Muscle recovery time post 12 months ADT

Posted by geneva26 @geneva26, Jul 23 8:39am

I am currently on my 10 month of Orgovyx and have noticed a significant reduction in the circumference of my arms and legs plus noticeable amount of wrinkled skin. I do resistance training 3 times a week and have been able to maintain the status quo. Has anyone else experienced this? Any idea how long if ever the wrinkles may be less noticeable? I am 77.

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Profile picture for bikeman1 @bikeman1

@surftohealth88
Hi Mrs. Surf, It's funny that Mr. Surf is starting radiation just as I am finishing my course (this Friday).
So far it has been fine...the only challenge is the "full bladder/empty rectum" regime that is required. Once or twice I almost jumped off the table when the zapping was done to find a bathroom.
My appointments are first thing in the morning, so no exercise for me until after the treatment. And like others, I can't imagine doing exercise with a full bladder.
After treatment, I jump on my bike and it almost immediately helps with the pressure I feel in my head most mornings, which is moderating over time. This is a new side effect that my doctors havent sen before but believe it is a reaction to the big change in hormones going on in my body (I am on the patch and Zytiga/prednisone and my T went from 350 to <3 in a month). After the bike ride I go to the gym and lift weights following my standard routine, but I think I will check out some of these resources for exercising while on ADT, as I have definitely gained weight and it sure isn't muscle. 🙂
Hope Mr. Surf continues to have smooth sailing with the RT!

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@bikeman1

Heyyyyy 😃 - so nice to hear from you (always). I do not want to bother you with sharing updates since I know how chaotic life is with treatment timing and all, so thank you so much for stopping by , it is very much appreciated <3 ! : )))
I am so glad to hear that you are done with all of this and that you have no RT side effects , that is just wonderful ! That is fantastic that you were able to maintain your favorite bike-riding and gym exercises : ))) Yes, sometimes we need some "tweaking" in exercise routine or our daily meal planning to reach the goal. Regarding "head pressure" , you know many females have that feeling not only in menopause but also during any hormonal fluctuations, so it is most definitely in connection to estrogen patch IMHO. Head pressure, head ache and migraines are classical symptoms that we females endure in response to monthly estrogen fluctuations and during and even after menopause. Since you have steady deployment of that hormone I really hope (and it is great possibility) that your body will get used to it and stop reacting 🍀 : ).
How is you uPSA ? Did it become undetectable as fast as T went down : ))) ! I am sure it did ! : )))

I hope that you will have big celebration Friday !!! 💃🕺 And please stop by again : ))) <3 !
Wishing you all the best always ! : )))

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Profile picture for surftohealth88 @surftohealth88

@bikeman1

Heyyyyy 😃 - so nice to hear from you (always). I do not want to bother you with sharing updates since I know how chaotic life is with treatment timing and all, so thank you so much for stopping by , it is very much appreciated <3 ! : )))
I am so glad to hear that you are done with all of this and that you have no RT side effects , that is just wonderful ! That is fantastic that you were able to maintain your favorite bike-riding and gym exercises : ))) Yes, sometimes we need some "tweaking" in exercise routine or our daily meal planning to reach the goal. Regarding "head pressure" , you know many females have that feeling not only in menopause but also during any hormonal fluctuations, so it is most definitely in connection to estrogen patch IMHO. Head pressure, head ache and migraines are classical symptoms that we females endure in response to monthly estrogen fluctuations and during and even after menopause. Since you have steady deployment of that hormone I really hope (and it is great possibility) that your body will get used to it and stop reacting 🍀 : ).
How is you uPSA ? Did it become undetectable as fast as T went down : ))) ! I am sure it did ! : )))

I hope that you will have big celebration Friday !!! 💃🕺 And please stop by again : ))) <3 !
Wishing you all the best always ! : )))

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@surftohealth88
Mrs. Surf, as always I love getting your insights and words of encouragement; it is definitely not a bother to join these discussions.
You have come up with the best explanation for my symptoms so far, which has stumped my doctors. And, although it is too early to declare victory, I think you are right that my body will/is getting used to the hormonal changes, as the last few days the pressure in my head has been less severe.
The good news is, yes, my uPSA has become undetectable as well: <0.006.
Tomorrow I will celebrate by having a big pastrami sandwich for lunch with my son and daughter in law and go out for dinner with others in my family (steak?). Just going a little crazy celebrating for a day!!
All the best to you and Mr. Surf!!

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Profile picture for bikeman1 @bikeman1

@surftohealth88
Mrs. Surf, as always I love getting your insights and words of encouragement; it is definitely not a bother to join these discussions.
You have come up with the best explanation for my symptoms so far, which has stumped my doctors. And, although it is too early to declare victory, I think you are right that my body will/is getting used to the hormonal changes, as the last few days the pressure in my head has been less severe.
The good news is, yes, my uPSA has become undetectable as well: <0.006.
Tomorrow I will celebrate by having a big pastrami sandwich for lunch with my son and daughter in law and go out for dinner with others in my family (steak?). Just going a little crazy celebrating for a day!!
All the best to you and Mr. Surf!!

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@bikeman1

Yeayyyy for <0.006 😍, it is amazing to see that number, isn't it lol !? I know that as long as ADT is involved we have no idea what is actually going on but hey - every small victory is a victory ! : )
I will pretend that I did not read some "words" in the last sentence ahahaaaa ; ), but enjoy your day full blast : ))) !

