Dizziness

Thanks ejbb. I experienced brain damage from a hard fall. I've had a brain MRI, CT scans and VNG testing. I've had extensive ENT testing by Neuro ENT MDs using the most up-to-date revolving chair out there plus multiple eye movement examinations. Been seen by Neuro Opthomologists and Concussion specialist MDs. Have been seen by two of the countries leading experts in this field....Dr. Janet Rucker from NYU Langone and Dr. Joanna Jen from Mt. Sinai as well as many others. Am told that my condition is NOT an inner ear or ear crystal issue. Just brain damage. No real progress after 6 years. Simply continually dizzy with brain fog, imbalance and disorientation. Most disheartening.

Sounds like vertigo and it has a variety of causes, including viruses. A bad episode can find you on the floor so you should ask your primary care doctor to evaluate your symptoms. My vertigo started with an inner ear virus and left me with tinnitus and vertigo. But you should get checked by your doctor. No real cures but just knowing will allow you to live with it and be careful of a fall. Good luck to you and hope yours lessens in frequency or goes away altogether.

For me it isn’t dizziness, but more an increased lack of balance.

Dear Frank.
Frankly* me too. I can sit and eat dinner, or watch TV with no dizziness.
Walking is an increasing challenge-- even with my two-wheal and two-post walker.
*Sorry--I can't avoid puns.
Chris

@fobarrett I hear you. I have bad balance issues. Dizziness is not a problem. I suppose it's part of this neuropathy thing. Oh, boy!

@ejbb
I have recently been diagnosed with a condition called PPPD.
(Persistent Postural Perceptual Dizziness.)
It's a relatively new diagnosis, and there's no simple test for it.
Hope you feel better soon.

@joybo99 Oh, that's so unfortunate. May I please ask if your dizziness and imbalance started with an inner ear condition and did you feel as though your head was congested? I don't have vertigo but terrible imbalance and it comes and goes. I was treated by an ENT with steroid injections in my ear and now using a nasal spray bottle with saline solution and liquid steroids for nasal passages and head fullness. Seems to help a bit but still have daily bouts of unsteadiness to the point I am fearful driving anywhere by myself. I am an independent person so this is clearly affecting me big time though I try to stay positive to believe that it will pass in time. Just curious if you presented with the same type issues when this diagnosis was given to you. Thank you!

MS lesion and vision problems contribute to my PPPD which started >20 yrs ago. I quit driving ( I was already on disability from my primary diagnosis.)
I've been recommending this book. Best wishes!
https://a.co/d/0ch2JPsS

I also have balance issues. I have to concentrate all my senses when I walk because I constantly feel as if I am going to fall. I notice that I also have significant nasal issues. I wake up about 2-3 hours after falling asleep and find it very difficult to breathe through my nose. This is after giving myself two squirts of fluticasone propionate in each nostril. I have irrigate my sinuses with one of those Navage-like contraptions. It has had little effect until last night when I noticed small globs of yellowish mucous being expelled after a session with the Navage thing. I am wondering if this snot is an indication of a sinus infection, and is it possibly related to my poor balance? Oh. I'm 78 and supposedly have neuropathy. I'd like to hear some of your experiences and thoughts before I hear out to the ENT office here in Dover, DE

@joybo99 I too have pppd for 4 years now. It's always present when I'm on my feet. It has really changed my life and I've become more isolated. An ENT diagnosed me but most other specialists aren't even familiar with it and not. sure how to treat it.