Any hopeful stage 4 storries

I wanted to start a thread about stage 4 pc.
How long have you had stage 4? And did you start off with that diagnosis or did it get to that later?
(My husband was diagnosed early 2025 with stage 4 and back then stats said 30% make it 5 years)
Just reply with how long you've had stage 4.
Thanks

Hello...stage 4, GS8, 4+4 here. 3 days in ICU with large blood clot Aug 2025. Left with a bottle of Eliquis and a PSA of 66. Appt with urologist a week later, DRE (hard lump, first time I heard "cancer") biopsy In Sept, 14 of 14 cores positive, cribriform present in all cores. Appt with radiation oncologist, appt with medical oncologist. Petscan October of 2025, prostate, lymph nodes, one suspicious bone spot. Spent the next few months educating myself, started ADT (Orgovyx and Zytiga with prednisone) Feb of 26. Switched Zytiga to Nubeqa June of 26. PSA is now 0.13, T is 6. 2nd pet scan May of 26 showed improvement. No radiation, no surgery. Dr says Pluvicto is in my future perhaps in 1 or 2 years or whenever the ADT quits working. Take your time, read all you can, ask questions here (and on other forums). Remember that each prostate cancer patient represents tens of thousands of dollars to the medical business model. You will have to advocate for yourself....you are in charge of your treatment. Quality of life is the driving factor for me, I am taking a conservative approach to my own treatment, at 72yo less stress is best, lol. Please know that you are not alone, we are all finding our way thru this complicated, confusing situation, educating yourself is the the first thing to do......thanks for reading my post, I will be reading yours!

Hey
my husband was diagnosed stage 4 a year and a half ago and each test got worse and worse. First he just went to the dr because he peed often, thought it was just an enlarged prostate and getting older (55) and the dr agreed but did a PSA test just in case, it came back almost 300! CANCER! then he got a pelvic CT that showed it outside prostate, then urologist told us it's stage 4 and wanted to biopsy, gleason showed almost all 8 and 9s, then oncology wanted a PSMA scan and that showed it ALL over his body, not only prostate and that area but lungs, lymph nodes and bones! 30% make it 5 years with that diagnosis!
They started him in Firmagon right away (and meanwhile he googled everything and stuffed his face with lots of supplements like Ivermectin and Fenbentosol and more) well that wrecked his liver to the point of blood work showed liver failure! he felt fine and looked fine, but he quit the supplements and his liver returned to normal then they started him on zytiga and prednisone and over the summer he did docetaxel chemo! the PSMA in the fall, after the chemo showed great improvement and the most recent one this spring showed more improvement (not much compared to 6 months ago but still better)
He still gets his firmagon injections every month (didn't want to switch to Lupron) and takes his zytiga pills etc daily. He's always worked out- lifted weights and continue that, he's also eating pretty perfectly and does stuff around the house to keep busy.
Of course there's no sex life and he has hot flashes and night sweats, but so do I (48) so we got a bed jet recently and he's helped with night sweats but he still doesn't sleep well at all. I guess without testosterone you don't sleep well.... his PSA is 0.05 so that's good, though every month we're nervous because they initially guessed that ADT would work for 18months and then PSA would start going up again.
we'll see
It sucks and it's depressing! Some says I cry over it, some days I'm mad, some days I fret becoming a widow, some days he wants to end it so I can move on with my life and find someone else! It sucks!

Dx PCa 5/9/25 via biopsy
Dx mCSPC stage IVB via PSMA PET 6/6/25
Dx mCRPC 4/1/26

Still waiting for an undetectable PSA but I don't think that's in the cards.

I have been stage four since 2018, PSA is <0.1, am on lupron shots and xtandi pills.

I was diagnosed with de-novo stage 4 oligometastatic in October 2021. Currently N.E.D. (no evidence of disease, PSA < 0.01). I'm on long-term Orgoxyx and Apalutamide.

Some of those stats your husband's doctor cited are for people diagnosed well over 10 years ago, before current treatments were in widespread use, but it's all they have available. We're creating the new stats now.

Yes I feel for you but no worries
I had Gleason scores at 10
I have stage 4 prostate cancer to the bone
Going on 7 years
Been on xtandi for the whole time with a androgen therapy
Now going to radiation therapy for removing a few buggers that got out and caused some trouble but fixable.
Walk walk walk walk keep your strength up and never surrender
Free your mind change your focus

I was diagnosed with stage 4 in Nov 2021.

I was then put on hormone therapy. Side effects are mild. In 2023 I moved to another state (I had a moving company move the big stuff).

Despite being warned not to buy a two-story house at my age, I go up & down the stairs so many times a day that I don't count.

I'm living a normal healthy life five years later at 81. I mow my own lawn & walk 1.5 miles a day when the weather permits.

@james4511
Check out this recommendation

Running and prostate cancer
https://pmc.ncbi.nlm.nih.gov/articles/PMC12535562/
https://bioengineer.org/exercise-conditioned-serum-inhibits-prostate-cancer-growth/

I became stage four about six years ago, 10 years after my prostatectomy. I do have a genetic problem of BRCA2, which is why I got it at 62. That’s along with the fact that my father died at prostate cancer at 88 and that more than double my chance of getting it.

After 16 years, I’ve been undetectable for the last 33 months.