Dietician said only stay hydrated with Stage 3b CKD....no other diet

Posted by kayabbott @kayabbott, Dec 18, 2025

Frustrating, my eGFR is 32, but the renal dietician said I only need to drink enough water, no other dietary changes (mostly pescaterian now). A year ago when my eGFR was 52 the nephrologist said just hydrate. I asked her if there are any books or charts that help with a stage 3b diet, and she dismissed that. I don't have diabetes, high BP, or heart disease and am on Jardiance because I don't tolerate meds. They tend to be reactive rather than proactive, treat it rather than slow the decline. Have your had the "don't worry about it" dismissive "advice"?

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Profile picture for happyquilter @happyquilter

These recommendations for a kidney diet just put me in a slump. I did NOT grow up with things like Chia seeds, lentils and quinoa and honestly don't even know exactly what they are. Sold in health food type stores I suppose. There is absolutely no way I am going to flip flop my entire way of eating at the age of 76 and start shopping for gerbil food. I guess these things are fine if you're used to eating them but I wouldn't know where to begin and I've had a terrible time and couldn't find any help with a dietitian for CKD3B. At least not one my insurance would pay for. So with no help other than the internet and restricting certain foods, I've managed things on my own. So far so good. I guess our medical system/my insurance could care less about helping us stay well and off dialysis.

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@happyquilter. I just can't do some of those spices all the time. Very rarely. Nausea all the time. No appetite. No desire to cook either. Hunting recipes that work for CKD3b is a pain. Ice cream helps settle my stomach but it's not on the diet.

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Thanks for the hug.

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My CKD is due to diabetes and a short spell of hypertension (high blood pressure). So I follow diabetes dietary guidelines; (that is a different story). I have meds for blood pressure & limit sodium. For the CKD my nephrologist has me “eat for the labs”. This means limit sodium and glucose & carbohydrate (as already mentioned) and be aware of calcium, oxalates, phosphorus and potassium. I also learned that protein can be particularly hard on kidneys, especially red meat. I limit red meat consumption. My poultry is mainly from poultry or fish, eggs and dairy (sometimes pork). I avoid fried foods (because of the fat) and try to stick with baked, grilled or roasted. I use lower carb fruits and veggies. I limit bread, pasta, potatoes, rice, starchy stuff… because of the higher carbs. I stay hydrated. Sugar free beverages like Crystal Light is a good option for me because there is taste but few carbs. I was blessed to find a dietician who was diabetic herself and well versed in renal diet requirements. Many doctors get very little training in nutrition and not all dieticians have training in particular diseases.

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Profile picture for Cheryl, Volunteer Mentor @cehunt57

My CKD is due to diabetes and a short spell of hypertension (high blood pressure). So I follow diabetes dietary guidelines; (that is a different story). I have meds for blood pressure & limit sodium. For the CKD my nephrologist has me “eat for the labs”. This means limit sodium and glucose & carbohydrate (as already mentioned) and be aware of calcium, oxalates, phosphorus and potassium. I also learned that protein can be particularly hard on kidneys, especially red meat. I limit red meat consumption. My poultry is mainly from poultry or fish, eggs and dairy (sometimes pork). I avoid fried foods (because of the fat) and try to stick with baked, grilled or roasted. I use lower carb fruits and veggies. I limit bread, pasta, potatoes, rice, starchy stuff… because of the higher carbs. I stay hydrated. Sugar free beverages like Crystal Light is a good option for me because there is taste but few carbs. I was blessed to find a dietician who was diabetic herself and well versed in renal diet requirements. Many doctors get very little training in nutrition and not all dieticians have training in particular diseases.

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@cehunt57 edit. In the middle of my post I meant to say that “my protein is mainly from poultry or fish…..” NOT “my poultry is mainly from poultry or fish…..”
SORRY!

