7% sodium Chloride, is it harsh on your lungs?

Posted by grammyvictoria @grammyvictoria, Jul 20 3:29pm

After 6 months with this diagnosis and little info from pulmonologist I went to a new pulmonologist today. She said 7% is very harsh on the lungs and wants me to go to 3%.
Frankly I have no idea if she knows what she's talking about --- her aide had never heard of bronchiectasis. Not a really good sign!
I'd love to have opinions from you experienced folks. Thank you.

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Profile picture for crystalena @crystalena

@jago I did that this am.
Three tablespoons of almond flour. ( I am going to look for a finer grind). One large egg . A pinch of salt if desired . (I don’t add salt to anything ) One Ttablespoon of melted real butter , or olive oil . Put in an. 8 oz micro safe mug . Stir with fork until smooth. Place in microwave . ( I put a paper napkin over top . ). Cook for 90 seconds at full power. Then remove and let it sit for a minute . Dump it out of cup and slice it. It says in half- I cut it three times . It was pretty chunky . I have a toaster that does bagels so it fit ok . This is my first try at it . I may increase the ingredients a bit. Maybe a taller cup . :). I t was good . I will keep experimenting. It had texture like cornbread . I will check my flour and see if they make a different grind . I had it with an egg and my daily ration of chopped fruit . See if you can read this picture.

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@crystalena Thanks so much! I'm going to try the bread and pancakes. I'm always looking for simple and tasty gf recipes. : )

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Profile picture for jago @jago

@crystalena Thanks so much! I'm going to try the bread and pancakes. I'm always looking for simple and tasty gf recipes. : )

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@jago I have done the pancake once . I am going to add flavoring next time . Almond or vanilla . I just finished a chicken breast for my dinner . The strips cooked up nice . I used butter the first time . This is my 2nd try and I used olive oil . I hope you enjoy the recipes . Blessed Be , Crystalena

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Profile picture for pgpunch @pgpunch

Have any of you had luck getting Medicare to cover the 7% saline? They are balking with me under the "bronchiectasis diagnosis.

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@pgpunch I have good luck with Walgreens.

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Profile picture for sieglinde @sieglinde

I only just recently started and am on 0.3%. I have the feeling it's not doing much , but I keep on using it , following with my "Accapella" device

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@sieglinde I have what my pulmonologist calls stage 4 Emphysema. I was diagnosed at stage 4 . I have no idea what the lesser stages are . I guess you just need different amts if oxygen . I am on 4 ltrs 24/7 — I have never used a nebulizer . You say it isn’t doing much . I hope I can politely ask . What is it supposed to do ? Peace & Love , Crystalena

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Profile picture for crystalena @crystalena

@sieglinde I have what my pulmonologist calls stage 4 Emphysema. I was diagnosed at stage 4 . I have no idea what the lesser stages are . I guess you just need different amts if oxygen . I am on 4 ltrs 24/7 — I have never used a nebulizer . You say it isn’t doing much . I hope I can politely ask . What is it supposed to do ? Peace & Love , Crystalena

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@crystalena
Good morning
Crystalena.
I was diagnosed with an early stage of Emphysema & copd ca 20 years ago. The saline inhalation is supposed to help you clear your lungs better of sputum .
I was on Spiriva in the beginning, then Encruse, now Trelegy for my Emphysema. It has worked well but I do get flair ups. I have only started with the 3% sodium chloride about 3 months ago , for MAC .
Hope you will find something that will help.

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Profile picture for sieglinde @sieglinde

@crystalena
Good morning
Crystalena.
I was diagnosed with an early stage of Emphysema & copd ca 20 years ago. The saline inhalation is supposed to help you clear your lungs better of sputum .
I was on Spiriva in the beginning, then Encruse, now Trelegy for my Emphysema. It has worked well but I do get flair ups. I have only started with the 3% sodium chloride about 3 months ago , for MAC .
Hope you will find something that will help.

