Hashimotos and Low Dose Naltrexone (LDN)

Posted by emmiemae08 @emmiemae08, Jul 18 12:54pm

I was just diagnosed with Hashimoto at age 76 but believe I have had it much longer. I had been on synthroid for hypothyroid for over 40 years. I have dealt with depression for most of my life. Last year I went to a MD who uses more of a functional approach who ran full thyroid panel. I was put on NP Thyroid and began LDN at 1.5 mgs and am now on 3.5 mgs with hope of ending up at 4.5 mgs. So far I am not feeling an improvement. Have extreme fatigue and not able to lose weight. Has anyone tried LDN?

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i have tried it like two times and it has not done anything for me

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wondering about huffing? and LDN

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Hi there! Fellow hypothyroidism here.

Im 32 and have also struggled with extreme fatigue for over 15 years. Im on LDN and it definitely helps me, but it helps me more with my fibromyalgia symptoms. What I've gotten the most relief from is Duoloxetine/Cymbalta. I'm currently at the max dose otherwise I'd take more. I'd also look into fibromyalgia and see if it would possibly fit as a diagnosis. The issue with all of these illnesses are the fact that they share so many symptoms and can be hard to distinguish. Best of luck!

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I'm on 3mg LDN as a bridge from prednisone to kevzara. After my PMR diagnosis I was diagnosed with SMM. It took a week or so to feel the LDN working and I've been on it for about 6 weeks. I take it at night and it definitely has helped me sleep better. 3mg is a relatively low dose. I'm hoping for a script for 4.5mg next time. I think it helps with my arthritis too.

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Profile picture for gymnast1 @gymnast1

I have had thyroid issues most of my life. Believe symptoms showed in college at 22 when a throat specialist examined my neck and mentioned enlargement but never referred me to an endocrinologist . So, I had my tonsils removed. It was not until my 50's thatI was diagnosed. Even then they could not tell me how I got this. It wasn't until I found an endocrinologist and wa told it was Hashimoto disease which runs in the maternal side of my family. I have been on Synthroid since. Would like to know what this LDN is.

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Hello I too have a diagnosis from a doctor that I had pancreatitis 4 times in 2020 and if my gastro doctor hadn't thought about ordering a DNA TEST,who knows how long I would be suffering from pancreatitis or something else. I have a rare blood disorder called hemochromatosis, iron overload. Which affects all your organs. Maybe see about a DNA TEST. Good luck on your journey. I wish for good results for you. Cathy M

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Profile picture for medicalunicorn @medicalunicorn

Hi there! Fellow hypothyroidism here.

Im 32 and have also struggled with extreme fatigue for over 15 years. Im on LDN and it definitely helps me, but it helps me more with my fibromyalgia symptoms. What I've gotten the most relief from is Duoloxetine/Cymbalta. I'm currently at the max dose otherwise I'd take more. I'd also look into fibromyalgia and see if it would possibly fit as a diagnosis. The issue with all of these illnesses are the fact that they share so many symptoms and can be hard to distinguish. Best of luck!

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@medicalunicorn 🐻 with me.. it'll be a book. LDN I liked when I first diagnosed until I learned which foods were my triggers an cut them out etc... I liked liquid because under tongue gets into system faster... I did have to up dose during transition.. but now that I have understanding what works for me.i don't take anymore. I don't want to get to point ive used up all an 10-20 years later there's nothing to take because immune so to speak., I've gone back to old ways cookin from scratch.. no msg, hormones, sugar, dyes.
I haven't had dairy in 33 years.. it's made me sò sick, I first learned of hashi/ thyroid AND mthfr gene mutation(2years ag... I learned this when I went to functional dr cuz my other dr. . Well you read... see him long time.. when he didn't listen I left.. with being proactive. An such wanting to feel better because dealt with daily migraines since well 40 plus years.. teens on up.. b12 I did with methylcolbalmin(?spelling) don't take the cyanocobalamin that is man made an has cyanide in it.. nope.. makes me sick.. but I did the aip(auto immune protocol diet) to learn what triggers are. Gluten a big one.. but she started me on LDN an I had liquid.. for some reason.. helped me a lot till I figured diet out, no dairy, no gluten.an too was told by gi doc no pork.? Why you ask well.. was one explained to me as fats.. is a natural laxatives to our body, but for me it's amplified ten fold more.. an pork is high an rich in fat.. so is roast. But try find meat that has no hormones.. because I found I react to that too.,
Oh lawd, lol, I did the dermatologist thing too.'and had every cream ointment hair wash., he wanted me washing my hair daily. 'An certain days 2 times a day. #note: my hair has always been super thick. Not anymore. And it's almost 3 feet long. But itched at the crown. Drive me nuts. Since diagnosis.. developed what allergy? Sensitivity? All I know, when rinse.. my skin burns... I learned that mix 1 part raw apple cider vinegar 4 to 5 part filtered/distilled water... too acidic to add directly.. but put on scalp after wetting hair work into Scalp.. for those of you live foam.. sorry no foam. Leave on 10 min., so do your shower stuff then when done rinse...
what does this do. Well I found several things, so it cleans any chemicals an such water leaves on hair.. cleans it. Doesn't hurt dyed hair. So I don't use shampoo conditioner. Or head an shoulders. Growing up my hair.. nappy head the knots. Not this way.. detangler comb worked great. No itchy scalp. Hair is shiny, soft... silky... an noticed not frizzy... an noticed no split ends for the last year ive started. But it does open up pores to too stimulate hair growth.
I guess balances pH in skin. . I don't know.. but if dogs itchy works for them too(an flea an tick repeĺant)... sorry rambling. But I feel details important. An maybe hoping give someone ideas which way to go.... Hugz

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Profile picture for wendy517 @wendy517

I have not but I'm very intrigued by this and just wrote down to search for an integrative endocrinologist for my Hashimoto's which gifts you with Hypothyroidism. Went on levothyroxine and conventional docs says, TSH, T3 & T4 All good, you're all good. No I'm not, I should not feel this fatigued, depressed a lot from having lack of energy and im a doer. Diagnosed about 3 years ago after years of mystery and all sorts of testing. I'm 63 now and like my Mom, I want to ski, hike etc well into my 80s or 90s god willing.
Keep us posted on your journey, I'm going to do some research!

Stay strong 💪 🤘 ❤️

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@wendy517 when I switched dr.. an new one learned of my issue..
Real quick first.. if go look at my other comments.. i had tired, brain fog, couldn't walk, pain meds, injections for sciatica etc... changing my diet I got rid meds, pain, couldn't walk across street.. now do several 5 mile walks a day.. and I ride motorcycle yet state to state... you can do it to.. because my GP had me seeing every specialist in the tricounty area... tired of tests 😂 ... I self taught.. all my life.. born hard of hearing Hoh now deaf in one an still hoh in one. but family learned when I was 5.. I couldn't hear. so the first 5 years.. rough.. but I've had to fend for myself an self taught.. so the LDN I used liquid helped lot while I learned what foods were triggers an what was not.... I adjusted to while learning.. cutting sodium cut my pain management.... physical therapy stuff I learned over years helped.. if can't jump or walk do it right there in your living room.. er me.. I go to the cool basement 😂 to not cook

Look ive made couple comments last 2 days., might give ya insight.. go back an look.. and if yes have questions feel free to ask... I'll do my best to Answer accordingly.. don't give up... I got rid ton meds feel so much better.. first time in 40 plus no migraine.. I actually experienced first headache.. ton a pill an gone in hour.. I bout fell over how easy that was.. holy smokes 😂. Hugz

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