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Diet is one major way to help kidneys…how can a dietician say otherwise ? Probably best to seek out a nephrologist and a nephro-nutritionist…meanwhile , watch protein, potassium, phosphorus….and hydrate ! We have to be proactive , as the medical profession doesn’t seem to take kidney function seriously enough…. They have virtually no meds for earlier stage CKD….. there is a lot of good info from reliable sources, though we must beware of online hucksters ! One can have a basically healthy diet, using more plant protein, while stabilizing our kidney function. It is truly up to US !

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Sadly, the medical and nutritionist professions are generally not helpful, especially for early CKD…which means that WE must be proactive, with hydrating and diet…watching sodium, protein, creatinine, potassium, phosphorus, etc. ..it is doable and livable…not gerbil food…fortunately there are way more food choices these days, which are a big help…. Some of us have other conditions that make diet balancing more complicated…this site is full of good lived experience thoughtfully presented. There is a lot of useful info online, but beware of hucksters/magic cures !! It’s good to know that we CAN help ourselves. Good luck, everyone !!

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Profile picture for kayabbott @kayabbott

@happyquilter Lentils are a type of bean. Other legumes (beans) are fine with renal diets; they are high in potassium and phosphorus so moderation is key. Rather than a bowl of chili, chili on a tostada or white rice works. If you like to cook, DaVita has online recipes for kidney and diabetes diets. Eggs are good, and not particularly liked by gerbils. https://davita.com/diet-nutrition/recipes/

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@kayabbott. Cute comment. Thanks for the empathy and cooking advice. Cooking for one is challenging and have no desire to become a culinary expert for CKD.

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Profile picture for happyquilter @happyquilter

@kayabbott Honestky, I don't cook much anymore. I don't eat much anymore. I don't use many seasonings or spices. It really depends on what I would cook and don't do much any more living alone. Too much trouble and hard to really cook for one person. So all those spices just don't get used. I've honestly found it quite difficult to eat period because I no longer get hungry and really just don't have an appetite. Cooking is too much work now.

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@happyquilter I can totally agree. No appetite most of the time.

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Profile picture for happyquilter @happyquilter

@kayabbott Honestky, I don't cook much anymore. I don't eat much anymore. I don't use many seasonings or spices. It really depends on what I would cook and don't do much any more living alone. Too much trouble and hard to really cook for one person. So all those spices just don't get used. I've honestly found it quite difficult to eat period because I no longer get hungry and really just don't have an appetite. Cooking is too much work now.

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@happyquilter I cook because I have to; with celiac disease I turn into the Pillsbury dough boy if I eat a crumb of gluten. There are few restaurants that are safe with my diet restrictions. Unfortunately, our afflictions tend to isolate us from others who don't understand. Not having friends and family to confide in can contribute to lethargy and hopelessness. I work at breaking out of the cycle with hobbies and other interests. I can't do much aerobic exercise with the CKD, except in pieces, but I can lift weights. It was somwhat life changing to get a good personal trainer at my rec center, giving me something to improve in my life, to combat the fear of downward spirals. Even taking walks helps.

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Profile picture for kayabbott @kayabbott

@happyquilter Lentils are a type of bean. Other legumes (beans) are fine with renal diets; they are high in potassium and phosphorus so moderation is key. Rather than a bowl of chili, chili on a tostada or white rice works. If you like to cook, DaVita has online recipes for kidney and diabetes diets. Eggs are good, and not particularly liked by gerbils. https://davita.com/diet-nutrition/recipes/

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@kayabbott One thing I DON'T want to do is cook for one. Cooking beans take time and also need seasoning to make them palatable. Like ham which is a huge no. Bland is out. Nausea from bland flavorless food overtakes the appetite. Canned beans are a huge no for CKD. Absolutely no desire to eat at all after while. WHEN We/I can't enjoy what I eat, I lose my appetite and desire to eat at all. Depression takes over and then I just forget about it. Drink water, maybe eat a piece of kidney friendly bread to curb hunger. May not be the best but after while I just don't care.

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