Husband has forgotten my name
We are on year 3 and this has been really hard first with the diagnosis after a year of analysis, then getting in high gear to understand the reality, then trying EVERYTHING to change the diagnosis or at least slow it down. Today my husband asked me what my name was..my insides and heart fell apart in secret as I calmly told him and repeated it throughout the day. I am not sure I am going to able to do this😭. And I don’t really know where to go from here as it all seems so useless and the fact that I am really going to lose the rest of the man I love dearly is just unbearable. I know you have all been here, I am just venting what I lied to myself over the last three years. No one is coming to save either of us.
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@fred1
You are wise and I hope the people who read your post can adapt as you did. Your words are 100% correct.
@timber2026 the fact that he refers to his "darling wife" shows the love he has for you, even if he can no longer connect your face with that "darling wife" of 52 years. It's charming that in all of his brain chaos, he remembers having a "darling wife." Somehow in all of this we have to just find perspective, and tune into the good in all this confusing bad. I marvel over how forgetful they are, the quirky things they do, often detached from us all, and then there's this "awakening" where my own husband said a month ago that he is my care partner. One minute, he can't remember, then shows up today, with a container of cut up pineapple and three lemons, telling me, as my care partner, he knows what's best for me and my GI stomach issues. My takeaway: tune into the good whenever we can. I have a care partner and you - regardless of whether he recognizes you are not - are his "darling wife." Best, Karla
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1 Reaction@tsch
My last sentence should have been you cannot make sense of something that in itself does not make sense.
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2 Reactions@kjc48 Oh Karla, your message made me cry with happiness for both us. Thank you ❤️
Karla
That is really sad and I’m so sorry. Don’t you have any friends or family who could pitch in? It’s very hard to do it all alone.
I’m at the point where I can chat somewhat with a few of my children but don’t want to scare them or burden too much.
I have a therapist that I can talk to every 3 weeks. I’m not at the point where he has forgotten my name, tho he has forgotten a lot of people, and constantly repeats stories and asks a lot of questions over and over, and misplaces everything. The short term memory is seconds now.
I am not looking forward to the future. I’ve been dealing with this for 4 years tho I think the condition started going downhill 7 years ago.
You need someone to help you a little with your husband. It is very hard to wat the ones we loved for 30 plus years become someone we don’t recognize. Please continue to stay here.
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1 Reaction@timber2026 Thank you for thanking me. We're all in this together. Ps, at dinner tonight, my care partner asked me if I ate the pineapple he got me for my stomach. And he's the one with MCI. We never know........what's next.
Best, Karla
@kjc48 ❤️❤️❤️❤️❤️❤️