Husband has forgotten my name

Posted by boppi @boppi, Jul 26 9:30pm

We are on year 3 and this has been really hard first with the diagnosis after a year of analysis, then getting in high gear to understand the reality, then trying EVERYTHING to change the diagnosis or at least slow it down. Today my husband asked me what my name was..my insides and heart fell apart in secret as I calmly told him and repeated it throughout the day. I am not sure I am going to able to do this😭. And I don’t really know where to go from here as it all seems so useless and the fact that I am really going to lose the rest of the man I love dearly is just unbearable. I know you have all been here, I am just venting what I lied to myself over the last three years. No one is coming to save either of us.

Interested in more discussions like this? Go to the Caregivers: Mild Cognitive Impairment (MCI) & Dementia Support Group.

Profile picture for Fred @fred1

boppi, there is no one who can "save" you. However, there are many who can assist and guide you, through this extremely rough patch. You've done the right thing by sharing your situation on this site. There are so many who post here on a daily basis, who are currently in the same situation as you, and they all have experience, some many years, that is shared with those in need of advice. You may also want to contact the Alzheimer's Association, speak to one of their agents, get their hot line number and use their wealth of experience to help guide you. Please, do not feel that you are alone, we are all, either currently going through the same life changing events, or have been there in the recent past. You arre not losing the man you love, you are moving into a new phase of how you will express your love for him. And please, show him as much love and attention, as you can muster, He needs it and you will benefit from the results. as well. Although it may be somewhat repetitious to those who come here regularly, but I have to tell you what I did when my wife did not recognize me, which was frequently. I would just accept the fact, and play whatever role I was assigned. If she called me "dad" I became dad as long as necessary. Don't attempt to force him to recognize you as who you actually are, it won't work, and may cause him to be upset, as well as upsetting yourself. Be strong, talk to family & friends, contact a local agency that may be able to direct you to support groups nearby. Don't lose faith, he's still in there, just depending on you, now probably more than ever.
Best to you and the man you love so much. Take care of yourself, so that you can take care of him.

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@fred1
You are wise and I hope the people who read your post can adapt as you did. Your words are 100% correct.

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Profile picture for timber2026 @timber2026

My husband with PD and LBD has forgotten my name. He doesn't recognize me as his wife of 52 years. He continues to ask me to call his darling wife to come get him. I believe he is searching for the 22 year old he married. I settled for the fact that even though he doesn't know who I am, he knows I take good care of him and I love him. God bless ~

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@timber2026 the fact that he refers to his "darling wife" shows the love he has for you, even if he can no longer connect your face with that "darling wife" of 52 years. It's charming that in all of his brain chaos, he remembers having a "darling wife." Somehow in all of this we have to just find perspective, and tune into the good in all this confusing bad. I marvel over how forgetful they are, the quirky things they do, often detached from us all, and then there's this "awakening" where my own husband said a month ago that he is my care partner. One minute, he can't remember, then shows up today, with a container of cut up pineapple and three lemons, telling me, as my care partner, he knows what's best for me and my GI stomach issues. My takeaway: tune into the good whenever we can. I have a care partner and you - regardless of whether he recognizes you are not - are his "darling wife." Best, Karla

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Profile picture for tsch @tsch

@akela09
Sadly, even doing everything you can, can still lead to many hurts. At least you have the knowledge that this is to be expected even if difficult to endure. I hope you have also found ways to give yourself free time away from the stress of caregiving. You are right in that trying to make sense of something that does make sense is futile.

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@tsch
My last sentence should have been you cannot make sense of something that in itself does not make sense.

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Profile picture for kjc48 @kjc48

@timber2026 the fact that he refers to his "darling wife" shows the love he has for you, even if he can no longer connect your face with that "darling wife" of 52 years. It's charming that in all of his brain chaos, he remembers having a "darling wife." Somehow in all of this we have to just find perspective, and tune into the good in all this confusing bad. I marvel over how forgetful they are, the quirky things they do, often detached from us all, and then there's this "awakening" where my own husband said a month ago that he is my care partner. One minute, he can't remember, then shows up today, with a container of cut up pineapple and three lemons, telling me, as my care partner, he knows what's best for me and my GI stomach issues. My takeaway: tune into the good whenever we can. I have a care partner and you - regardless of whether he recognizes you are not - are his "darling wife." Best, Karla

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@kjc48 Oh Karla, your message made me cry with happiness for both us. Thank you ❤️
Karla

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That is really sad and I’m so sorry. Don’t you have any friends or family who could pitch in? It’s very hard to do it all alone.

I’m at the point where I can chat somewhat with a few of my children but don’t want to scare them or burden too much.
I have a therapist that I can talk to every 3 weeks. I’m not at the point where he has forgotten my name, tho he has forgotten a lot of people, and constantly repeats stories and asks a lot of questions over and over, and misplaces everything. The short term memory is seconds now.

I am not looking forward to the future. I’ve been dealing with this for 4 years tho I think the condition started going downhill 7 years ago.

You need someone to help you a little with your husband. It is very hard to wat the ones we loved for 30 plus years become someone we don’t recognize. Please continue to stay here.

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Profile picture for timber2026 @timber2026

@kjc48 Oh Karla, your message made me cry with happiness for both us. Thank you ❤️
Karla

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@timber2026 Thank you for thanking me. We're all in this together. Ps, at dinner tonight, my care partner asked me if I ate the pineapple he got me for my stomach. And he's the one with MCI. We never know........what's next.
Best, Karla

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Profile picture for kjc48 @kjc48

@timber2026 Thank you for thanking me. We're all in this together. Ps, at dinner tonight, my care partner asked me if I ate the pineapple he got me for my stomach. And he's the one with MCI. We never know........what's next.
Best, Karla

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@kjc48 ❤️❤️❤️❤️❤️❤️

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