New colostomy: I'm a little lost and have questions

Posted by dgroves0430 @dgroves0430, Jul 18 9:24pm

So I just got my colostomy, I'm still trying to deal with my feelings about it, but a few of my concerns are i like hot baths and hot tubs, and I really like the idea of scented tablets or spray for my bag. Does anyone have any good suggestions on what to get and where to get these from? I'm a little lost on it. Also I was looking into caps (preferably snap on) for my stoma just to hide it/ be out of the way for intimate activities. So I was hoping someone had advice on that.

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The one thing no one mentioned when I got a colostomy was support. I blame myself for not researching it or ever working with a patient with a colostomy. Support for the actual colostomy bag so you do not get a hernia. I did get a hernia; it isn’t that bad so they will not reduce it as it reduces when I lay down. Two options: a colostomy hernia belt, which are terrible or panties as Comfizz High Waist Ostomy Underwear for Women | Level 1 - Light Support which are great. You can get them through Amazon. I did a lot of research, and these were the favorite of many. You have support and can do away with the belt.

The best deodorizer I have found is Safe n' Simple Assure C - Clear Lubricating Ostomy Pouch Deodorant - Colostomy Bag Odor Eliminator. Also, from Amazon. I have looked to see if Byram Health Supplies has it. Forget Adapt or the other usual ones, they don’t work.
I also use the Safe n' Simple Peri-Stoma Cleanser & Adhesive Remover Wipes from Amazon or Byram.
Hope this helps.

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Profile picture for jtntd @jtntd

The one thing no one mentioned when I got a colostomy was support. I blame myself for not researching it or ever working with a patient with a colostomy. Support for the actual colostomy bag so you do not get a hernia. I did get a hernia; it isn’t that bad so they will not reduce it as it reduces when I lay down. Two options: a colostomy hernia belt, which are terrible or panties as Comfizz High Waist Ostomy Underwear for Women | Level 1 - Light Support which are great. You can get them through Amazon. I did a lot of research, and these were the favorite of many. You have support and can do away with the belt.

The best deodorizer I have found is Safe n' Simple Assure C - Clear Lubricating Ostomy Pouch Deodorant - Colostomy Bag Odor Eliminator. Also, from Amazon. I have looked to see if Byram Health Supplies has it. Forget Adapt or the other usual ones, they don’t work.
I also use the Safe n' Simple Peri-Stoma Cleanser & Adhesive Remover Wipes from Amazon or Byram.
Hope this helps.

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@jtntd Byram has a deodorizer called REVEL. I like it because it seems to be oil
Based and helps with pancaking by allowing output to slide to bottom of bag. Adapt and brava did not work for me. The M3 drops are good for deodorizing. Hope this helps😊

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Profile picture for Susan F, Volunteer Mentor @susanf8

@dgroves0430 I also like hot baths. I don't do anything special with my ostomy - just fill the tub with water and get in. I like to use bubble bath, or bath salts, but be aware that bath oil may compromise the adhesive of you appliance, so you might want to stay away from that (unless you plan to do a change right after of course!). Once you see how your appliance does in a bathtub you'll have more confidence for a hot tub. You might notice some lifting on the edges of your appliance from a prolonged soak, if you do, you can always use tape to "picture frame" the appliance.

Of course wait until your medical team clears you for sitting in water (not usually the best thing to do with new incisions).

What are you after with scented tablets or spray? Do you want to deodorize the contents of your bag, or have something pleasant smelling on the outside? There are a variety of deodorizers on the market, and you can find them at medical supply companies (which is where you would probably be ordering your appliances). Things like Holister M9 drops, Brava Lubricating Deodorant, or Adapt Lubricating Deodorant are options. Another one is to put an Altoid peppermint into your bag (WOCN suggested). If you want something to smell pleasant on the outside I think that some scented spray might work? Or scented powder.

Depending on what brand you have, there should be a stoma cap that works with your appliance, and again, you can order these where you order your appliances. There are also wraps that cover the bag, if that is a preference. Ostomysecrets have intimacy wraps, and you can find these at a variety of places (including Etsy).

What other concerns do you have?

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@susanf8 what I use to cover the bag is called a stomacloak. They come n different sizes, depending on type of bag. They are somewhat expensive, but they can be washed. They are leak proof so it provides peace-of-mind when out and about.

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Profile picture for jtntd @jtntd

@pez01
Thank you I hadn't heard of skin tacs. I'm allergic to adhesive. I don't use the skin barrier but need to use a ring as the area around the stoma has a couple of divots.

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@jtntd Torbot Skintac is an adhesive. It's been around a long time. If you try it, It's a good idea to do a patch test before you use it under your appliance, since you know you have allergies to adhesive.

You can use various different products to fill divots, including things that come in the form of pastes, and rings, strips or half circles. Sometimes people call these skin barriers, which is confusing.

Have you had a follow-up visit with a WOCN? This can be very helpful, particularly if you have allergies, as they have knowledge of various different products.

Something a lot of people have success with is Eakin's Seal. Have you heard of it or tried it?

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A short note about the precut hole in the flanges/barriers. I'm at almost 3 years post loop colostomy and my stoma has not stopped changing size yet.

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Profile picture for jtntd @jtntd

@pez01
Thank you I hadn't heard of skin tacs. I'm allergic to adhesive. I don't use the skin barrier but need to use a ring as the area around the stoma has a couple of divots.

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@jtntd
I also have a colostoy, and dealing with skin irritation. I am curuious, how do you secure your pouch if you don't use a skin barrier.

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Profile picture for claudiod @claudiod

@jtntd
I also have a colostoy, and dealing with skin irritation. I am curuious, how do you secure your pouch if you don't use a skin barrier.

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@claudiod I think the confusion is that skin barrier is used to mean multiple different things. The part that you stick onto your abdomen, that the bag attaches to could be called a skin barrier but it's more often called a wafer, or base plate.

Skin barrier can mean a wipe that is used to put down a thin film. It can mean something like Eakin Seal, or Coloplast Brava ring or some other sticky things that are more like putty.

Has your skin irritation gotten any better? Have you been able to get into a WOCN?

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Profile picture for Susan F, Volunteer Mentor @susanf8

@claudiod I think the confusion is that skin barrier is used to mean multiple different things. The part that you stick onto your abdomen, that the bag attaches to could be called a skin barrier but it's more often called a wafer, or base plate.

Skin barrier can mean a wipe that is used to put down a thin film. It can mean something like Eakin Seal, or Coloplast Brava ring or some other sticky things that are more like putty.

Has your skin irritation gotten any better? Have you been able to get into a WOCN?

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@susanf8
Hi Susan,
Yes, have been in contact with a WOCN, and we are trying different pouches. Right now, for the first time, I put a protective sheet and then applied the pouch on top of it, and it is making a big difference. I think that my skin irritation is a reaction to the wafer's adhesive.

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Profile picture for claudiod @claudiod

@jtntd
I also have a colostoy, and dealing with skin irritation. I am curuious, how do you secure your pouch if you don't use a skin barrier.

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@claudiod I never use a skin barrier. I use Coloplast one piece closed end pouches. Coloplast has a skin barrier built in to their base plates and I was told this by the nurse who was attending to me at the time. When I do go out I use atac which I feel is better than skin barriers I never have had a problem with poches not sticking and I have not had anys kin problems. Sometimes less is better since adhesives can irritate your skin

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that was skin tac sorry for typo

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