’m not saying you are saying it. I’m asking if you are. How is your behavior and how are your conversations with them? You may be driving them away without knowing you are. I do my best to not talk about what I’m going through. Just my husband knows. Sometimes they can see I’m really hurting but they do not see me complaining. I do apologize for being slower on my walks. I am working on trying to get better. Things like that I say to them. What happened to me is Covid. I had it bad and for a long time. It put me in a wheelchair for a year. I fought to get out and I got out but, I can’t lose the cane. My legs are still weak. My right one is better. So many things I used to do I cannot due still. I don’t complain. I say sorry guys, I have to pass. The legs aren’t quite like they use to be, yet.
6yrs later and I’m a bit stronger but I’m not 100% and it has destroyed my spine. I’m lucky to be walking now. Anyway. I don’t share unless they ask and how much do they want to know. I will not complain. My husband or grown children see my face and just watch me to make sure I don’t fall. I have a walker with all terrain wheels and it has a seat that I can rest on. It has brakes. I use them so I don’t fall and I lock them on when I’m resting on the seat. I’m still slow in walking and hoping I don’t fall with this apparatus so maybe I can push my legs more. I don’t complain. I do what I can and if I see them stopping waiting for me then I say sorry. The legs are still fighting with me. I’m with you in my head but the legs have the final say. They laugh. I make jokes about my disability. It lightens the mood and I don’t complain. I only complain to my doctors. Sometime I ask for help, that is not complaining. I thank them for their help and keep on moving on. If I can’t, I say have fun guys. This is my limit. Catch y’all later???

Is this what you do or is it all complaining? Did they just leave or did they hear your complaining all the time. Think and maybe change how you interact with them? If they ask you can say not a lot has changed, but I’m doing. Know what I mean? Sometimes I need a bit of help, but for the most part I get it done. I say thanks for asking. I’m doing alright. Still slow but I’m still working on getting a bit faster. How about yourself? Switch it on them. I bet they won’t mind being around you.

I pray for you and I pray your friends want to see you. So sorry for your struggles all around and no support system. I pray all this will change for the better for you. Remember, always be positive to everyone instead of your doctor. Be brutally honest with her/him. 🤪♥️💐

Yes because I am. My life has been stolen from under me and nobody gives a toss. I have "friends." You think any of them check in? Nope. My medical providers have all dismissed my concerns and blown me off. I was literally told by my neurologist to go to the ER if my pain is that bad after I waited a week for him to get back to me about adjusting my medication dose, which he said he won't do. He may also just cut me off of my medication now, even though he had me on it for over 2 years, and I could easily experience withdrawals, but eh- my life doesn't matter I guess. People suck.

Yes, I do. I don't know what to do about it. It concerns me that my state of health is declining...

I have become increasingly more housebound for 25 years - I don't even ride in a car at this point. The isolation is palpable, and I am a person that needs a lot more solitude than most. I feel for those that were active socially but can no longer be active due to illness and pain.

@drmermaidfish1 hi please don't give up fight it with all your mighty you are worth it . I have multiple complex medical issues going back to 1968 when two so called medical professionals injected myodil x-ray medium into my spinal canal and did not aspirate it . I sued Glaxo it led to a global pitiful settlement. I tried to sue our NHS here in UK . And it was blocked by the house of so called lords of the realm . You can imagine what I think of them . I have spent my life fighting pain , and when I caught COVID and had to retire it was like I had fell off the world nobody came near . Six years on I need treatment for my legs so I can walk and I have been told I have to action it and plead for funding as it is not given in my NHS trust area . Yet I worked for 66 years paying for it to central government. I swore at a doctor the other day now they have taken me off their list
I don't care because they misdiagnosed me for 5 years . I say bugger them regards from across the pond graham

@debrap57 I am plagued with Abdominal adhesions as well. They cause pain, nausea, anorexia, migraines and fear of food and activity. I go to a Pelvic physical therapist twice a week who manually loosens them up. I also found that if I use acupressure tools, anything that I can get my hands on I can locate the tightest areas and work them loose. I’ve learned where the worst spots are because they are the most painful when I hit them with my hands or a tool, but the most important thing is Pelvic PT I’m also researching Abdominal Pain BlocK under ultrasound. It’s difficult to find a doctor and I’ve run all over the place trying to find one who treats. ACNES. But in your case, it sounds like you need some serious fascia release. Your primary care doctor or Rheumatologist should be able to write you this prescription. It’s worth the drive to get to a Pelvic PT.
My visits are going to end soon, but I have faith in my box of tools. The skin on my belly has all kinds of marks on it from working on myself, but I do not care only my PT cringes at new ones. It is an uncomfortable experience to be worked on, but between the physical manipulation of opening up the scar tissue and diaphragmatic breathing should give you some relief. Also get yourself hydrophilic pads to put on your belly. I keep them soaking in a bowl of water. The water must be changed daily then I put them in a white Amazon poly bag and microwave them wrap them in towel and place on my belly and my cervical area. It’s good to warm them up, especially if you’re going to work on them yourself that’s what the PT does as well. I’d like to add that after one of my surgeries I was spent over at 90° and couldn’t stand up. I’ve come a long way and adhesions are still the bane of my existence. I’ve had multiple blockages and one adhesion clean out after a blockage, but the most important thing is to get those adhesions to relax and let go wishing you the very, very best. I understand you’re suffering please don’t give up.

Thank you

@resilience this all makes sense. I did try PT but found 2 days later the adhesions were worse. It was as if my torso had locked up . I'm trying another facility that claims they are specifically certified in adhesion release. We'll see. They don't accept insurance so I'll be paying out of pocket. Not sure how long I can afford to do it, but I have to try

@joannef20 Hi, Joanne, I too, do not go out very often, just go to Dr’s appointments. I have Neuropathy in my right arm, along with a torn rotator cuff for the second time, this leaves me with absolutely NO use of this arm, I look to others like I am just fine, I also put on a very happy face when I do go out. I cannot do so many things I want to do. My husband does help me dress, shower, comb my hair, cut my dinner when needed, cooks the meals and he does all the shopping, drives me to all appointments I may have. I am fortunate to have him, I do agree with you about him not understanding how severe the pain be at any given time. We don’t have any children or family close by to help, we do have friends, but, I don’t want to ask for help. My biggest ask would be for all levels of medical care would care more about their patients and try to find the cure for “NO CURE” Diseases, NEUROPATHY, ARTHRITIS, & OSTEOPOROSIS and others and stop giving us medications that cause Dementia!

@debrap57
Exactly how did the first PT treat you?
Were you asked to do exercises? I understand the spasming. It has to be addressed very tenderly and then deeper layers in time. Stretching and strengthening are no no s initially then very gradually.
Open conversations with your therapist are very very important. It really is a yo-yo condition but if you keep going back at least twice a week, you should see improvement. If the first therapist was too aggressive- You must tell that therapist. everybody’s different therapist tend to not understand that it takes a long time to release them. and sometimes they never fully release alobg with the muscle spasm payback. But the PT can release the muscle spasm that was cost. I live in that cycle of release and spasm that’s why insurance is important. I’ve also found dry needling done by a PT helpful, but it didn’t include stretching and strength strengthening. using binders ice heat vibration rest and being careful about using core muscles too much is important. having adhesions for a long time means you are going to be uncomfortable most likely, and it is going to hurt to work on them. Don’t give up.