Unexplained GI distress and abdominal pain

Posted by medicalunicorn @medicalunicorn, Jul 23 8:08am

Hi all,

I'm writing because I'm out of ideas and would like some help. In the past two-ish years, I've struggled with abdominal pain. After three ER visits, a same day, and a follow up, I'm not sure what to do. When I went in to see an internal medicine specialist for a follow up (my PCP was booked), she told me that my bowels sound like an 80 year olds (Im 32). I drink 100+ oz of water a day, when I take fiber supplements it makes the constipation way worse, I take 2 caps of miralax daily (it doesnt always help). Ive had 2 CT scans, ultrasoumds, xrays, an endoscopy, HIDA scans, pelvic floor dysfunction testing, endoscopy, and colonoscopies ×2.

For the past few weeks I've had blood with every stool. I've tried to manage hemorrhoids, but short of having watery stools I don't know what to do. I have many medical diagnoses that complicate this issue. I've posted here instead of GI because Im partly convinced that i have an undiagnosed autoimmune disease that I haven't seen.

My diagnoses: Charcot-Marie-Tooth type 1c/peripheral neuropathy, Fibromyalgia, chronic fatigue, Mast Cell Activation Syndrome, POTS/autonomic neuropathy, Endometriosis, Hypothyroidism, Ehlers-Danlos Syndrome (hEDS), pelvic floor dysfunction, anxiety, depression, adhd, ptsd, sleep apnea, low libido, nightmares, periodic leg movement disorder, chronic constipation, hemorrhoids (due to constipation), TBI x 2 in last 15 years,

The constipation started in 2013 when I turned 20 and has been chronic since. Upping my levothyroxine tended to help the constipation slighly, but i still feel exhausted a lot.

Any help, advice, or recommendations are highly appreciated. I'm sick of feeling full of shit, literally.

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

Honestly it certainly does sound like an autoimmune disease.
I’m sorry you are having so much trouble.
Sounds like you have gone down all the right paths.
Keep researching don’t give up !
That’s what I am doing 😀

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