After bilateral prostatectomy: Still hope of recovering erections?

Posted by gosteve61 @gosteve61, Jul 24 12:46pm

64 years old. 12 months post bilateral prostatectomy. I had no issues with erections before. My the is 2 with a 20 mg dose of tadalafil. Is there still hope of recovering erections?

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

Profile picture for rnb122 @rnb122

This forum has been of great help to me as a prostate cancer patient.
I'll share what has made a difference in the E.D. condition that resulted from my radical prostatectomy in the hopes that others may find the informaton of benifit to them.
At one and one half years out from surgery, nothing worked however through this forum, I read that an injectable -TRIMIX, was avaiable. It has worked well for me where the pills failed. The MA General Hospital in Boston was able to steer me to the right people for this.

Best, Robert

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There’s a 2023 presentation out of Stanford University that’s titled “Penile Rehab: Optimizing Recovery of Erectile Function after Prostate Cancer Treatment.” They talk about things to do before and after surgery (including injections):

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Profile picture for beachflyer @beachflyer

Yes there is hope for recovery as long as there was adequate nerve sparing and no vascular damage during the RP. There are many men on this forum and other forums that have reported ED recovery by 24 months...with some taking longer. As the previous posters have stated, penile rehab, Cialis, Trimix are all important to keep blood flow going to prevent Fibrosis and the dreaded penile shrinkage. If you are getting night erections that is a good sign.
Post RP two years ago I was doing all the rehab stuff, had night erections, and could get erections of a 2 with Cialis. Three months later erections improved to a 3 with Cialis and a 4 with Trimix. At 6 months night erections went away and erections became worse with Cialis and even Trimix yielding only a 3. By 12 months penile shrinkage was obvious in the Vacuum Erection Device so went to a Sexual Medicine Urologist who diagnosed severe Fibrosis on one side of penis likely a result of surgical nerve/vascular damage.
He said no real treatment for that and recommended an implant. Went to a high volume implant specialist and am now 4 months post implant. The point of this story is that men need to stay focused on penile rehab as it helps with recovery of a healthy penis AND better prepares you for an implant if things go south.
While I would never have gone with an implant if Trimix had worked, at this point even if I could (obviously I can't) , I would not go back to Trimix as the implant is definitely superior, works as advertised, was paid for by Medicare, and no one even knows you have it unless you tell them.

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@beachflyer thank you for your input, makes me feel better as I am getting implant 17th of August 2026. I have used Trimix for over 2 1/2 years now but the injection are getting more and more painful, last night was extremely painful not sure why but looking forward to the implant.

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Profile picture for brianjarvis @brianjarvis

There’s a 2023 presentation out of Stanford University that’s titled “Penile Rehab: Optimizing Recovery of Erectile Function after Prostate Cancer Treatment.” They talk about things to do before and after surgery: https://youtu.be/aRp1NXjPGLE

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@brianjarvis
Excellent information again thank you for sharing.

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Profile picture for Jeff Marchi @jeffmarc

Some doctors give their patient Cialis prescriptions immediately after surgery so that they can keep the blood flowing properly.

The second thing to do is use a penis pump to get an erection and keep the tissue working properly, It may not be stiff enough to her relations, but it keeps the tissue healthy.

The next thing to do, if you can’t get an erection right away, is try using either bimix or Trimix Injections directly into the penis to get an erection. It does work for most people. Not really painful for most as the needle is very thin.r

If all else fails, you can get an implant. That allows you to get an erection at he push of a button.

You might be able to search YouTube for conferences where urologist discuss this.

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@jeffmarc I don’t like taking the Cialis medication so which pump would you think would be the best?

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Hi,
How long ago did you have surgery? If it’s only been a few months your body is still recovering. If it’s been a few years probably not much improvement. Nerve damage takes a long time to recover. I like Jeff’s comment, erections at the push of a button, kinda cool👍.

Dave 3+4

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Profile picture for layingthegroundwork @layingthegroundwork

@jeffmarc I don’t like taking the Cialis medication so which pump would you think would be the best?

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@layingthegroundwork

A penis pump will not allow you to get an erection strong enough for Intercourse. It might work if you use Viagra.

A surgeon suggested going to the Menmd website, to get a quality pump, they have 3 to choose from $99, $199, and $299 which is battery powered
https://connect.mayoclinic.org/comment/1518628/
https://osbon.ca

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Profile picture for beachflyer @beachflyer

@topf
If you are considering an implant down the road and are seeing shrinkage, get a traction device to keep things stretched out. I did my implant at 16 months cause things were getting worse in a way that would complicate the implant procedure by waiting 6 more months. 4 months of traction did the trick and absolutely no loss when compared to things prior to RP surgery.

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@beachflyer what are you referring to as a traction device

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Penile traction devices such as RestoreX stretch penile tissues (tunica albungenea) that has shrunk from lack of natural night erections and subsequent fibrosis (scarring) from lack of blood flow. There are cheaper units than RestoreX out there and they can all work with consistent daily application.

My implant Urologist (Dr Dashen Patel, UCSD) recommended traction for several months prior to the procedure.

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Profile picture for gosteve61 @gosteve61

My erections hardness score is 2.

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@gosteve61, you may wish to see these related discussions:
- Erections post radical prostatectomy: What to expect?https://connect.mayoclinic.org/discussion/erections-post-radical-prostatectomy/
- ED after prostatectomy? Any first hand experiences overcoming it?https://connect.mayoclinic.org/discussion/ed-after-prostatectomy-anyone-have-first-hand-experien-overcoming-it/

There are many discussions in the prostate cancer support group about erectile function after surgery. Use the group search to find tips from others:
https://connect.mayoclinic.org/group/prostate-cancer/
How long ago was your surgery?

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Profile picture for brianjarvis @brianjarvis

There’s a 2023 presentation out of Stanford University that’s titled “Penile Rehab: Optimizing Recovery of Erectile Function after Prostate Cancer Treatment.” They talk about things to do before and after surgery (including injections):

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@brianjarvis
Brian, thanks so much for sharing this presentation. Oh how I wish I had seen this before my treatment or soon after radiation. Sadly, my urologist, my oncologist and my radiation oncologist failed to address these issues. I have/had given up on any sort of erectile functioning; and I'm only 57 (diagnosed at 56). Although this presentation suggests I should have been far more proactive than I have been, maybe there's hope? ADT sure sucks the desire out of me so penile function hasn't been a top priority. Again, thanks Brian Jarvis for sharing this informative lecture.

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