All the best to you too : )))) and may the next week be beginning of the next 50 years of PC free
life for you 👍 !!!

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Profile picture for carlsbadguy @carlsbadguy

@surftohealth88

Hard to imagine that he was doing any type of consistent resistance training. I have also lost a bit of weight since I started Orgovyx 34 days ago, I was concerned it was all muscle mass, but my wife reminded me how many fewer calories I am consuming every day, and how much more I am exercising. On Friday I'm having CMP, PSA and Testosterone blood work done, so I'll see how the ADT has affected my blood. I've gotten plenty of nutritional info from my cancer team, but zero real exercise guidance. This is something that I feel is glaringly lacking from the medical oncologists who prescribe ADT.

I had my consult yesterday with the Doctor who will be placing the SpaceOAR and fiducial markers next week, followed the next day by my sim. Great doctor and nurses, high volume with this procedure, been doing it for 10 years, explained the entire procedure in detail, with visual aids :-). I'm not looking forward to it, but will be happy to have it done and over with. I'm due to start 28 fractions of proton radiation 2 weeks later.

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@carlsbadguy To my knowledge and experience do strength training as you can. I suggest getting after it in case you have radiation side effects near the end of your radiation journey. I rode my mountain bike throughout radiation and post radiation but did do a slow downward grind near the end of my 25 sessions. ADT knocked a little wind out of my sails but made sure to get out even if for 5-6 miles at a lower heartrate. Had to will myself out of the easy chair to go and was always rewarded by feeling better for a few hours. Good luck and lay still lol!

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Profile picture for chippydoo @chippydoo

@carlsbadguy To my knowledge and experience do strength training as you can. I suggest getting after it in case you have radiation side effects near the end of your radiation journey. I rode my mountain bike throughout radiation and post radiation but did do a slow downward grind near the end of my 25 sessions. ADT knocked a little wind out of my sails but made sure to get out even if for 5-6 miles at a lower heartrate. Had to will myself out of the easy chair to go and was always rewarded by feeling better for a few hours. Good luck and lay still lol!

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@chippydoo Thanks you, you may have missed some of my earlier posts. When I started ADT I started heavy resistance training 2-3 days a week, and 30-45 minutes of cardio (not running though) on the days I don't do resistance. I also do impact loading work every day. So I'm getting after it as best I can. I'm Gleason 8 with cribriform and IDC-P, so I have to work every day to the best of my ability to fight this disease, and that includes during the 5.5 weeks of radiation. I want to dance at my 2 grand children's weddings, which means I need to hang on for another 12-15 years minimum.

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Profile picture for Miggie @miggie

@carlsbadguy
My friend is also having the SpaceOAR procedure done next week. Then is suppose to start radiation treatments in a couple of weeks. Trying to get him to introduce more protein into his diet. His sister has been taking him to the Dr and have not heard anything about exercise. I can’t imagine how at times how overwhelming this all can be. I wish you well with everything. If you feel like sharing on your journey look forward to hearing back from you.

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@miggie

Hi Miggie, sorry I lost your post in all of the traffic on this thread. I'm not sure how close of a friend you are talking about, and how close you are to his sister. Proper nutrition and daily exercise, specifically resistance, impact loading as well as cardio exercises have proven to be very valuable tools for fighting not just the cancer, but the side effects of the treatments, some of which can be as brutal as the cancer itself. I would encourage you to encourage your friend, or his sister to come to this forum and read the posts from actual prostate cancer patients of all ages, some with new diagnoses like myself and others who have been fighting this disease for 16 years like @jeffmark all with many different grades of the same cancer, the different treatment options, their different journeys, outcomes, test scores, PSA levels, testosterone levels.... You get the picture, if you were my friend I would welcome your guidance to this forum.

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Profile picture for carlsbadguy @carlsbadguy

@miggie

Hi Miggie, sorry I lost your post in all of the traffic on this thread. I'm not sure how close of a friend you are talking about, and how close you are to his sister. Proper nutrition and daily exercise, specifically resistance, impact loading as well as cardio exercises have proven to be very valuable tools for fighting not just the cancer, but the side effects of the treatments, some of which can be as brutal as the cancer itself. I would encourage you to encourage your friend, or his sister to come to this forum and read the posts from actual prostate cancer patients of all ages, some with new diagnoses like myself and others who have been fighting this disease for 16 years like @jeffmark all with many different grades of the same cancer, the different treatment options, their different journeys, outcomes, test scores, PSA levels, testosterone levels.... You get the picture, if you were my friend I would welcome your guidance to this forum.

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@carlsbadguy
I so agree with everything you suggested. His head is stuck into YouTube. I know of his sister. His diet is not the best and he walks. He knows I am on Mayo’s site. I am just a friend that person he can vent to. Not the girl next door. I tried to get him to get online here instead of YouTube. You and I both know he needs to change some things but it has to be him. From food to exercise and getting enough protein.
I get lost sometimes I am new to this I have only been here maybe a month or so. He ignored this for 6 months. I begged him to tell his sister and finally he shared with her what was going on. I so appreciate your kind words thank you. Keep me posted how you are doing.

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