New colostomy: I'm a little lost and have questions
So I just got my colostomy, I'm still trying to deal with my feelings about it, but a few of my concerns are i like hot baths and hot tubs, and I really like the idea of scented tablets or spray for my bag. Does anyone have any good suggestions on what to get and where to get these from? I'm a little lost on it. Also I was looking into caps (preferably snap on) for my stoma just to hide it/ be out of the way for intimate activities. So I was hoping someone had advice on that.
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The one thing no one mentioned when I got a colostomy was support. I blame myself for not researching it or ever working with a patient with a colostomy. Support for the actual colostomy bag so you do not get a hernia. I did get a hernia; it isn’t that bad so they will not reduce it as it reduces when I lay down. Two options: a colostomy hernia belt, which are terrible or panties as Comfizz High Waist Ostomy Underwear for Women | Level 1 - Light Support which are great. You can get them through Amazon. I did a lot of research, and these were the favorite of many. You have support and can do away with the belt.
The best deodorizer I have found is Safe n' Simple Assure C - Clear Lubricating Ostomy Pouch Deodorant - Colostomy Bag Odor Eliminator. Also, from Amazon. I have looked to see if Byram Health Supplies has it. Forget Adapt or the other usual ones, they don’t work.
I also use the Safe n' Simple Peri-Stoma Cleanser & Adhesive Remover Wipes from Amazon or Byram.
Hope this helps.
@jtntd Byram has a deodorizer called REVEL. I like it because it seems to be oil
Based and helps with pancaking by allowing output to slide to bottom of bag. Adapt and brava did not work for me. The M3 drops are good for deodorizing. Hope this helps😊
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1 Reaction@susanf8 what I use to cover the bag is called a stomacloak. They come n different sizes, depending on type of bag. They are somewhat expensive, but they can be washed. They are leak proof so it provides peace-of-mind when out and about.
@jtntd Torbot Skintac is an adhesive. It's been around a long time. If you try it, It's a good idea to do a patch test before you use it under your appliance, since you know you have allergies to adhesive.
You can use various different products to fill divots, including things that come in the form of pastes, and rings, strips or half circles. Sometimes people call these skin barriers, which is confusing.
Have you had a follow-up visit with a WOCN? This can be very helpful, particularly if you have allergies, as they have knowledge of various different products.
Something a lot of people have success with is Eakin's Seal. Have you heard of it or tried it?
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1 ReactionA short note about the precut hole in the flanges/barriers. I'm at almost 3 years post loop colostomy and my stoma has not stopped changing size yet.
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1 Reaction@jtntd
I also have a colostoy, and dealing with skin irritation. I am curuious, how do you secure your pouch if you don't use a skin barrier.
@claudiod I think the confusion is that skin barrier is used to mean multiple different things. The part that you stick onto your abdomen, that the bag attaches to could be called a skin barrier but it's more often called a wafer, or base plate.
Skin barrier can mean a wipe that is used to put down a thin film. It can mean something like Eakin Seal, or Coloplast Brava ring or some other sticky things that are more like putty.
Has your skin irritation gotten any better? Have you been able to get into a WOCN?
@susanf8
Hi Susan,
Yes, have been in contact with a WOCN, and we are trying different pouches. Right now, for the first time, I put a protective sheet and then applied the pouch on top of it, and it is making a big difference. I think that my skin irritation is a reaction to the wafer's adhesive.
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1 Reaction@claudiod I never use a skin barrier. I use Coloplast one piece closed end pouches. Coloplast has a skin barrier built in to their base plates and I was told this by the nurse who was attending to me at the time. When I do go out I use atac which I feel is better than skin barriers I never have had a problem with poches not sticking and I have not had anys kin problems. Sometimes less is better since adhesives can irritate your skin
that was skin tac sorry for typo