New colostomy: I'm a little lost and have questions

Posted by dgroves0430 @dgroves0430, Jul 18 9:24pm

So I just got my colostomy, I'm still trying to deal with my feelings about it, but a few of my concerns are i like hot baths and hot tubs, and I really like the idea of scented tablets or spray for my bag. Does anyone have any good suggestions on what to get and where to get these from? I'm a little lost on it. Also I was looking into caps (preferably snap on) for my stoma just to hide it/ be out of the way for intimate activities. So I was hoping someone had advice on that.

Interested in more discussions like this? Go to the Ostomy & J-Pouch Support Group.

Profile picture for jtntd @jtntd

The one thing no one mentioned when I got a colostomy was support. I blame myself for not researching it or ever working with a patient with a colostomy. Support for the actual colostomy bag so you do not get a hernia. I did get a hernia; it isn’t that bad so they will not reduce it as it reduces when I lay down. Two options: a colostomy hernia belt, which are terrible or panties as Comfizz High Waist Ostomy Underwear for Women | Level 1 - Light Support which are great. You can get them through Amazon. I did a lot of research, and these were the favorite of many. You have support and can do away with the belt.

The best deodorizer I have found is Safe n' Simple Assure C - Clear Lubricating Ostomy Pouch Deodorant - Colostomy Bag Odor Eliminator. Also, from Amazon. I have looked to see if Byram Health Supplies has it. Forget Adapt or the other usual ones, they don’t work.
I also use the Safe n' Simple Peri-Stoma Cleanser & Adhesive Remover Wipes from Amazon or Byram.
Hope this helps.

Jump to this post

@jtntd have used skimp skamp briefs which have a stretch to them for over two years now and they work well at keeping ostomy bag stable

REPLY
Profile picture for browndognotnow @browndognotnow

@jtntd Byram has a deodorizer called REVEL. I like it because it seems to be oil
Based and helps with pancaking by allowing output to slide to bottom of bag. Adapt and brava did not work for me. The M3 drops are good for deodorizing. Hope this helps😊

Jump to this post

@browndognotnow
I'm glad you found something that works for you. I've tried everyone you mentioned and none of them helped with the odor. For me the only one that stops the odor is Safe n' Simple Assure C.

REPLY
Profile picture for Susan F, Volunteer Mentor @susanf8

@jtntd Torbot Skintac is an adhesive. It's been around a long time. If you try it, It's a good idea to do a patch test before you use it under your appliance, since you know you have allergies to adhesive.

You can use various different products to fill divots, including things that come in the form of pastes, and rings, strips or half circles. Sometimes people call these skin barriers, which is confusing.

Have you had a follow-up visit with a WOCN? This can be very helpful, particularly if you have allergies, as they have knowledge of various different products.

Something a lot of people have success with is Eakin's Seal. Have you heard of it or tried it?

Jump to this post

@susanf8
Thank you I've had several follow-up visit with a WOCN. They all agreed they hadn't seen anything as bad as my skin's reaction to adhesive. I do use a ring. I don't use stoma powder or the ring barrier as they make it worse as do the half circles. I'm very careful as to what I use and always do patch tests. Thank you for the info.

REPLY
Profile picture for claudiod @claudiod

@jtntd
I also have a colostoy, and dealing with skin irritation. I am curuious, how do you secure your pouch if you don't use a skin barrier.

Jump to this post

@claudiod
I use the Coloplast Brava Protection shield ring due to the divots in my skin. I use Coloplast SenSur Mio Convex Soft MAXI Drainable Pouch/bag. It's the adhesive on the pouch/bag that I'm allergic to. I've tried many different bags and this is the only one my skin reacts to the least.

REPLY
Profile picture for pez01 @pez01

@jtntd have used skimp skamp briefs which have a stretch to them for over two years now and they work well at keeping ostomy bag stable

Jump to this post

@pez01
I haven't used those. I'm glad they work for you. I use the high wasted ostomy panties as they do keep the bag stable and provide the support for the hernia.

REPLY
Profile picture for jtntd @jtntd

@claudiod
I use the Coloplast Brava Protection shield ring due to the divots in my skin. I use Coloplast SenSur Mio Convex Soft MAXI Drainable Pouch/bag. It's the adhesive on the pouch/bag that I'm allergic to. I've tried many different bags and this is the only one my skin reacts to the least.

Jump to this post

@jtntd
Thank you for the information. I will give it a try. It also seems that I am reacting to the adhesive

REPLY
Profile picture for claudiod @claudiod

@jtntd
Thank you for the information. I will give it a try. It also seems that I am reacting to the adhesive

Jump to this post

@claudiod
You're welcome. The WOCNs were great in giving me different samples to try and great suggestions. Good luck.

REPLY
Profile picture for calinski420 @calinski420

New to ostmy. Surgery 7-1. Mine 8s quite large. I'm being told that it's swollen and it takes a good bit before it goes down. Hav8ng trouble changing the bag because of it. Do you all change the bag yourself without any help?

Jump to this post

@calinski420 I have been fortunate that my husband changes my bag for me. But I do know I have to learn to do it myself, just trying to work up the nerve.
Have had a series of problems with it and we are still trying to see what works best for me

REPLY

Never a dull moment. I have one issue that is happening with both the Hollister and Cololast brand and is pancaking. I am putting lubricant but still happens. Any tricks that anybody knows on how to solve this?

REPLY
Please sign in or register to post a reply.