Has anyone tried intralymphatic immunotherapy?

Posted by bikingbabe123 @bikingbabe123, Jul 26 8:43am

I just did it. Last dose had a delayed reaction with the worse asthma attack. I'm ok now. Hopefully it will help my allergies longterm

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Sue, Volunteer Mentor | @sueinmn | Jul 26 9:51am

@bikingbabe123 I had not heard that this therapy was available yet, or that it has been approved by the FDA.

So many questions, since severe allergies run in our family...
Which allergens were used?
What had you tried previously, and did it work?
Where were you able to find it?
Did your insurance cover it?

Thank you!

bikingbabe123 | @bikingbabe123 | Jul 26 10:45am

In reply to @sueinmn "@bikingbabe123 I had not heard that this therapy was available yet, or that it has been..." + (show)

@sueinmn

You pay out of pocket. Need to find allergist who does it. Called Ilit. Usually about $3300 for 3 injections over 2 months.
Allergist will test you for specific allergies. Good luck

Sue, Volunteer Mentor | @sueinmn | Jul 26 1:45pm

In reply to @bikingbabe123 "@sueinmn You pay out of pocket. Need to find allergist who does it. Called Ilit. Usually..." + (show)

@bikingbabe123 Waiting for FDA approval, thanks.

bikingbabe123 | @bikingbabe123 | Jul 26 2:21pm

In reply to @sueinmn "@bikingbabe123 Waiting for FDA approval, thanks." + (show)

@sueinmn

Yes. It is currently off label

bikingbabe123 | @bikingbabe123 | Aug 6 5:34am

In reply to @sueinmn "@bikingbabe123 I had not heard that this therapy was available yet, or that it has been..." + (show)

@sueinmn
It's off label. Dr. Does standard allergy testing
However, injections are directly into lymph nodes. The treatment is also called "Ilit".

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