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@sieglinde. I have found that I am able to control my phlegm with a timed release 250 mg tablet of Guaifenisin . I was buying Musinex to do it. Musinex has changed some of their formulas and it is very expensive . I found this Guaif. At Walmart . I take one at night and one in the morning . These require an 8 oz glass of water when you take them. I make certain I do that . And I drink about 100 ounces of water a day . It is Well Water - no treatments . The other thing I do for the phlegm is watch my diet . It is a big factor. Onions , celery, broccoli, pasta , deli meats , high salt items , fatty/ oily meats .These are only a FEW examples . And dairy products . Dairy products do not cause phlegm , but they cause it to harden . So if you are eating some of these things and doing saline nebs , You are trying to fix something that you are causing yourself . ( I say “you”) but it means lots of us. When you have any disease , it is important not to feed it the things it uses against you . I use Trelegy . Three years now . That is it . 1 puff a day . I was diagnosed at stage 4 .. first news I had it . And put immediately on 24/7 oxygen at 4 ltrs . That was 3 years ago . I am always learning how to deal with this emphysema . The diet is important . It takes time to figure these ways . No one tells you !! We can’t beat it . But we can strive to make ourselves as comfortable as possible . Smile a lot today and spread word on importance of diet !! . Bless you , Crystalena

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Profile picture for crystalena @crystalena

@sieglinde. I have found that I am able to control my phlegm with a timed release 250 mg tablet of Guaifenisin . I was buying Musinex to do it. Musinex has changed some of their formulas and it is very expensive . I found this Guaif. At Walmart . I take one at night and one in the morning . These require an 8 oz glass of water when you take them. I make certain I do that . And I drink about 100 ounces of water a day . It is Well Water - no treatments . The other thing I do for the phlegm is watch my diet . It is a big factor. Onions , celery, broccoli, pasta , deli meats , high salt items , fatty/ oily meats .These are only a FEW examples . And dairy products . Dairy products do not cause phlegm , but they cause it to harden . So if you are eating some of these things and doing saline nebs , You are trying to fix something that you are causing yourself . ( I say “you”) but it means lots of us. When you have any disease , it is important not to feed it the things it uses against you . I use Trelegy . Three years now . That is it . 1 puff a day . I was diagnosed at stage 4 .. first news I had it . And put immediately on 24/7 oxygen at 4 ltrs . That was 3 years ago . I am always learning how to deal with this emphysema . The diet is important . It takes time to figure these ways . No one tells you !! We can’t beat it . But we can strive to make ourselves as comfortable as possible . Smile a lot today and spread word on importance of diet !! . Bless you , Crystalena

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@crystalena
Thank you for the info.I use the Costco version , instead Musinex.
You're correct, our diet has so much to do with it.
So, I will work to get out with my Accapella breathing device on top of everything else.
Be well,☺️

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Profile picture for crystalena @crystalena

@scoop I haven’t been on the saline or the nebulizer yet . I am hoping never . I am lazy I guess . I don’t want to sterilize all that stuff. I am on Trelegy 200 a puff a day. I take Famotidine for reflux I take over the counter Guaifenisin for phlegm . I have a new self imposed diet . I have found which foods cause phlegm problems for me. I am beginning a very strict diet. I don’t want to use saline or albuteral.

a very strict

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@crystalena How long have you been diagnosed with Bronchiectasis?
How often do you have a C Scan to observe the condition of your lungs? If you have have they been clear?
How often do you have sputum tested for infections? Have you ever had a sputum that showed an infection?
I take it you have not ever taken the antibiotics for a lung infection with Bronchiectasis?
Barbara
P.S. I just found your post above. Do you have Bronchiectasis or just the Emphysema diagnosis.?

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I don’t have bronchitis. I have emphysema I had one C scan , three years ago . June 2023. No tests for sputum infection . No views of any sputum that looks like infection. I have not taken any antibiotics for 16 yrs .

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Profile picture for blm1007blm1007 @blm1007blm1007

@crystalena How long have you been diagnosed with Bronchiectasis?
How often do you have a C Scan to observe the condition of your lungs? If you have have they been clear?
How often do you have sputum tested for infections? Have you ever had a sputum that showed an infection?
I take it you have not ever taken the antibiotics for a lung infection with Bronchiectasis?
Barbara
P.S. I just found your post above. Do you have Bronchiectasis or just the Emphysema diagnosis.?

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@blm1007blm1007 Were my answers satisfactory? Can I assume one that posts with 7 questions has a motive? Did you ask these questions to see if you could find anything to help you with your Bronchiectasis? Or do you have Bronchiectasis? How do Bronchiectasis and Emphysema differ? What is the common antibiotic used for lung distress? Do you think frequent C scans are harmful to individuals? Is a C scan comforting to any one with terminal COPD?
Do you think when folks use a nebulizer that they are trying to clean out something that they could get some relief from with diet? Do you think diet has an effect on phlegm ? Do you think people with copd that change drugs often , are looking for the inhaler/drug that can fix all the symptoms ? Do you have any hints that might help me with my- 24/7 - 4 ltr - oxygen need? Crystalena

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