What side effects did you have BCG bladder cancer treatment?

It is a very emotional journey. Please don't get discouraged. It IS overwhelming, for sure.
After my husband's bcg treatments for
NIBC failed, a radical cystectomy was suggested. We went for a second opinion at a universiy hospital with a medical school. The new surgical onocologist advised against removal at this point. He explained there have been many advancements in the treatment of bladder cancer with favorable outcomes in the past several years, and suggested a round of BCG with Anktiva. My husband has one more treatment and we are trying to stay positive that this treatment works.
You are not on this roller coaster alone.

@msoles
Thank you for your response. What treatment is your husband currently on?
Am I correct to assume it is BCG with Anktiva? I have not hear of this.

Here's hoping your husband has success and you both have something to celebrate.

Sending good wishes.

I am interested to know if there are any members who are experiencing uncontrolled incontinence following BCG treatments and if so, how is this extremely distressing issue being dealt with. I concluded the first set of six instillations on March 19th and somehow my incontinence is worsening with time.

I will be meeting a new surgeon next week to have two flat tumors removed. Unfortunately, I am a BCG failure which is no surprise since this is so common. I am entering my second year of bladder cancer, intend on seeing a new doctor and will seek an alternate treatment other than BCG.

I give all those who are on this "merry-go-round" a tremendous amount of credit for their inner strength, resilience and determination to beat this tenacious form of cancer. I have been on this emotional treadmill for only one year and feel defeated and depressed.

@deidre77 It’s great that you are going for a second opinion! That takes strength! I look back on my 2 1/2 years and can’t believe I was actually hesitant to do so. Although the journey has been bumpy at times, the outcome was absolutely one of the best things that has happened to me.I wish you the best and hope the second opinion provides good options for you!